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Premature birth

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Original poster

Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

384 replies

BadNails · 18/01/2012 17:30

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

OP posts:
Original poster
BadNails · 27/01/2012 20:16

No good Saggy, I saw ya!

OP posts:
Carrotcakeisace · 27/01/2012 20:23

Business first- sleep, multivitamin and OJ for you Badnails and have a fab weekend with Dd1

Woohoo for superstar Gen :)

Original poster
BadNails · 27/01/2012 20:25

I have ticked those boxes carrotcake Grin Think I'll squeeze a hot bath in too.

OP posts:
ZhenThereWereTwo · 27/01/2012 21:18

Glad she is on the mend again, what a fighter :)

Rest well at home BadNails, you must be rundown, time to rejuvenate ready for breastfeeding Gen.

MadgeEstic · 27/01/2012 21:22

Aah, lovely news, so pleased. Nothing wrong with being hopeful and positive - gives you more energy than being down. Hope you get better soon and are soon snuggling with Gen at home.

bibbitybobbityhat · 27/01/2012 21:22

So very happy for you all.

KD0706 · 27/01/2012 21:39

I'm so pleased DD2 is doing better. Well done to both of you. Big well done to you for the fact you're still expressing for her. It will all be worth it.

Enjoy your weekend with DD1.

Smile
scaryhairydroopytits · 27/01/2012 22:32

Read the whole thread with my heart in my mouth. So pleased things are looking more positive. My newborn was also seriously ill (different condition) and it's a terrible terrible place to be. Thinking of you.

BIWI · 27/01/2012 22:38

Yay! Grin

FarloRigel · 27/01/2012 22:53

Coming to this thread rather late, but I just wanted to say I know the fear of your child being very seriously ill well and I'm sending you loads and loads of good wishes. I'll be cheering little Gen on every step of the way. My DD's a tough little warrior too - dear help us when they're older and stroppy but at least we'll have the benefit of a huge dose of perspective! Hope you get her home where she belongs really soon!

Bossybritches22 · 27/01/2012 23:40

Yay what a positive w/e for you,despite the cold, a rest and news of Pinky's improvement!

Time for you to eat loads of good milk producing foods and rest so you can be giving Gen "Gold Top" to boost her energy levels! Grin

ButterNoParsnips · 28/01/2012 00:18

My 2nd DC was in TMU for a week, he had a random genetic disorder so was never going to survive. The staff there were brilliant, really supportive and lovely. She's in very good hands. Big hugs. xx

youarekidding · 28/01/2012 00:58

So pleased there are positive updates. Grin

BewitchedBotheredandBewildered · 28/01/2012 11:06

So good to hear news of consistent improvement.

Have a lovely weekend.

MABS · 29/01/2012 10:38

hope you are feeling bit better after the cold today :)

ranteetheranter · 29/01/2012 15:52

Hope you had a good weekend with dd1 and both you and Gen are improving. How is dh holding up?

fridakahlo · 29/01/2012 16:04

Hope things continue to go well x

BewitchedBotheredandBewildered · 30/01/2012 17:14

Everything crossed that all is well.

Carrotcakeisace · 31/01/2012 15:40

How are things? Have been keeping you in my thoughts x

SaggyOldClothCatPuss · 31/01/2012 15:42

How is Gen today? I hope things are still going well. X

ranteetheranter · 31/01/2012 20:42

Hey badnails just want you to know you are all still in our thoughts. I hope all is going well xxx

Original poster
BadNails · 02/02/2012 09:12

Sorry for the huge delay in responding, we lost our room at the weekend and we're commuting each day. We're so very tired, but at least I've got my fab shower back!

I've only got a mo, so in a nutshell... Gen's crp is normal, and her antibiotics have finished. She started milk on Monday (1ml every two hours) which is slowly increasing each day. When I say slowly, she's now on 3mls Grin.

I am pretty much crapping myself as I now feel I'm waiting for something to go wrong. She reaches her due date on Saturday. The nurses are referring to her as an old lady! They tried her off the optiflow but her sats kept hovering in the 80s so she's got nasal cannula. Only on 0.01 Hmm think maybe she just likes having something in her nose.

We're here for one more week minimum. I just wish someone could guarantee she'll be okay. Guess everyone wants that for their children. We're slightly reassured by a few nurses commenting that she's done really well for a 25 weeker. I do try to hold on to that, as I know that in spite of everything, we've been blessed.

Thank you for checking in everyone. Sorry this is a rushed message but it's non stop at the minute. And I haven't forgotten those I have promised a cuppa to! Grin

OP posts:
xxDebstarxx · 02/02/2012 09:20

Lovely to hear she's improving :)

Bossybritches22 · 02/02/2012 09:27

Oh what lovely news!

Keep looking forward, she's done SO well and you & DH have been unbelievably brave. Grin

Bloodymary · 02/02/2012 09:58

Great news, you are both doing so well Smile