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SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

Welcome to all our new memebrs

136 replies

ReclaimingMyInnerPeachy · 21/01/2011 11:04

I will duplicate this thread in chat as well, JIC.

Some of you will have happened to pop by just now; welcome, and be aware things will calm down soon.

others will have come from the publicity- hello. If it is advice you need shout, message, if we cannot help we absolutely will know someone whose job it is to do so; if you want to help- thank you ; if you just want to be part of a supportive board, well come on in.

A few of you may be journalists: understandable, you have to pay the bills like the rest of us.
Please, I ask you to respect the dificulties that carers and aprents of disabled children on here face. Some will only have just learned their child has SN, or be facing real fears. Others have additional hardship s to deal with also. I hope you are motivated by a want to help people with challnges and that's great, but please be aware we are not hare to inform but to get advice or give it.

Thank you

OP posts:
Original poster
ReclaimingMyInnerPeachy · 21/01/2011 13:20

I'm going out to a Christmas dinner and then to plan float makeup with good friends tonight, can't wait- girly escapism.

I know a Paed who specialises in children with an ASD and complications such as LD / Cp etc you know. She ahs a special clinic accepting referrals.

OP posts:
Thecarrotcake · 21/01/2011 13:26

AE i think an SNSB cheese and wine night sounds just the job :)..

you open and if im not wrestling DS I'll pop in.

right now would somebody make the missed unkown number on my phone pick up.. i'm concerned it could be about DS on school trip..( pick up darn you!)

lisad123isasnuttyasaboxoffrogs · 21/01/2011 13:29

welcome to the newbies from me too. We are being a little more cautious than normal but mainly because we are worried you are jurnos and while Im happy to share some parts of my life with my online friends, Im not happy sharing them with the world.

I have 2 beutiful girls who both have ASD.

auntevil · 21/01/2011 13:33

It's either that Carrot (fingers crossed it's not) or you've won an idyllic family holiday in a competition that you never knew you had entered. Grin

Thecarrotcake · 21/01/2011 13:35

:).. well school office know nothing and I can't get through on missed call doofa..

:) @ idyllic family holiday.

SparkleRainbow · 21/01/2011 13:47

Is the missed call number a mobile? If not you are probably OK. Mind you when do school offices know what is going on.....? Grin

Ahhh idyllic family holiday....what would one of those look like? Grin

yoshysmum · 21/01/2011 13:50

Welcome to all newbies Grin was one myself just a few months back. I have a ds [dear son] with newly diagnosed asd. i have learned so much since joining and have tried to help others too.

Where's the choccy then?

SparkleRainbow · 21/01/2011 13:52
Pazzaz · 21/01/2011 14:03

Thanks for the welcome - another newbie
never knew the site existed till I saw
on the news online. I have a son with fragile x syndrome and Autism, severley affected 17yrs. Although completely on my own and isolated with him feel quite lucky after reading some of the stories. I have managed to get him into a very good independant school recently, one on one support, specialises in autism
and have a couple of weekends off respite to look forward to. Shame I didnt find the site earlier as have had some incredibly tough times with him and it is nice to converse with other people in the same boat or even just having a damn good vent with the lack of services for our children.

321pen · 21/01/2011 14:12

Thanks for the welcome folks. I'm not surprised you are being a little cautious just now. I can promise I'm not a journalist though having been made redundant from an HR/IT type role 7 months ago Wink. The redundancy actually was quite well timed as it allowed me to give DS my full attention while we went through some tough times at school and the diagnosis process for ASD. I could do with getting a new job though. I hadn't realised just how much respite working gave me Blush

devientenigma · 21/01/2011 14:14

Just thoughtI would say hi to the newbies instead of thinking of wine and cocolate, our life's complicated so in a nutshell.... 6 kids, 3 with special needs, 1 disabled, challenging and complex, 1 DH (hubby) just as bad and as needy as the rest of us.

auntevil · 21/01/2011 14:16

I think i'm going to go for some of the Purple Ps new invention 'chocolatepam' - don't want to break any new years resolutions! Can you OD on that stuff? I know it can become addictive. Grin

moosemama · 21/01/2011 14:32

Hello and welcome newbies.

This is such a supportive and caring place. I don't know how I would have got through the last couple of years without the lovely people on here - all the wonderful help and advice, to sometimes just knowing that there's someone else out there who understands and has been or is currently going through the same thing.

naomib1979 · 21/01/2011 14:35

hi ive just joined mumsnet im a parent to 2 children ,my 6yr old son has autism :)

Thecarrotcake · 21/01/2011 14:37

Sparkle I did think that when I posted :o

not a mobile number just an unknown! .. It'll be me on tender hooks.. School would have left a message or tried dhs mobile... I'm pretty certain.. If they have the time and he's not gone into meltdown or wandered off requiring all available adults... < stops thinking>.

Pass the chocolatepam!

yoshysmum · 21/01/2011 14:37

Thanks for the choccie and am sipping my tea now, ahh heaven.

seriously though I hope we can continue to support each other through the good times and the bad.

Oops, forgot capitals Blush

intothewest · 21/01/2011 14:38

mmmm.... don't think I'm a newbie any more-must be a few months now- welcome Smile

yoshysmum · 21/01/2011 14:39

Passing some chocolatepam onwards Grin

lisad123isasnuttyasaboxoffrogs · 21/01/2011 14:40

im sitting here with lemsip which i hate but willing to try anything right now. Roll on bedtime so I can go back to my bed.
(wondering if i can get away with giving girls popcorn and movie and shut all doors so can lightly dose)

Thecarrotcake · 21/01/2011 14:46

Lisa.. I have told dh to get into that loft :) I'm hoping for good things when I return from the school run!

< passes box of tissues>

and a DVD and popcorn is a fabby idea for the girls :)

I am hoping to do the same with my lot tonight.... Because tomorrow ds is going to start to learn how to use the bus! < wibble!>.. He is going to be asking for his own ticket and paying the money!

superfantastic · 21/01/2011 15:05

Friday night thread will be on later wont it?....:(

I forgot my DD should pay on the bus...since last october! Blush

...I forgot to say to newbies......

I have DD aged 5, got a diagnosis for ASD last summer....mumsnet supported me through that!..and I have DS, age 1..NT (neuro typical) so far. :)

MarioandLuigi · 21/01/2011 15:14

Welcome to all the newbies. I am not new but I have gone back to an old name as the whole news thing made my MIL interested in Mumsnet and I dont want her to find my old posts.

This is a fabulous board that has helped me loads, I hope you all get the same from it :)

DJAngel · 21/01/2011 15:25

OMG is it friday?

Wanted to say hi and welcome to all newbies too.. There is so much warmth and support on here as well as people who are amazing sources of specialist info.. Hope you'll find it helps you as much as it has helped me..

I have 2 kids ds 7..NT and dd 4 who has Tuberous Sclerosis; epilepsy,GDD, Speech and language disorder etc etc..

1legmummy · 21/01/2011 15:48

Hi, thanks for the welcome.

I have a ds with ADHD, OCD, anxieties and an eating disorder. Currently fighting with school and DLA Grin

Also, as my name suggests, I am an amputee. Was born wih feet and arms back to front. Am now a Mum with two ds.

If I can give advice or support back would be happy to Smile

Tricia7212 · 21/01/2011 16:12

Hi all,

I'm a newbie too. I did post in another thread.

But will say in here, that I'm the mother of a now 28yr old man who has moderate to severe learning difficulties. He suffers with Absence seizures. Complex Partial Seizures and Tonic Clonic ones.

In one way I'm lucky in the fact that things came to a head last March after trying to get help (and none was forthcoming)the year before. But after that and another crisis, I threatend to go to the local Echo and contacted a local Councillor ( I did try my MP but was a waste of time and energy) and then things really did start to move. He now has 4 hours a day out of the house. On a Moday and Friday he has a support worker from Mencap (and these are the people who really rallied round when I needed help. They put Social Services to shame). On a Tuesday, Wednesday and Thursday he goes to a day centre.

I still feel as though we should have a link family so the whole family could get respite even if just for a weekend, so we can spend some quality time with our 7 yr old without worrying about other son.

But I do know from reading others stories just how lucky I am to receive as much as I do. Mind you it only took them 7 years to give this....