Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

I just wanted to say you are so strong and brave. The only words of comfort I can give is to say, as someone who has been on the receiving end of a transfusion, it is unbelievable how much of a difference a bit of someone else's blood can do. It may well give her the little bit of extra strength to fight she needs. Thinking of you xx

Positive thoughts and love to you all. Hope your cold is better and you have a reasonable night. I am in awe of your resilience and strength.
xxx

Her CRP WAS 270. Compared to that 88 is not so bad!
Keep positive Badnails. She has fought so far, and she is still fighting.
You are so brave and strong, I really admire you and how you've kept going through all of this. We are all here with you, just stay strong for a little longer.

Just had sudden urge to check before I go to bed.
Night night.
x

hOPE YOU BOTH HAD A GOOD NIGHT.

Well our little lady had a good night. Still waiting on blood results to check infection markers. Sorry for my misery yesterday, I had stepped back into my pit and was over reacting. Thank you Saggy, it was your post that made me realise that.

Bewitched my cold is worse! I haven't gone to the nursery today because my nose is streaming. DP has been texting me updates. I have had that much lemsip I'm turning yellow!

Thanks again everyone. If you could see me now in my old pjs, wrapped in a blanket watching This Morning , you wouldn't attribute any strength to my character!

And MABS, you're more than welcome to join me for that cuppa. It'll be my treat and my pleasure.

Glad to hear that she had a good night. And hey, you're allowed to be miserable - you're doing amazingly, as is your DP and your little lady.

I too have had a blood transfusion and it made a world of difference.

Sending you some virtual hugs, and hand-holding. :)

Glad she's had a good night :)
If anyone has an excuse to watch This Morning in old PJ's, it's you! Hope you're feeling better soon.
Also sending more good vibes for Pinky :)

Thanks Red, the transfusion itself didn't worry me, it was that it was an indication of her infection. And I guess I'm sad that she still needs all the cannulas. The results are always amazing, I'm definitely with you on that, so in that respect I'm always happy she gets them.

I think Gen has had either 14 or 15 transfusions now and half of them have been in the last week! I'm going to become a blood donor again after this and DP certainly will as he's the one with the rarer blood type.

Cheers Fave, ah I'm not sure, it's really lightweight rubbish isn't it?! Might have to enter the competition though

No need to apologise - you've coped brilliantly under so much stress and worry. Looking forward to more positive updates. Look after yourself. xx

So glad Gen had a good night and that you're feeling more positive. Fingers crossed for good results.

you are doing so well, will defo get over for a cuppa. (had bit of bang in car today so will leave it few days..)

Every day she has is an extra day to get bigger and stronger. She will still be developing even though she's ill.
Glad you had a better day!

Hope all is OK with your, DP and little Gen.

Hope your feeling better soon too.

Still here, still thinking of you. All offers still stand and I have a slow day tomorrow. Cake? Soup? Pizza? Bubble bath?
Hope you all sleep well. xxx

Thanks Bewitched, I've actually come home for the weekend. The cold has gotten the better of me and the temptation to go into the nursery would've been too much. I won't risk Gen (or other babies for that matter!) getting a cold. It's shite.

MABS - hope you and the car are ok??

I'll be back Sunday/Monday, got DD1 this weekend and a ceramic pig to finish painting

Forgot to say - Gen's crp is 76, so climbing down slowly. She's getting her voice back too! DP said you can now hear her down in the family area. That's my girl!

That's good to hear. She's a real little fighter!

good girl Gen! I got a cold when ds was in tmbu and was stressed that i had to go home for 2 days, BUT in long run it was best thing to happen to me, i came back refreshed and ready to go!! (i just bit tight, car is fine, just a skid to avoid major rtc :( )

badnails sorry we tempted fate with the fireworks but it sounds like Gen is a real fighter like her Mum she is fighting this infection with all she's got!

I hope you get some rest this w/e, the cold probably took a good hold because of the stress and lack of sleep, you must both be sooooo tired.

Lots of vitamins and OJ for you & get back to bed where you can.

I know you're not a huggy person but for you & DH {{{Badnails}}}
& a gentle handstroke for Pinky.

Oh good, that will revitalise you and hopefully you'll shift the cold.
Happy painting.
Keep shouting Gen!

Don't apologise bossy, I was getting excited too. And yes ma'am, I have been resting today!

In fact I'm getting excited again because... Gen's crp is now 27, the consultant is aiming to get her off o2 tomorrow, and milk feeds will be resumed on Monday. And not the neocate crap, oh no, breastmilk And I've been told I may as well start consuming milk products as the dietician is not convinced she has an allergy. Hoorah!

Maybe I'll sleep a bit better tonight.

Glad you're unscathed MABS. Hot bath for you.

Have a good weekend everyone.