Hello, yes, still here but have reverted back to lurker mode the last few months. I do still pop onto the Prem thread from time to time so was pleasantly surprised to see this one at the top :)
I am more than happy to update! I actually think it's important for those in NICU to see/read what happens next - I know I needed to believe there could be a life outside of the incubator, there were so many days where I thought we would just stay there forever like in stasis.
Gen is just over nine months actual age now, roughly six months corrected. She is still on the wee side at a little over 13lbs but she is (proud mother emoticon) doing bloody amazing 
Milestones are being met, food is loved and she is just a very happy, chilled out baby. Of course we have appointments with physio and audiology coming up and I long for the day when she is just 'ours' but it's a small price to pay considering the alternatives.
I still have fleeting moments of darkness, it's very similar to the worry that all parents have about their children but this is different to how I feel about my eldest in that it's tinged with real fear, the knowledge that comes with seeing your child in hospital. I cannot go near the memory box. I can only just about look at the photos.
It's nearly ten months since my obs consultant offered me a termination. When I look at Gen (and I am now, she's right next to me) I can't believe we lived through that. I can't believe how lucky I am :)
Thank you for the well wishing x