That’s blatantly obvious! I had a DD1 with complex SEN, diagnosed rising three.
Over the next few years, I was having to take her to appointments and assessments with speech and language therapists, consultant community paediatricians, occupational therapists, physiotherapists, educational psychologists, specialist speech and language teachers, LA officers, the teachers (above and beyond the normal parents’ evenings); the annual reviews (MDT meetings with the above professionals) and when she reached age 5, four sessions of psychotherapy a week with CAMHS after school (for a year, going down to three the next year, two the year after until she was down to one a week by age 10).
I also had to deliver the programs of speech and language therapy, physiotherapy and occupational therapy they devised for her after school, as well as helping my other two DC with their homework. The truth is, if I didn’t do the therapy programs with her, she wouldn’t have got more appointments. They didn’t waste their time on children, who were not going to get the input!
I also realised the LA wouldn’t know the truth if they fell over it, and lied through their teeth to us. I had to empower myself by studying education law, language disorders, dyslexia, dyspraxia, so I knew what the law said she was entitled to; and I understood her difficulties and what the assessments really meant.
On top of all those NHS and LA appointments, we paid for private assessments to find out the truth about her complex needs, instead of the whitewashed picture, you get from the NHS and LA, because if they identify problems, they have to address them - its cheaper for them to cover it all up and rely on parents’ ignorance!
DD1 was in specialist provision from reception up to age 22. I listened to hundreds of parents, mainly women who also had children with complex SEN. I found they mainly fell into two camps:
- SAHMs who took their children to all the appointments and assessments. They fought the LA to get their children the education, they were legally entitled to - including appeals to the courts, which could mean collating a thousand pages of evidence
- Women, who worked full time; but who did not put the time and energy in fighting all the way, to get their children what they needed
I was a full time qualified professional, before I had DC in a profession where a minimum of 70 hours a week was the norm. It is ludicrous to suggest that all the appointments I had to take DD1 to, the therapy and the paperwork I had to do for her, could be fitted into a full time job in my profession, as if all it would take was control of my diary!
It doesn’t stop when they leave education either; it’s just a different circus with social services, the ICB and multiple NHS appointments!