Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Flip thread

Hide thread

My feed

Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

SN children

Here are some suggested organisations that offer expert advice on special needs.

Flip

1 2 3 4 5 6

Original poster

Welcome to all our new memebrs

136 replies

ReclaimingMyInnerPeachy · 21/01/2011 11:04

I will duplicate this thread in chat as well, JIC.

Some of you will have happened to pop by just now; welcome, and be aware things will calm down soon.

others will have come from the publicity- hello. If it is advice you need shout, message, if we cannot help we absolutely will know someone whose job it is to do so; if you want to help- thank you ; if you just want to be part of a supportive board, well come on in.

A few of you may be journalists: understandable, you have to pay the bills like the rest of us.
Please, I ask you to respect the dificulties that carers and aprents of disabled children on here face. Some will only have just learned their child has SN, or be facing real fears. Others have additional hardship s to deal with also. I hope you are motivated by a want to help people with challnges and that's great, but please be aware we are not hare to inform but to get advice or give it.

Thank you

OP posts:

Tricia7212 · 21/01/2011 19:17

Your right bigcar... I don't need or even want friends like that

As for family....well they profess to love my son so much yet even a phonecall to ask after him is too much for them...so against other halfs wishes...I have cut myself off form them. Don't need or want the hassle, my first concern is for my children...

SparkleRainbow · 21/01/2011 19:19

I am blessed with some friends how have gone out of their way to become better friends and more involved as extent of ds's disability has grown. They are the ones I cherish the most, rather than the old friends how say, it will all be fine.

SparkleRainbow · 21/01/2011 19:20

who say, not how say......and I haven't even had any wine/baileys

yet

intothewest · 21/01/2011 19:31

opens wine-(and offers around) dh doing bathtime I have made some fantastic friends since having ds-but it took a few years to find them- lost some along the way,but then they weren't friends,were they ?

rettmum · 21/01/2011 19:34

Yep i still have a few very good who try desperatly to understand.As for family some are ok with my dd others tend to want to watch us from afar which is fine.Thanks for the lovely welcome

anonandlikeit · 21/01/2011 19:39

Hello All and welcome! I have 2 ds's the youngest has mild CP & autism

Thecarrotcake · 21/01/2011 19:41

but I did warn you.. So don't come moaning to me when aunty maud calls to tell you what and why happened to you 5 mins earlier... But she's calling from overseas! But your mother is stood right next to you ... So it wasn't her!

I do know I'm very lucky..and I love them but they drive me nuts! :o

bigcar · 21/01/2011 19:45

I suppose we've been lucky with family, my side is non existant and dhs are fairly go with the flow types and don't get too involved. Some of the family stories on here make your toes curl!

intothewest, yes wine oclock at last will join you with a glass of gin, plenty in the bottle for anyone who wants to join me.

Agnesdipesto · 21/01/2011 19:48

Hi to newbies. I have 3 DS the youngest is 4 and has ASD and been on here since his regression 2 years ago

bigcar · 21/01/2011 19:48

haha carrot, amazing When I see the arguements some have with family it doesn't seem such a bad thing to not have much but there are times when I really miss being able to pick up the phone to someone who's known me all my life.

Tricia7212 · 21/01/2011 20:03

Well my mum told me my son was not suffering with epilepsy but had asthma and as such should not be allowed on a plane and I really needed to get meds for him!!

After explaining in detail what his diagnosis was, she told everyone he was schizophrenic, when I asked her why she was saying these things,she told me the Drs had it all wrong!!!

Oh he also doesn't have special needs...he's just slow (or as she put it retarded)....

rettmum · 21/01/2011 20:17

My mum said it will all come out in the wash, still not quite sure what she meant by that.My sister in law said put her in care, like i cant handle this, and my sister said im sure it wont be that bad little did she know.

Tricia7212 · 21/01/2011 20:22

As I say...you can choose your friends but not your family .....

But you know what I still consider myself to be lucky. I'm lucky that I have a child that has taught my other children to be compassionate towards those less fortunate then them. He's tlaught me patience (although it runs out on times

And i'm lucky he's not worse because he could have been.

I see all children as angels, but disabled children/adults I see as angels who have been sent down to help us grow and learn...

NormaStanleyFletcher · 21/01/2011 20:59

I just wanted to say welcome too - from a parent who reads this topic, but has little to contribute (I have one son born with talipes, and a friend who's son has aspergers, but that is my limited experience of children who happen to have special needs).

I actually feel quite glad that genuine mothers/parents of DC with SN have found MN. I think that could be a positive outcome of the recent exposure. A friendly place for people to seek advice (often more informed than the so-called experts).

I wish you well on MN. Don't forget to visit "active conversations" if you get time. It can be a blast.

tallwivglasses · 21/01/2011 21:13

Hi newbies (and oldies!)

My DS (11) is autistic, I also have a DD (19).

I've been here for a few months and it's been a bit of a lifeline tbh.

Life's tough but I get a lot of support, I'm very lucky - and my heart goes out to anyone (old and new)who's struggling.

I've also laughed loads at some of the threads - mums on SN have a great sense of humour. I was so relieved that other families sing ridiculous songs to encourage 'appropriate' behaviour!

Have we had enough wine yet to start a singsong?

1legmummy · 21/01/2011 21:22

NormaStanleyFletcher - I was born with bilateral talipes.

Wish they knew then what they know today

I am up for a singsong - been on the Baileys though

gilly3 · 21/01/2011 21:30

hi folks,have just signed up for the edcm campaign,to email your local authority,about how the money will be spent.
sadly ,i got the answer to the question a few months ago ,that the money allocated in my local authority,ISN,T RINGFENCED....,which means that anyone can dip into that pot of money,which means it WON,T be used for the sole purpose of short breaks and respite
so,although it looks like the goverment are giving lots of cash to our cause...it just means unless its ringfenced ,all will be dipping into the pot.
only had 2 hours sleep last night,due to my son being unwell,so forgive ,if i rant.
Also what happens to the kids and young adults that can,t access aiming higher money,due to either high medical needs or challenging behavour,both in my sons case.
thanks for reading,would love to hear from anyone in similar situation.xxx

gilly3 · 21/01/2011 21:42

hi bigcar,just been on edcm,and completed the email ,thanx to yourself and carrotcake for the welcome.xx

tallwivglasses · 21/01/2011 21:53

Okay 1leg, it took a while but here's a warm up courtesy of signandsay

Any more from the newbies??? We should do a compilation CD

1legmummy · 21/01/2011 22:01

oh my!!! I think I have tears running down my leg - hope it doees not go rusty

tallwivglasses · 21/01/2011 22:06

Got a song, 1leg? No pressure, like...

1legmummy · 21/01/2011 22:09

uuuummmmmmmmmmmmmmm

tallwivglasses · 21/01/2011 22:37

Okay, as threadkiller extraordinaire I'll start...

(to the tune of 'if you're happy and you know it')

Get your finger out your bum, out your bum...

superfantastic · 21/01/2011 22:52

Im sorry im too tired to think of a song...

but DD tried to convince me the spider on her pillow (3am) had turned into a butterfly or frog!

SummerRain · 21/01/2011 23:04

I'm a regular MNer but haven't been brave enough to venture too far into SN as of yet. I'm very aware that most of you have far greater problems than me to deal with so I feel a bit of a faker round these parts.

For the record though:

ds1 is most likely dyspraxic... assessment with OT pending but have issues with school, behaviour, motor skills, yaddda yadda yadda.

I've just completed ds2's assessment of need forms... he has oral dyspraxia aggravated by tongue tie, tied upper lip frenulum and an overbite. He's non verbal and can't make many sounds. We started sign language training today.

And then there's dd.... the 'NT' one... apart from the fact that she behaves more bizarrely than both boys put together

Flip

1 2 3 4 5 6