Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

Thinking of you and your family x

Oh BadNails I've only just seen this. Poor Pinky. I am sending all possible positive vibes. She is such a little fighter.

Sending more good vibes xx

Good morning everyone, it's been lovely to read your messages, thank you. It's really nice to see names I recognise from October too. What a journey.

I'm expressing (of course and slightly tmi!) so thought I'd take a moment to let you know how we are.

Gen's white cell count has increased, which is good news because it means her body is trying to fight the infection. The consultant is keeping us realistic, explaining that babies have been known to die within a couple of hours of contracting this infection. Gram something? My brain is deliberately not holding onto the name to stop me from consulting Dr Google. The fact that she is still here is very positive.

I made myself take a couple of pictures. Not that I want to remember this, but this is all part of her life so I can't forget it.

Talk of surgery is decreasing. I think they just need the antibiotics to work.

Thanks again. You're really helping x

I keep checking this thread - I have everything crossed for you both.

That's good! I'm so glad she is hanging in there! I know it seems so hard to keep going now, but from the point of view of a mother of teens, you will look back, sometime very soon, and wonder how your tiny preemie turned into a strapping preteen, with budding breasts and attitude!! and wish you were back with a baby!

She's fighting, and each hour is counting.
She really does sound strong.
I wish there was something we could do to take the stress away for you, BUT we are all here for you and are sending positive vibes yours and Gens way x

Hello have been checking this thread haven't posted as I didn't feel I had anything to say but I'm so glad she's fighting. I'm thinking oif you all, lots of love xxx

It's good that her body is fighting the infection. Continuing to think of you all.

So pleased to hear she is fighting the infection (and that you are resisting Google!). She is a Genevieve, I'm guessing from you calling her Gen. I have a Genevieve too :) - it's a beautiful, strong name which is clearly very apt for your beautiful strong battling girl.

Holding you all in my thoughts x

Hello, I am a Brighton mum and have heard amazing things about the Trevor Mann unit. So glad to hear your daughter is improving - sending positive thoughts from Hove to Brighton. Thank you for keeping us updated. S x

It's lovely to hear a more positive posting from you today. What great news re the white cell count. xx

I'm also keeping you and pinky in my thoughts, it's awful that she has yet another thing to fight, but she has already proved herself to be a fighter so I'm hoping she'll come through this too.

Good luck and stay strong team badnails. xx

I am saying a prayer for you, not read any of your previous threads but saw this in active topics ... lots of positive thoughts to you x

Only just seen this and glad things are looking up, you may not believe it now but you will be pleased in the long run you have the pics - I thought people were mad suggesting it when Ds was in hdu but 2 years down the line I am pleased I have pictures and it helped a lot.

postives vibes from here tooxxxxx

thinking of you

so pleased to hear that, is you need anything, just shout x

Hello, so glad to hear Pinky is hanging in there. Still sending the prayers and good vibes.

I lurked on your other threads, I can't believe Pinky is 12weeks actual age!

Are you alone? Or have some lovely nurses/staff to support you. I'll be thinking of you and your family too.

I've been lurking and hoping things are improving.Your baby girl is just gorgeous and clearly a fighter.Thinking of you.

So glad to hear that she's fighting and that surgery is looking less likely. Hang in there, little Pinky!

Good to hear. I look forward to hearing more good stuff.

Sending positive thoughts to you all.

So glad to hear that she is fighting the infection, I hope you are managing to get some rest so that you can stay strong for her too x

sending all positive vibes/thoughts to you and Pinky
x