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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

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Married to someone with Aspergers: support thread 4 (replacement one)

999 replies

changerofnameaspiethread · 05/03/2019 11:50

This thread is for partners seeking to understand the dynamics of their relationship with someone with ASD. It is a support thread, and a safe space to have a bit of a rant. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner. Otherwise the thread can be deleted, like Support Thread 4 The Original.

Previous threads:
1st thread: www.mumsnet.com/Talk/relationships/3281058-Is-anyone-married-to-someone-with-Aspergers
2nd thread: www.mumsnet.com/Talk/relationships/3325419-married-to-someone-with-asperger-s-support-group-here
3rd thread: www.mumsnet.com/Talk/relationships/a3463341-Married-to-someone-with-Aspergers-Support-group-here-Thread-3

OP posts:
Longlongsummer · 15/10/2019 00:45

@Beyondwits that sounds so tough. I’m stuck too, and can relate to some. I cannot move, and DP also dressed very smart to go out and to the office but here in the house he wears the same cardigan he’s had for the last 10 years.

You sound in quite a dark place. Some people here have got counselling and re connected with friends and family, then made a plan. It doesn’t sound good, the place you are at.

I thought I could stand living here for two more years but not sure sometimes. I get blocked by DP for doing stuff. The latest is he’s going to limit even further the money I’m allowed access too, which might mean traveling to friends is curtailed. I’ve given up on hobbies. My main trouble is I have to look after our son practically full time which gives me no time for independence.

Is there anyone you can connect with to help? A family person? Friend? I actually went to women’s aid who were incredibly helpful. I’m not I don’t think in danger however I am, like you, pretty trapped. There are ways out but it pays to do it carefully with proper support.

SeaEagleFeather · 15/10/2019 15:47

beyond ... how do you go on living? I don't know. the point came that I'd lost myself and a fair bit of what you said resonated

mine makes agreements with me, and breaks them all the time. It causes real trouble sometimes and when I challenge him he just shrugs it off and says he doesn't remember the conversation

Yes. It's a constant mindfuck.

I have felt as if I am losing my mind. Sometimes I feel such anger toward my H and then I cry because - and I don't know how else to say this - because those feelings are not mine. Not really. I feel like I've become someone else entirely and it frightens me.

Also, yes.

I was trapped for years, partly financially and partly because I believed it was better for the children. My own background didnt have much stability and I wanted so much for the kids to have that. Think it's why I was drawn to him. He seemed calm and stable and kind. He is all of those, but what wasn't clear was the mind-fuck games when challenged on anything at all, and the lack of competence - a poster up above said something about DIY in the house being done really badly, and I know he's had trouble at work too. 0, and I mean 0, emotional responsibility in the relationship.

In the end I managed to get out of the relationship. 3 months down the line now and I've still only got the shadow of a sense of who I am. Still so angry about some things too.

Is there no way at ALL that you can store money away to leave? Other than that the only way I coped was by leaving the house a lot and by avoiding him.

Longlongsummer · 15/10/2019 16:47

@seaeagle good that you got out. I’m hoping to be where you are in a couple of years. To have left. I wonder why so many of us are pretty trapped? I’ve never been trapped before, I always had my own independence, when I split from first Ex it was hard but nothing like this, where there feel like actual walls around me. Walls that I wondered into without the slightest idea they would trap me.

Yes also to the breaking agreements. DP has made several very serious agreements with me, all broken and not only that, he seems surprised that I even remember or take them seriously. We agreed to marry, to put me on the mortgage, to have kids, to be faithful, and then to go to counselling, then mediation. All of these totally ditched by him one by one. Except the kids which he later said was all me.

In fact when he first told me he didn’t love me and wanted out, it was like he was talking about taking the dog for a walk. He was shocked I was upset and berated me for not ‘realizing that feelings change’.

I’ve never been so shocked and unable to fathom another person. Each time I can’t believe he could do it. I think I still feel that he is kind, thoughtful and caring. He certainly feels he is. And yet his actions are totally the opposite.

SeaEagleFeather · 15/10/2019 19:00

I think I still feel that he is kind, thoughtful and caring. He certainly feels he is. And yet his actions are totally the opposite.

yes this too is familiar. My god yes. He thinks he's logical, sensible and reasonable. I laugh at that now. Even his best friend said he's being extremely passive aggressive (and more heh)

Moffa · 15/10/2019 22:25

@beyondwitsend. I don’t think real, consistent change is possible so you have to decide what is the best solution for you.

Personally I was at my lowest at the start of this year, I felt dead. I got some amazing counselling (psychotherapy) through the NHS with someone who specialised in ASD.

I’ve been incredibly lucky to have had amazing support from family & friends. I will be poorer going forward but so much happier.

As I think I have said before the most important things for partners of people with or with undiagnosed ASD are: some financial independence, maintaining good friendships, hobbies & a good amount of self care (which can be whatever you want it to be from a big soaky bubble bath, a trip to the hairdresser, a yoga session etc).

I feel free of the strict routine cycle I had to live in, I hadn’t realised how oppressive that was to me until now.

My H is still convinced I will go back. He has even said if I divorce him then we can always remarry! Grin

beyondwitsend · 15/10/2019 23:39

@Longlongsummer Thank you for your reply. It helped so much to hear from someone who understands the strange dressing habits because that drives me mad. I’m so sorry your DP is even contemplating cutting your money access further. I hope he doesn’t. I’m due to see my GP for review in early January so think I will ask her about access to counselling. I already told her I think my H has undiagnosed Aspergers and she was very sympathetic. I hadn’t considered Women’s Aid…can you outline a bit the way(s) that helped you?

I don’t have any other family other than the relative I care for which is now pretty much full time, like you with your son, which means that I’ve lost touch with the friends I did have. Sent Christmas cards the last two years but haven’t had anything back so maybe they moved on. Never did have many friends as I’m quite a quiet and introverted person and prefer reading to going out. Like you, I’m not in any physical danger, but I am trapped. It’s awful, isn’t it?

My heart jolted when you said to @SeaEagle that ‘there feel like actual walls around me. Walls that I wondered into without the slightest idea they would trap me.’ Oh my god, that’s exactly how I feel Flowers

@SeaEagleFeather Thank you for your response, also. My background wasn’t stable, either. I think that’s one of the reasons I didn’t leave before now, when I still had the chance – didn’t want to feel as if I had failed. My now H certainly presented as ‘calm and stable and kind’ when we met and in fact for the whole year after that until we got married and then I found myself living with a stranger. He isn’t remotely competent regarding DIY and has zero emotional responsibility in our relationship. I found myself telling him repeatedly in total exasperation that I couldn’t tell him how to think, because all too often he didn’t think, just did what he wanted to do when he wanted to do it in the way he wanted to do it. Still does.

I’m really glad for you that you were able to leave, though sad to hear that as yet you’ve only got ‘the shadow of a sense of who’ you are. I understand why you still feel angry about some things. I truly hope your sense of well-being, and awareness of self will recover and bring you peace and happiness now and in your future.

No, there’s no way I can store money leave. The only money I have is weekly housekeeping and that just about covers what I need it to cover. I avoid him as much as I can in the house. I can never say ‘home’ about this house because it has never been that to me.

@Moffa Hello and thank you for responding. I know you’re right, that real, consistent change isn’t possible so I have to decide what’s the best solution for me. For right now, that means staying, until my relative passes at least. I know that sounds awful and I don’t mean it that way, I’m really not counting the days or anything vile like that, it's just my situation.

So glad to hear that you received counselling that really helped and supported you. Bravo the NHS for that, and those members of your family and friends who played their part, too.

I fail on all three of your recommendations; no financial independence, no friendships good or otherwise, and very little to no hobbies or good amount of self-care. BUT! I am going to work on all three areas and see where it gets me. Can’t be any worse than where I am right now. I nodded when you referred to living in a ‘strict routine cycle’ and how oppressive that was to you. It is oppressive.

My H does not believe me when I tell him I no longer have feelings of love for him and am desperate to end the marriage. He just doesn’t accept it. Which is another way he invalidates me.

Thank you ladies, all of you, for your kindness Flowers

Longlongsummer · 16/10/2019 00:39

@seafeather well you give me hope anyway, having made a change. I do find the confusion the worst - DP can be kind - he will get me something nice from the shops for example - and always offer me lifts as we are isolated and I don’t have a car - but then I had to cancel my art class as he refused to give me a lift as he felt treated like a taxi - and told me I’m the reason he never goes on holiday - as I spend too much money (he is a very high earner and i spend money on pasta) - he just cannot see that these actions are mean! And not kind at all!

@beyondwitsend I contacted women’s aid and I think they helped by:

  • making me realize that I was feeling trapped, and that it needed to change and was not okay
  • admitting to someone else that I wasn’t in an okay situation. Even though I don’t feel unsafe and I don’t dislike DP. But still, my situation is not good, it felt quite hard to hear the word abusive but whether or not we use that word, I am feeling very trapped.
  • it helped me to pinpoint where I was trapped, I am trapped financially and emotionally.
  • DP has said to me that I can’t leave with the kids. That I can only leave with his full consent and only when he is happy with the arrangement. It helped to know that this is not true. I can leave whenever I like with the kids.
  • obviously I have nowhere to go, and women’s are very used to that. To be able to separate we need a plan of where to go and what to do. They said they would help with making a plan. And see what options I might have.
I was worried that I wasn’t being physically abused, and really I live in a very nice house. I thought that wasn’t really what women’s aid are for. However I think, if you are feeling trapped, they are good to talk to. The person I spoke to was a bit gruff at first, I felt a bit put off, but as soon as I mentioned financially where I was at, and feeling like I wasn’t sure how to leave, she totally softened and I could hear in her voice that she was familiar to what I was experiencing. It’s good to contact them in a way that is not obvious to your partner though, don’t let them find you have contacted them, just in case your situation is a bit unsafe. Best to be cautious.
SeaEagleFeather · 16/10/2019 16:52

I do find the confusion the worst - DP can be kind - he will get me something nice from the shops for example - and always offer me lifts as we are isolated and I don’t have a car - but then I had to cancel my art class as he refused to give me a lift as he felt treated like a taxi - and told me I’m the reason he never goes on holiday - as I spend too much money (he is a very high earner and i spend money on pasta) - he just cannot see that these actions are mean! And not kind at all!

with my ex, i saw this as a problem in having a sense of proportion and good judgement. I do expect some degree of that in a partner. It whittled away the respect I had for him when he consistently made bizarre judgements. One example early on was that he though ti was safer to leave a baby unstrapped in on a pushbike (we live in the NL) than to strap him in because in a crash the baby would be thrown clear.

Well yes, the baby would be thrown free. But a baby flying through the air at 30mph or more is not a situation that's going to end happily.

He didn't want to take me to hospital when I was developing septicemia when pregnant with a temperature of 40.3, because he hates medical stuff. Baby had only a 5% chance of survival.

Stuff like that seriously erodes any faith in his judgement.

Longlongsummer · 16/10/2019 17:14

@seaeagle that is exactly it, the judgement has no solid ground. I’m so relieved not to be the only one. And so scary that you were so ill while pregnant. That is very very scary! And not putting on the seatbelt! Christ. I can so identify - my DP will be so convinced he is right when he is being totally illogical.

This is one of the biggest problems for me. DP has such bad judgement. He will be okay with terrible moral failings in others too, he talks as if he is outside of the realities of the consequences. Like they don’t exist. I have had a couple of scares with our child where he has let him be bullied by a family member’s child, right in front of him, because that family member is very dominant and he follows her lead parenting while there, not sure why but he does. I found it so bizarre I laid out exactly what happened, and why it was bad, and DP did not get it even though there was no refuting it. Because someone else hadn’t reacted, he didn’t either, he had no template of good behaviour of his own.

SeaEagleFeather · 16/10/2019 18:34

because that family member is very dominant and he follows her lead parenting while there, not sure why but he does

If it's anything like my ex, it's becuase he doesn't know what to do himself so he's taking the lead from the nearest vocal person around.

I found it so bizarre I laid out exactly what happened, and why it was bad, and DP did not get it even though there was no refuting it. Because someone else hadn’t reacted, he didn’t either, he had no template of good behaviour of his own.

exactly!!

My ex loves his kids deeply and is really involved, but he doesn't know how to react, and the template from his own upbringing is unfortunate.

At the same time he was incredibly resistant to being guided by either myself or outside help (my own background is not exactly shiningly good and I asked for help how to be a good parent)

Longlongsummer · 16/10/2019 19:09

@seaeagle it’s just all a bit tragic. DP wants to be a good man, and is in many ways. In several ways he’s better than me. However he is super resistant to me taking a lead. Absolutely hates it. I’ve many faults but I’m very grounded and stable as a parent. I know what’s risky. He chooses the weirdest people to lead him emotionally and parentally! I’d laugh but actually it’s so tragic, it has torn us apart.

SeaEagleFeather · 16/10/2019 19:57

I feel the word 'tragedy' is the right one too.

HyperHippo · 28/10/2019 12:12

Hi all
I am posting about my brother rather than husband (but my dad was similar, eventually split from my mum - so this thread rings true in so many ways).

My brother has been extremely difficult. He is aspergers but not diagnosed/he is unaware of his traits.

Most recently he claims we have no meaningful relationship because he can't talk about things that matter to him (strong political views/the climate are his latest obsession) without 'criticism'. For months I have been avoiding anything vaguely controversial as his idea of discussion is assuming he is right and everyone else is wrong, so if they disagree they are being very rude to him and hurtful.

I have distanced myself from him recently as I've found it very hard. He now claims we have no relationship. I suggested we just need to chat more and know more about what each other are up to as a light way back in. Apparently this is not a good relationship and if I can't discuss what he wants to and accept his views then I can't have a relationship with him.

This was followed by texts using extremely formal, cutting language. He hasn't acknowledged my surgery last month and despite being very rude I've had no apology or care.

I know it is all part of aspergers but I'm feeling at a loss - whatever I do seems wrong. How much do you put up with?

stardustandroses · 29/10/2019 06:36

However much you can stand! Seriously it’s why people get divorced. They just can’t stand it any more and have to walk away. Try as you may, nothing seems to change so you have to do what is best for you. Some guy on Oprah Winfrey used to say “you teach people how to treat you” i.e. if you put up with it, they’ll keep on with the same behaviour. Given that he won’t adjust his attitudes, you have to decide if walking away altogether would be better for you. And not to feel guilty about it. If he won’t accept any responsibility, it’s not really a relationship but an obligation you feel because he’s your brother. what is so hurtful is that if you stop getting in touch he could write you off with not a second thought. So it’s whether that would be worse for you than what you have at the moment. Only you can decide. It’s very hard though

MisguidedAngel · 14/11/2019 16:41

I apologise for not having read the full thread. I have read previous ones more attentively but been reluctant to post because my situation seemed so much less problematic than most.

I have thought for some time that my partner is on the autistic spectrum. His grandson and one nephew have been diagnosed as such. He has many of the signs: obsessive about his hobby, which is more than a hobby it has actually been our lifestyle. That has benefitted me - but he can't seem to talk about anything else and doesn't realise when he is boring someone.

He doesn't "get" things - when I make a simple request he thinks he knows better than I do what I really want (which he sees as a virtue). This comes across to me as selfish. For example, for many years now I have requested a "day off" on my birthday. I don't work particularly hard, but I just would like for one day of the year not to have to think of his needs which include doing things for me. He wants to do special things on my birthday (which are really things he wants to do). Every. single.year we go through it all and he still doesn't get it, so now I just give in and ask for things I know he wants to do for me eg out for lunch, he makes a nice dinner etc.

Sounds mean I know, but that's just one example. He is amazingly indirect. When we first met he used to say "is there something wrong with the kettle?" to mean "can I have a cup of tea". He thinks it's rude to be direct, but his ways lead to so many misunderstandings.

I have only recently discovered that he has partial face blindness and that this is also a sign of ASD. I thought he was just so self-absorbed he never really looked properly at people. He doesn't like eye contact even with me. He can't do the usual give and take in a conversation. And so on.

This has recently affected me one hundred times worse. Earlier in the year my daughter committed suicide. He so wanted to support me, and in any practical manner he did so. But he couldn't cope with my feelings at all and then felt bad about it. I did understand this and was able to turn to other people, but I still can't mention it without him saying "you upset me".

Then to compound everything, three weeks ago he had a TIA. He is recovering well, but of course his whole routine is disrupted, he is having to rely on other people (especially me) and he hates it. I have taken on supporting him and extra tasks very willingly but he is driving me mad by micromanaging me as if I was incapable, which he knows, and acknowledges, that I am not. It's as if he is so desperate to be back in control of his own life that he is being ridiculously controlling of me. And he doesn't get it when I try to explain how it makes me feel.

This has turned out to be more like a dump than a request for help, I suppose a handhold would be nice and maybe some insight.

MisguidedAngel · 14/11/2019 16:54

When people say (which many have) that this is a warning and he will have to slow down and be less of a workaholic he says he can't, it's the way he's always been .... He seems to understand it intellectually but is so inflexible that he really believes it would be impossible. Obviously this is rather distressing for me, which I have tried to explain, but he can't understand other people's feelings. When any of our friends get into a muddle, in a relationship or in a task, he always says "if it was me ...." and I always say "but if it was you, you wouldn't be in that position, this is X" but he doesn't get it.

123bananas · 18/11/2019 22:56

Can I join? DH has his assessment appointment next month and is struggling emotionally so his retreat into obsessive interests has increased.

Financially I am independent, but I am responsible for all the mental holding of organisation for everything. Now he has stopped being as functional as a stay at home parent because of the time spent on obsessive interests, so I am picking up the slack there too. I am in the final months of a degree, working full time alongside, we have three kids the youngest has asd, the eldest also awaiting diagnosis. I do not have the energy to parent another adult and tell him what to/challenge his behaviour all the time to get him to function in the way he needs to for things to run smoothly. Over the past year his level of disability in coping with real life has become much more evident, in a way that it wasn't when we first got together years ago. There have been so many additional stresses on me created by his way of coping with life stresses (or not coping). I found out he lied about his education (impact on employability) and a big debt that threatened our home security came about because he refused to address the matter earlier. It is fucking exhausting, I have no time for me, friends or hobbies. Feeling like a ship taking on water at the moment with only a small bucket to bail out.

Bluebellforest1 · 24/11/2019 16:36

Hi @123bananas and welcome to the thread nobody really wants to be on.

The thread is a bit quiet at the moment, but will pick up again soon, I’m sure.

I’m much, much older than you, 64 now, 2nd marriage of 13 years. Grown up sons in their 30’s from 1st marriage. Wish I’d never met him tbh.

The mental load is so hard to bear, h asks me to make a decision on every little issue. This morning, he asked me whether he should feed the dog before or after we walk her - as indeed he asks me every fucking Sunday morning. Usually, I say “before”, this morning I said “up to you”, which resulted in a meltdown because he couldn’t make a decision.

Hope your husband’s assessment will bring some clarity for you.

Flowers
HyperHippo · 16/12/2019 10:44

Just wondering if there is anyone else out there who needs hand holding as we approach Christmas? Every year I find this time of year unbearable. I go in saying I will not let it get to me but every year it does. The lack of routine, expectations of lots of loving moments, atmosphere of reflecting on the year past and number of people about all makes the aspie traits come out even stronger.

JoshLymanIsHotterThanSam · 19/12/2019 08:59

Hi, I think you guys might be my people!

DH is undiagnosed, although he’ll be the first to tell you he has ASD, we have two diagnosed children and one extremely high functioning undiagnosed child.

I have read so many (although admittedly not all of the posts on all the threads) and related to them-the Illness one really resonated-DH literally shuts down if I get ill....it’s like I don’t exist. Thank god it doesn’t happen often.

I think generally our marriage is good, I have learnt to live with a lot-I am responsible for most things and I can deal with that, but occasionally we have a massive spat in which he is right and I am most definitely wrong and it’s fucking hard going.

He also holds a grudge like no one I’ve ever known-so will, in his efforts to prove his point, bring up any minor indiscretions from the last 12 years. It makes me want to smack him in the face (not that I do-but you get the point).

I need to teach my ASD boys how to be good husbands before it’s too late.

123bananas · 19/12/2019 12:28

Welcome Josh

And hand holding Hyper.

I am dreading Christmas, ds (age 5 with ASD) is already melting down because he believes he will be at school next week and gets upset whenever we talk about Christmas.

DH got his diagnosis of ASD this week and we are both struggling in our different ways with the reality of what that means (even though I knew he was on the spectrum already).

Can we just hibernate here until it is over?

HyperHippo · 19/12/2019 14:18

Sounds good 123bananas!

For me, it is my grown up DBro. My father had the same but ended up leaving our family and I haven't been able to have a relationship with him.

Dbro is just popping by before christmas which will be easier but it is a first time he won't be here all of christmas, which is tough for DM despite when he is here he is a massive pain.

He has been quite hurtful and difficult this past year as he is getting married been terrible at communicating about it, not talking for months for no reason other than being busy with his latest obsession and generally is the type who uses the 'we have nothing in common' line.

I used to read the Heartless Aspergers website a lot for comfort but it has disappeared. Has anyone got a good alternative?

sometimeswishiwasntme · 29/12/2019 18:50

I've never been diagnosed as having aspergers, but it would certainly explain a lot. Never did know how to do life. When I was a kid/adolescent, aspergers wasn't really a thing. Parents, teachers, etc didn't seem to know about it.

This is a hard thing to post, but putting words down on -paper- screen is what I need to do right now. Words on a screen do not really explain how either of us is feeling right now.

I've been married for almost 16 years. She now wants to move out. This is upsetting, but it's hardly a bombshell. We've been bumping along for a few years now, following the path of least resistance when neither of us has been happy. She's had enough, and needs space. She also will need support, because she's financially dependent on me. She's going to leave a huge hole in my life, but things can't go on the way they have been. So I'm not going to try to dissuade her. Not this time.

It's scary for both of us. I can't keep the tears at bay.

Just needed to say this. Perhaps it's for the best, but right now, my head's up my ass.

SeaEagleFeather · 29/12/2019 21:26

sometimes, I'm sorry it's got to this point. I was at this point a year ago after, as you put it, a bumpy few years.

My Ex-H is actually a really nice person, but struggles so massively with the emotional side to life and handling certain situations that it was impossible for it to work. No one who knows him ever doubts his love for me and for his children; and he has acted fairly in most ways during the divorce and in time I'm fairly sure that we can be friends again.

The one thing I wish very much is that he'd sought help long ago. He refused. If he had, it's possible we would never have separated. Im not sure.

My one bit of advice is to make the separation as easy as possible while remaining true to yourself; and to reflect on what you can learn from it (which is advice I'd give to her too, btw)

sometimeswishiwasntme · 30/12/2019 03:13

@SeaEagleFeather Thank you. For now that's all it's going to be, a separation. Not a divorce or even a legal separation. Details to be worked out, although I suspect she's been busying herself with the nuts and bolts of it for some time. She's a list maker, an organiser. I suspect she's on the spectrum somewhere herself, but our disorders do not mesh harmoniously.

We still love each other. If we didn't, this would be easy. I'd prefer it if it wasn't happening, but some of my angst is for entirely selfish reasons. I don't like change. I fear returning to the lonely and solitary life I had before her.

I suppose I need to try to see it as an opportunity.

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