Morning, tis me, Mouse
Oh where to start.................... LONG, MOANING, ME ME ME POST ALERT
I've skim-read back and seen that we have new faces so welcome to the new passengers
x
Tuesday was a difficult day but the strangest thing was that my lovely friend didn't cry until she saw that I was there. We arrived late after hitting traffic and road works that hadn't been announced on the travel news.
Anyway, DH stayed outside with Nemo running around and I sat quietly at the back until the end of the service. As the family left, I managed to get behind a small group and then 'appear'.
She threw her arms around me and we just stood there for all to see, blocking the doorway sobbing in each others arms.
Her DH said that was the first time that she'd actually let anything out and I feel honoured that I was there for her when it happened. We then went on to the wake and talked about her darling mother and all of the wonderful moments we'd shared in her life, the stories of her own exploits, the strange things that the family had found since she'd passed away - 15 packs of 3 pair brand new M&S knickers, 3 bottles of unwrapped perfume that all three DD's now have.... just things that made us all chuckle.
We had to drive home as the people we were going to stay with had a poorly baby and DH so we decided it wouldn't be fair to land on them at 9pm.
So I managed a 6.5 hour round journey but only by the skin of my teeth. I'm still suffering with the pain and have been drinking all week. Not much, a vodka and slimline tonic and a glass of wine, not more than that most nights, I've been passing out as soon as Nemo has been going to sleep so that I could too.
It's good to read that so many Babes are still posting and updating even if it's a post about drinking, what's the point in lying about it? It;s only a lie to you after all.
Nemo and pre-school are going well, I've just changed his hours to suit him and me better so he has a full day Tuesday, Thursday and a half day Friday, equalling his 15 entitled hours.
We also have a date for his next cleft palate pre-op assessment. September 27th. I knew it was coming and of course I want him to be 'fixed mechanically' as one of his HCP once said! I'm just going to gently simmer and work myself up gradually to a tangled ball of fear, panic, worry, etc between now and then because of all of the past fuck-ups with his post op care.
I need to stay with him and I need a proper bed to sleep on because of my own disability which I'll explain when we go to Manchester.
I've been thinking about my drinking rather a lot of late but I think it's because I'm drinking more, more than the odd one or two. It has to stop but my meds have also been changed again too so I'm hoping that once I come off Gabapentin and Amitriptyline, I'll feel better. I will then be on 180mg of Zomorph, (slow release morphine), 4-6mg of diazepam and 800mg of ibuprofen twice daily, with Oramorph in between to cushion the blow as the meds wear off.
Nemo going into pre-school more means more strain on me until his statement comes through. They (ThePowersThatBe) have indicated that ater the October half term, it should be in place so that we can start the separation process and his key worker can begin her training.
So much paperwork, ifs, buts and maybes. We did however get the money from the Family Fund for Nemo's iPad so that we can download educational SALT games, listening games, hand eye coordination games, that sort of thing. He can't use a mouse on a PC as his fine motor skills are why out so it's all about him being rewarded for completing a task which is why we thought of that. He touches the screen and gets it right, big
y face!
DD is MUCH better, she's eating and looks so much better in herself, brighter eyes, more boingy, more settled. I was wondering what had changed. Her father isn't seeing her currently and following the drama of a few weeks back, I am supporting her 100%.
Anyway, that's me. I've not read this back so sorry for typos.
Saf - you sound in great form given the time of year. I know that in the past you'd be wobbling big time by now and wanting to run a mile..... I guess you can now? 
I understand your worry of getting out of the disability system. I really hope that someone can help you there. I guess they'd look to assess you on paper rather than physically because of how you have been in past months during this time of year. You know where I am xx
Obrigada - BLOOMIN WELL DONE YOU!!!!! I AM SO VERY PLEASED TO SEE HOW WELL YOU'RE DOING
A HUGE well done on those who are managing to not drink at all and who have reached milestones of days, weeks, months etc.... KEEP GOING! 
Time to get ready for pre-school. DH is out all day....... with work and again, I'm needing the routine back as much as him. I need him at work, DD at school and my day to be MY DAY! 
Be back later, sorry for the epic post. I hope you're all still there?