Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

she gets her strength from you.

Also lighting a candle for little Pinky

She sounds like a fighter.
I'll be thinking of you both tonight and will check back in the morning. Remember, if there is anything you need, anything at all, let us know. I will be passing that way at least 4 times tomorrow
Hope you manage to get some rest tonight and sending positive thoughts to pinky x

thinking of you all.
my dd was in the trevor man and it was a brilliant place. will send a link to the MNetter who really knows the place.

Fingers crossed the night brings better news. It's great that they think her gut is intact. If it is infection, I hope the antibios kick in. I remember being told, they can get very sick very quickly with infections, but they can bounce back very quickly too. I hope that is the case for you.

Rant away about sandwiches and expressing. whatever helps!

Thinking of you, you both sound like fighters.

Hi, I was a senior staff nurse there for 10yrs. It's a really great unit, with well trained and conscientious staff.

Lots of cases of NEC can be treated without surgery. I'll keep my fingers crossed, but she honestly couldn't be in better hands.

Oh Bad, I was hoping for an update, I was there for your birth thread. I'm so sorry Pinky isn't well. I've just googled NEC, and the main part that stuck out for me is, "Most infants who develop NEC recover fully and do not have further feeding problems".
I don do prayers, but I'm sending you positive vibes and a virtual {{hug}}.

Thinking of you x

We were in TM a few years ago. They were marvellous - caring, concerned, calm supportive. Good luck and keep strong both of you.

Sending positive thoughts xx

DH and I brought our DD home from TMBU this time last year so have relatively recent experience. We found all the staff there to be fantastic - I'm sure they'll be doing their very best for your little one. I know it's scary, my thoughts are with you. x

badnails I just wanted to post to say I'm thinking of you and remembering you and pinky in my prayers.

I was on your thread back when your waters broke. You are doing so well and being so strong. I know it's hard, but honestly you're doing great.
Well done for the expressing. There is a point to it. Your milk is the best thing for her and you are being a fab mum by doing it for her.

I hope tonight/tomorrow morning brings better news for you.

I don't normally say this on Mn but I have prayed for your baby and you. i hope you are given the strength to bear this time and your baby comes home soon.

badnails Just wanted to say that I'm thinking of you and your little Pinky. I'm so sorry about the suspected NEC, it's great that they think her gut is intact though.

My little girl developed sepsis in the NICU and she made a full recovery. She was baptised in hospital too. It's just such a scary, tough time and my heart goes out to you and your daughter.

I remember being told the same thing as willbean that they can get ill quickly but that they can also make a fast recovery.

And expressing . . . oh groan. I found it so difficult to just. keep. going. after the first couple of months.

Hang on in there and sending you and Pinky all the very, very best.

I'm off to bed but still thinking of you all, and will be thinking of you when I wake up. Will check in tomorrow, hoping for better news.

Come on Pinky.

Thinking of your precious Pinky and sending love to you all .xxxx

Praying for a good outcome tomorrow. Hope you get some sleep.

Fingers crossed. Can't do much other than offer my prayers.

Pinky sounds like a little fighter. I'll light a candle for Pinky and your family xxx

Badnails, I followed your previous thread. Thoughts and prayers going your way. PinkyNails is a fighter.

Thinking of you both and hoping for the best x

thanks for pointing this out Sevenfold . Badnails - TMBU Is an incredible place. My two children would not be here without it, nor would my goddaughter. I do a lot of support work and fundraising for TMBU so know quite a lot, ask me whatever you want or pm if easier. 2 of the lead consultants are good friends of mine as is a very senior nurse. The staff are wonderful, very approachable and are happy explain things over and over again.

Let me know how today goes, i am sometimes up there but as it happens no plans for next couple weeks. Please let me know if there is anything you need, would be happy to pop up. love and parayers xxx

I lived locally, and heard excellent things about it.

sending you our prayers.