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High Needs Baby Support Group (thread IV)

960 replies

ATruthUniversallyAcknowledged · 26/08/2012 21:51

Yoohooo! Over here!

The last thread was filling up so I've started us a sparkling new one.

The original thread was to support those of us with babies fitting the following criteria:

  1. Feeds frequently daytime
  2. Feeds frequently nighttime
  3. Needs to be constantly held
  4. Wont sleep alone
  5. Hates the car seat/pram
  6. Short naps

Some of our babies have grown out of some of those now, but we're still here to support each other through the sleepless nights and noisy car journeys and to offer hugs, chocolate and wine to anyone who's struggling.

So if that list sounds familiar then come and join us as we delight in our active, inquisitive, curious and restless babies or toddlers!

OP posts:
Natmu · 29/11/2012 14:40

Yes I think he may have reflux. He seems to vomit quite a bit but some days are worse than others. We' ve got Gaviscon powders but if anything they seem to make things worse.

Mitsouko · 29/11/2012 16:14

Natmu my DD was diagnosed with reflux at 6 weeks and put on Domperidone and Ranitidine. They helped a lot. She started improving around 6 months when she began sitting up more and when we started weaning. She also has cow's milk and soya allergies as well, and I had to eliminate these from my diet as I'm breast feeding. You could try the same, if breast feeding, or talk to your GP about switching to a hypoallergenic formula if your DS is bottle fed. I think that much of what is often dismissed as "colic" is undiagnosed allergies, intolerances and other gastric issues.

TisILeclerc · 29/11/2012 16:16

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Natmu · 29/11/2012 18:17

Right I shall book a Dr's appointment in the morning! He's never been officially diagnosed. The HV mentioned it when he was a couple of weeks old because he wouldn't lay flat to go to sleep although at that time he wasn't bringing anything up. Most people I've spoken to about it have told me it's just something they have to grow out of and that the medications don't really work but as you're saying differently I will definitely pursue it. Poor little man. Sounds horrid Sad

Natmu · 29/11/2012 18:22

I am ebf by the way. Have been keeping a food diary to try and see if there's anything which makes him worse but it's very hard to tell. I did consider cutting out dairy but didn't want to do it without GP's advice as it's so many foods.

PeggyCarter · 29/11/2012 18:39

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Climbingpenguin · 29/11/2012 19:19

medications def. work with reflux, but doesn't mean most docs know about the medications either. Look up the old reflux support thread in the breastfeeding section.

I'm a vegan and soy free, so could help with some food ideas if you go down that route.

DS had his tongue and lip tie cut with a laser today. He didn't take a nighttime feed but did feed really well at lunch time. it doesn't last too long. It's the stretches that cause the post pain I think.

TisILeclerc · 29/11/2012 19:44

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Natmu · 29/11/2012 20:29

Tis, that's exactly the response I've had from everyone so far with regard to ds's problems. If he's not failing to thrive then it's not a problem.

We had a nightmare establishing bf and I was convinced he had a TT but no one would confirm or deny when I asked them to look. All they said was if he's gaining weight then it's not a problem. Finally we saw a paediatric registrar for a follow up appointment about something else and she spotted it while she was examining him but even she said the same about weight gain.

I still feel like his latch is sometimes a bit dodgy although it doesn't cause me any pain now, but he gulps down a lot of air with the milk then gets terrible wind. Been to see 4 bf counsellors who all said he was feeding well.

DH had loads of allergies and hideous head to toe eczema as a child so it's very possible ds2 may have allergies as well. He's certainly got the eczema which is getting worse day by day. I have to say there's no green poos though which is a sign of lactose intolerance isn't it? Could he still be sensitive to dairy even though his poos are yellow?

Natmu · 29/11/2012 20:31

Mmmm chocolate orange brownies. Oh damn! No dairy! Not really liking the thought of that Sad

Climbingpenguin · 29/11/2012 20:42

try sweeping a finger under his tongue and see if you feel any resistance (do your own tongue as comparison). To get a look, you need to put your two index fingers under the tongue, either side of the middle and push the tongue up. If you suspect something then you can google tongue tie and Dr Kotlow who has some videos and slideshows on it. I did that but like you no-one would confirm it. In the end we booked an appointment with a dentist (there are only two in the UK that laser) and had the consultation to confirm the ties and then he whipped him away for the procedure.

Obviously your problems could be either reflux or TT (or both).

DD ended up being soy, dairy and egg intolerant but had yellow poos. breastmilk still has lactose doesn't it so maybe something that occurs with time.

I'm of the opinion if they're in discomfort then they should be treated, it's just getting others to think that way.

bf cafes told me DSs latch was ok. To be fair it was ok, but it could have been loads better and his latch was shallow and caused me pain periodically but not enough to say there is clearly a problem. He falls (fell) of the breast when it's more faster flowing, was fairly sicky and windy for the first 6-9months.

Natmu · 29/11/2012 20:54

Sounds like you're describing my ds. Bf counsellor diagnosed fast let down and over supply as our initial problem and it was partly that as her suggested approach did work to calm feeding down but I feel like it could still be better.

PeggyCarter · 29/11/2012 20:55

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TisILeclerc · 29/11/2012 20:57

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TisILeclerc · 29/11/2012 20:57

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Climbingpenguin · 29/11/2012 21:01

I was reading earlier that if TT is present mother can be diagnosed with fast letdown/over supply, where in fact it's the baby not having a good enough latch to stay on during the faster parts of the feed (if that makes sense)

ok, maybe being a vegan means I am biased, but dairy free is fine. I'll have the brownie recipe Grin I have given up on cake making, I am just too shit at it )I failed organic chemistry labs which is the same as baking) so maybe I might be able to make a half decent brownie.

we use oat milk. If it goes in hot drinks, then add milk then hot water. First half the cartoon alright, but when using the bottom half it is prone to separating. Just keep a teaspoon handy for stirring it all back up again.

Natmu · 29/11/2012 21:02

Climbing did things improve post laser? How traumatic did your DS find the experience? Just trying to weigh up possible advantages vs pain etc. registrar said it is a posterior TT. Ds is able to poke his tongue out quite far and it protrudes over his gum and bottom lip when he is feeding.

Natmu · 29/11/2012 21:08

Yes please to the recipe joyful Grin

Natmu · 29/11/2012 21:12

Thanks for the tips tis. I will stick to my guns, particularly based on history of allergies in our family.

Climbingpenguin · 29/11/2012 21:13

well it was only done this morning Grin The feed post procedure was amazing, don't think I'd realised the tension of just about OK feeds. Procedure was fine, lots of crying but that's because he didn't like being held down. He stopped crying as soon as he was handed back to me. He's a bit sore now, but that's more from the stretches we have to do to stop it trying to reattach. On scales of 1-4 (1 being PTT and 4 severe) both his tongue and lip ties were 2.5.

DS's tongue also stuck out a little bit on feeding and recently he learnt to stick it out. His motion was restricted and a clear asymmetry in his movement. He also never licked his lips. How severe it is isn't an indicator of how much it effects feeding though, that seems to be really random. I'll let you know how we get on over the next few days.

I spent a few months reading around before I did it and also joined a fb group called tonguetiebabies For me it was about preventing future problems but if the good latch continues that will be fantastic.

Natmu · 29/11/2012 21:14

Sorry climbing just realised you said ds only had TT lasered today Blush

Natmu · 29/11/2012 21:15

X post Grin

PeggyCarter · 29/11/2012 21:23

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LittleMachine · 30/11/2012 09:09

In your opinion/experience does screaming and back arching always mean wind or could it be another pain such as teeth?
No sleep Sad
Hope there were better nights for everyone else.

LittleMachine · 30/11/2012 09:34

Friday cakes all round by the way.
Cadbury's festive cake selection anyone? Grin