Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

Have read this thread tonight, from start to finish, and was holding my breath in parts.

You have such a little fighter here, badnails. I'm urging her on.

Well done Gen! That is great news BadNails, you must be so relieved. Enjoy those cuddles

Oh that is absolutley fantastic news!!!!!
I think I'll have to get over for a celebratory cuppa before they actually kick you out :)

Go on Gen...keep fighting xx

Bloody fantastic! What an amazing little baby girl you have there. The rest of Mumsnet is doing a little dance with you BadNails. We should have a fireworks emoticon for celebrations .

Hi hunny - how are you both today?

(not sure who donated to my fundraiser via justgiving for Trevor Mann Unit (anon mumsnetter), but i just wanted to say a big thank you! Every penny makes a difference)

Wooo-hoooo go little girl!

I'm with bibbity we need a fireworks emoticon!

Hope your day continues to improve on HDU.

That's wonderfu. I'm really happy for you and your family x

Hooray!! Go Gen!!!!

This is the best news I've heard all day! Enjoy all those cuddles.

Fantastic

Might need to pop the fireworks away :(

Gen's crp is 88, platelets are low enough to require a transfusion and they're having to remove her long line as the consultant believes there might be an infection brewing. Her temperature has been fluctuating too. There's no room to manoeuvre on her antibiotics as she's already on the so called big guns, so just got to hope it is the long line and removing it sorts out the issue.

It's never simple, is it? I'm worn out by the rollercoaster nature of this journey. Even DP, who I really see as a true rock seems tired today.

MABS I'm really pleased someone donated to the TMBU. Hope they were inspired by Gen's story

Alas northernmonkey, we may have plenty of time for that cuppa.

I'm ashamed to admit that I've been thinking about a cigarette today :( Instead I blew out my dairy free diet by eating one of those wonderful Portuguese tarts.

Sorry it's not a better update.

Oh badnails I don't know what to say. It seems like two steps forward and one step back for you.
Genevieve has already shown herself to be a little fighter and I'm sure she'll continue to do you proud.

I know it's been such a long and stressful journey for you all, but I remember back when your waters first went and you thought you'd lose her even before she was viable, you and she have both come such a long way since then.

((hugs))

Oh badnails how upsetting. I hope they are right about the long line. DS got several infections from his in the early days. Hopefully a transfusion will give her a boost. DS couldn't maintain his platelet count for weeks and weeks and had many.

Still thinking of you all and hoping for a better night. You must be bloody exhausted, the rollercoaster is so draining. I know it doesn't feel like it, but you will all be home together soon.

KD I often think back to that weekend in the side room and how close to the wind we've sailed. I just can't help the voice in my head screaming for it all to be over. How are you though? Spotted you over in Prem, hope you're ok.

Thank you for the hug frigg. I'm not the touchy feely type but I've even been accepting hugs from doctors!!

Thanks Willbean. It gives me strength to know other babies can get through all this. It breaks my heart to think of all the pain she's enduring.

Keep positive, Gen is in good hands and has done so well, so far. (( Hugs )) for you and the babe.

Keep fighting, hugs to both of you because you both deserve it x

KEEP GOING...Am sure it is the longline.Theses can often cause issues.Gen is a true fighter.If you would like a cig blimmin have one!
pOSITIVE THOUGHTS HEADING YOUR WAY

Theses I type like Gollum speaks!

Oh badnails
Gen is doing so well, a so are you and your dh!!
Don't worry about breaking your dairy free diet, your only human after all.
More positive thoughts coming your way xx

Definitely inspired by Gen AND YOU, you are being so strong. Ds had the longline in and out a couple of times so try to stray calm sweetie. And excuse the swearing, but fuck the diet, you eat what you want when you can. Take care and I may well gatecrash your coffee with Northernmonkey if allowed xx

Oh badnails

Sending positive vibes to you. Do what ever you need to do to get through this my lovely dairy and cigs included.

Hope to hear better news soon x

Oh badnails sending positive vibes to you and Gen. Do what you need to to get through this lovely xx

Oh :(
Stay strong - you are being a fantastic mum. I wish I could wave a magic wand over your Gen

Lots of positive thoughts from me and Ds for you Badnails and lots of love to Gen. Stay strong, tomorrow is another day. XX