Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

Another local here, my friends little boy would not be here if it were not for the TMU.
Also, my DGD was there for a short while. The staff are fantastic.
Love and light to you both.

Morning BadNails how are you and Pinky this morning? More love and thoughts winging their way down the M23 for you xx

No idea about the hospital, but wanted to wish you and your little girl all the luck in the world. Will be thinking of you.

Thinking of you both, all my love and thoughts going your way x

Sending you and Pinky all our love and lighting a candle for you.

Morning, hope pinky is doing better today.
Still sending positive thoughts over town

how is she today? I may well be at TMBU next week as currently doing some fundraising with friends in Brighton Half Marathon next month. Thinking of you both xx

Sending you and pinky some more love.

I hope you're all ok.

Thinking of you

Hi, I'm here, sorry for the delay, I'm not entirely sure if I'm coming or going.

Firstly, thanks for the feedback about the unit. I agree, they're marvelous here, really on the ball with everything, haven't had to pull on the boxing gloves which is hugely reassuring.

Wee girl is the same really. They know what the infection is and it's a bad one. I hate statistics but the mortality rates are 25-40%. I've probably said it before but figures are rather meaningless when you're staring at your child, even if the odds are in your favour.

We were ready to bring her home :(

Sorry, I'm somewhere between self-pity and using every ounce to will her to carry on fighting. It's hard to write.

It's good that they know what the infection is, as they can treat it in the best way possible.

Turn those figures the other way round and it reads 60-75%, so look at that side..

Big hugs and positive thoughts to you xx

Oh darling, thinking of you and Pinkynails!!! Will light a candle for her tonight! She WILL be fine xx

Have been thinking of you all day. It's good that she's in a good place, they know what it is and they can use the right drugs to target it. It's good that she has had these weeks to get strong. It's good that she is so loved and thought about and prayed for. She has a lot going for her.

Keep going Pinky.

Still thinking of you.

I completely agree with what you say about statistics and your child.

Don't write if you can't. We're still here.

Thinking of you all x

Oh badnails
She really is under the best care and you will bring her home soon.
{{hugs}}

Oh so sorry to hear this, it is so so horrible not being able to predict or plan for what is going to happen. I'm glad the staff are being supportive and hope the treatment and the next hours ahead are not too hard on you all.

Oh Bad :( Sending my love and thoughts out to you and family. She's been such a fighter and the odds are in your favor, just gotta keep thinking positively of how far she has come.

Keep fighting Pinky and hang in there Bad

Hi Badnails, I have only just caught up on this thread and whilst I don't do praying either I am sending out positive energies and healing for pinky.
She's in the best possible place, and I am glad that the staff are being supportive, and keeping you informed.
Sorry that you're having such a totally shitty time and I hope that you'll be bringing her home very soon.
Hugs and lots of hand-holding. x

Oh badnails I'm sorry you're feeling in such a bad place.

Still thinking of you and pinky and I'm sure you will be posting good news soon. I know it's a long slog, but it will be worth it when you take her home.