what stories my five dcs will tell in later years
They can hang out with my lad. I have ADHD. Hyperfocus is my kryptonite, and his greatest irritation.
You don't sound like my mum would, were she on the thread. She would post here with a decades long rehearsed, defensive set piece. She would minimise the impact on anybody, but her. She would tell you how innately "resiliant" children are, especially when they are the main architects of the physical representation of the problem.
If none of the usual suspects worked on the thread, she'd have an almighty great meltdown and any (former) child of a hoarder posting on here would come away feeling like they were practically Hitler's cousin, just caught stomping on kittens. (due to decades long rehearsal, she knows where the buttons are and how hard to push)
Everybody else might come away with the impression that she'd lost her grasp on the concept that we were separate beings, whose inner dialogue and emotional range did not mostly reflect her own at any given time. And they'd have a point.
But she isn't here. And there is a reason for that. Part of what allowed it to get as bad as it did was her reluctance to stand in the freezing cold waters that go hand in hand with "gazing at my reflection as a parent and facing the glaring imperfections I can see".
I think that's what many of us with "A Thing that makes life harder" have to hang on to. Will we fuck up ? Yes. Most people do to some degree, at least some of the time.
But do we see our children as real live people (albeit shorter) and do we see them as they actually are in the physical, mental and emotional environment we are creating for them, rather than how it would be more comfortable to perceive them ? Do we look at where we did screw up? What the ramifications were for people who are not us ? Did we learn something from that ? Did we cling on to it, despite the discomfort, to at least aim for longer stretches of time between slippage into the clutches of the worst aspects of the condition ?
The ability to give an honest yes to that goes an awfully long way. Because the invisibility of the impact on you as the child, (despite standing right in front of your parent, bleeding from the latest needle buried halfway in your big toe), is perhaps one of the greater causes of pain, and the greatest impediment to a parent hanging on to at least some degree of control over their symptoms. Without some degree of control, there is no help in the world that will ever offer a realistic solution.
It's really hard work having kids AND A Thing. WHich is probably why I still love her.
I get it to some degree, even though we are outwardly quite different in many ways. Mostly cos I think we share the same Thing. It's very inheritable. I don't know if she has it worse than me, but maybe she does and I am simply, by luck of the "degree of condition" lottery, better placed not to make my child my invisible, collateral damage by accident.
Or maybe I had the advantage of being a Child with A Thing, with a parent with A Thing. So I've walked this road from one side already, have a map and know the trapdoors I could set for Squirto if I don't stand guard over my urges and rubbish impulse control. Ever (knackeringly) vigilant about keeping a real, deep slip into the condition at bay.
Your five kids and my one could conceivably come together one day and have a joint, entirely justifiable, complain about My Mother and Her Thing and Its Impact On Me
But I think the best indication that it wouldn't sound identical to this thread, is that we are here, not hiding from the full picture which includes the way the condition reflects on our children's lives. But instead willingly standing knee deep in it, letting it prickle sharply, to better aid keeping focus on beating back the seductive, or demanding nature of some symptoms.
As cold and spikey and as unpleasant as it is, it gives us a huge advantage over welded on blinkers.
Would I prefer to be showered with diamonds ? Yup. But as gifts go, cold and spikey self reflection is not to be sneezed at. Not when you consider the alternative lived by those who did not get it, or turned it down.