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See all MNHQ comments on this thread

Autism and MNHQ moderation

326 replies

HypocrisyHere · 04/01/2022 10:24

I am starting this thread as suggested by @HebeMumsnet following the other thread I started last week

www.mumsnet.com/Talk/am_i_being_unreasonable/4439585-MN-and-their-approach-to-autism?pg=1

The point was the lack of consistency in moderation (the screenshots contained two threads in my watchlist - one deleted due to its title, the other - the “support” thread - allowed to stand despite what many to believe to be a far, far more offensive title).

From the linked above thread you will see many autistic people who feel that MNHQ allow many posts which are based on outdated, inaccurate and harmful stereotypes of autistic people. Further, on the support thread, the majority of posters have self-diagnosed Their partners and many of us view this as extremely offensive as again, this self diagnosis is based on these outdated stereotypes (please note an individual self-diagnosing themselves is a totally different issue and though an important discussion, not one I intended to raise on my original thread). I have summarised my thoughts on that thread in my post I made on 31/12/21 at 12:09.

I also made it clear from my opening post that I think parents of autistic children also need a space to seek support (hence me questioning why first thread was deleted). I know that many parents need this. But you will also see that many of these parents often accuse autistic adults without learning difficulties of trying to advocate for their children. I can state that in my case this is absolutely untrue and I did not see any others in the thread doing so. But I want to be clear that I absolutely support the need for this but it is not fair for these parents to refer to our autism as “mild” which they frequently do. This is a very outdated term which many of us find very offensive as it is based in a neurotypical person’s view of us and not on our actual “lived experience”. Spending the majority of your school years as an outcast and a person who can be mocked is not a mild experience for a child.

On the linked thread you will also see that we have been subjected to a whole load of ableist comments - that there’s something wrong with is, that we need to realise how negatively we impact people, that we are selfish for wanting to centre the discussion on us etc. this highlights the deep misunderstanding, ignorance and downright prejudice many people have towards us.

I think many of us would welcome a productive dialogue with MNHQ where we could address these issues as well as discussing the harm threads about autistic people cause (which includes the support thread). Many of us have acknowledged that we understand our behaviours may seem “difficult” but for us many, many neurotypical behaviours, which we need to accommodate every day, are difficult for us. This is a two-way street and we won’t make progress until BOTH “sides” respect each other.

One final clarification. I am in no way attempting to speak for all autistic people here. I started the thread sharing my own opinion and many people supported me (when I last looked 65% supported me). What I have written here are my own feelings on the subject.

Thank you for asking me to post here and I very much hope we can make progress on this issue and that MN (and society in general) can become a place where autism is understood and accepted.

OP posts:
BarrowInFurnessRailwayStation · 08/01/2022 18:00

It's like a microcosm of society here.

Nobody knows what we are, what we're supposed to be classified as, where to put us or what to do about us. They wish we'd just stfu and go away.

Thoosa · 08/01/2022 18:04

If you do, post the link to the thread here please @BarrowInFurnessRailwayStation 🙏🏻

ENoeuf · 08/01/2022 18:06

Do you mean a support thread about the difficulties being autistic generally or a thread to share ideas for better moderation/experience of MN ?

BarrowInFurnessRailwayStation · 08/01/2022 18:10

Do you mean a support thread about the difficulties being autistic generally or a thread to share ideas for better moderation/experience of MN ?

Anything really. I know there's already a support thread in SN, but that's a long running one. I have long standing concerns regarding the treatment of autism related threads on MN and it's apparent that nothing is going to happen to improve things, so I'd quite like a safe place to moan about it please.

BarrowInFurnessRailwayStation · 08/01/2022 18:11

If you do, post the link to the thread here please @BarrowInFurnessRailwayStation 🙏🏻

👍🏻

ENoeuf · 08/01/2022 18:18

Ok, well assuming MN are monitoring this thread, I would really like a Neurodiverse Mumsnetters subtopic in SN, and I’d like that overall topic to be renamed SEND really. I’d also like to be able to report posts on grounds of racism/sexism/ableism etc - not sure how that could be rolled up.

Innocenta · 08/01/2022 18:44

@ENoeuf

Ok, well assuming MN are monitoring this thread, I would really like a Neurodiverse Mumsnetters subtopic in SN, and I’d like that overall topic to be renamed SEND really. I’d also like to be able to report posts on grounds of racism/sexism/ableism etc - not sure how that could be rolled up.
I think these are fantastic suggestions. While I'm not in favour of being overly stringent regarding the terms individuals use about their situations, I don't think calling a section of MN 'Special Needs' is reflective of current terminology.
BarrowInFurnessRailwayStation · 08/01/2022 18:53

Well I can start a support thread in Mumsnetters with SN section.

What should it be called? It doesn't need to be based around contentious subjects, but I'd like somewhere to go to discuss the issues surrounding how we're regarded on MN and out in society and how it impacts us.

ENoeuf · 08/01/2022 18:57

Thank you Innocenta fingers crossed - I agree, Special Needs just isn’t inclusive language and maybe the topic would widen so that all types of visible / invisible disability had a safe place to start a discussion.

ENoeuf · 08/01/2022 18:59

Something like Surviving Stereotypes? Or Fitting In ? I don’t know, those are the things I find hard along with just sucking up stuff that is hurtful or weird but you aren’t allowed to question.

BarrowInFurnessRailwayStation · 08/01/2022 19:35

Something like Surviving Stereotypes? Or Fitting In ? I don’t know, those are the things I find hard along with just sucking up stuff that is hurtful or weird but you aren’t allowed to question.

BarrowInFurnessRailwayStation · 08/01/2022 19:36

👍🏻

BarrowInFurnessRailwayStation · 08/01/2022 19:43

www.mumsnet.com/Talk/mumsnetters_with_sn/4448389-Surviving-Stereotypes?watched=1

I've started one up. Don't know how others will find us though 🤔

Which is why we need a designated board, but never mind 😐

ENoeuf · 16/01/2022 11:45

Was there a resolution to this? I haven’t seen any proposals or updates? It would be good to maybe have some suggestions to have MNHQ consider?

Mine would be (again) renaming the topic to SEND (Special Educational Needs and Disability) and then having sub topics like Education; ND Members; Parenting; general chat type thing?

5zeds · 16/01/2022 20:40

I think if the idea is to rebrand the entire topic then it would be sensible to include all the users as this thread is focused on autism and may have been missed by those not autism focused.

ENoeuf · 16/01/2022 21:57

Agreed - not sure if there’s a plan?

BarrowInFurnessRailwayStation · 16/01/2022 23:39

There won't be a plan, they'll just ignore us and hope we go away. Just like everybody else.

5zeds · 17/01/2022 18:50

@BarrowInFurnessRailwayStation what would you want them to do if you could choose?

BarrowInFurnessRailwayStation · 17/01/2022 19:03

what would you want them to do if you could choose?

A dedicated section for neurodiverse mumsnetters - adhd and autism - perhaps separately.

Properly moderated so NTs don't come along to wind us up, explain ND to us or get to explain ourselves and have to justify our existence. No NT parents of ND youngsters telling us we're doing autism wrong etc.

Could be included in Active Conversations so that the section can be found by new people.

Should be easy enough 🙂

HerRoyalHappiness · 17/01/2022 19:05

Properly moderated so NTs don't come along to wind us up, explain ND to us or get to explain ourselves and have to justify our existence. No NT parents of ND youngsters telling us we're doing autism wrong etc.

This would make such a difference to neurodiverse posters.

Innocenta · 17/01/2022 19:23

Genuine question, though - how would you want them to handle disagreements about who is 'ND enough' to participate? That's already been a contentious issue on these recent threads. It would be quite unMumsnetty to require certain verifications, but I get the impression that people only 'count' as ND if they hold the same views as some of the prolific ND posters. I don't think that is true representation or inclusivity (but, of course, some people think I'm not ND enough for my opinion to matter even though I am ND...).

CorrBlimeyGG · 17/01/2022 20:05

@Innocenta I guess the MN can recognise that being doesn't give you the green light to be rude to others. It's not about not being ND enough, whatever that means, but being polite and truly inclusive to all.

5zeds · 17/01/2022 20:34

@CorrBlimeyGG I don’t think a thread/board where only some people are allowed to post some views can ever be described as inclusive, but if it’s achievable and wanted I think you could request it. My concern would be that someone might ask for a thread/board excluding the nd for balance and I would find that hard to be ok with.

Innocenta · 17/01/2022 20:39

@CorrBlimeyGG No, I don't mean MNHQ - they don't try to police things like that. Only other users do.

BarrowInFurnessRailwayStation · 17/01/2022 22:36

I don’t think a thread/board where only some people are allowed to post some views can ever be described as inclusive

What about the Black Mumsnetters board? That is an area specifically where black people can discuss the issues and challenges they face.

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