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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Devastating anomaly scan - please help

149 replies

Cantdothisagain · 01/06/2009 18:38

This might get too long - I hope someone will read and reply!

I am 20 weeks pregnant and the anomaly scan showed very low amniotic fluid and probably no kidneys, although the view was very poor so we're being sent to a fetal medicine centre on Wednesday morning for another look as our hospital couldn't be sure 100%. Anyway I know the prognosis for either almost no amniotic fluid or no kidneys is very bleak. Has anyone been through this?

We have one DC already of 2, and lost a baby last year to a chromosomal disorder at 13 weeks. I am already facing up to the horror of termination because if my hospital is right and the baby has no kidneys, this condition is always fatal.

I have told nobody about this pregnancy except our parents because the last pregnancy was so traumatic and I've been so anxious over this one, although I relaxed stupidly after the 12 week mark. Luckily I've managed to conceal it despite reaching 20 weeks - it may be the lack of fluid that is making me not show, I now realize, though I was the same with my 2 year old so the small bump didnt concern me.

Anyway I am obviously facing time off work, and my work is the sort of place where people gossip. My boss is utterly indiscreet and tells everyone everything. I can't bear people knowing and saying consoling things; I know from last time I just need to grieve at home. Would my GP write me a sick note that wouldn't say what was going on, does anyone know, or would she not be able to do that?

I can't believe this is happening. The consultant insists there's no link between kidney failure and the chromosomal problem we had last time. But as I said I'm seeing specialists on Wednesday. I am part numb and part just want to lie down and howl. But I'm trying to keep it together for my 2 year old who needs me.

Please be gentle with me....

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daftbat · 06/06/2009 12:30

Thinking of you and praying for you. The first days are difficult, but they do get better. If you are like me, you will try so hard to be strong for all around you but you do need to allow yourself time to scream, shout, cry or whatever else acts as a release for you.

Did you give your little girl a name?

I have a grave and I like to go when I want to talk in person - but sometimes I just talk aloud. I guess its horses for courses and whatever suits you best.

I hope you gain some measure of comfort from seeing the love you are surrounded by here on MN.

With love and prayers

Cantdothisagain · 06/06/2009 21:07

Thank you for all your replies.

We called her Stella - meaning star - because that seemed appropriate. She will be cremated but we will remember her in the hospital's garden of remembrance for lost babies. I am very sad tonight - grief is emerging from the clouds of dazedness - but I am okay. It is amazing what we can live through.

Thank you all again for your kindness.

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Jacksmama · 06/06/2009 21:15

Oh my dear. I am just crying for you. What an amazingly strong mummy your DD has.
(((((((((((((((HUG))))))))))))))))
Thinking of you.

poppy34 · 06/06/2009 21:24

Can't do thisagain- have only just come across this post but am so sorry for your loss - Stella is a beautiful name. I lost our little boy two years ago after almost identical diagnosis(oligohydromnia due to lack of kidneys).I can relate to what you are saying ESP not wanting those you work with gossiping. Am sure it has been suggested but arc were great and I found cruse very helpful in getting over immediate aftermath.

If you want to talk more If you would like please cat me. My thoughts are with you and your family.

HumphreyCobbler · 06/06/2009 21:28

Stella is a beautiful name.
So sorry for your loss.

TotalChaos · 06/06/2009 21:33

very sorry you have been through such loss. thinking of you and your family.

hellymelly · 06/06/2009 21:34

I am so so sorry for you and baby Stella.I have cried reading the postings ,I am lost for words really but I wanted to say how terribly sad I am for you and your family.I am thinking of you and your tiny star.

PacificDogwood · 06/06/2009 21:38

I have just come across this.

I am so very sorry for your loss and would like to add my condolences to everybody else's.
You and your family are in my prayers and thoughts.
So very sad for you .

decafgirl · 06/06/2009 21:56

I'm so, so sorry for you

Stella is a beautiful name, I'm so pleased you had a chance to spend some time with her.

My thoughts and prayers are with you and your family.

Lots of love xxxxxxxxxxxx

stillenacht · 06/06/2009 21:59

so sorry cdta xxxx

Horton · 06/06/2009 22:16

I have just seen this too and am so sorry for your horrible loss. I will think of you, too, and your beautiful Stella (because all babies are beautiful even if a little squashed). You're very brave, as are all the other women who have gone through this. Hope you have lots of people to take care of you at this sad time.

Cantdothisagain · 07/06/2009 10:26

Thank you all again. I am not doing so well today - have the photos of my little girl back with me and the loss feels very physical, as though part of me has been amputated.

Poppy I am so sorry you went through the same thing - I don't know what CAT is or how to do it. I will look it up.

Thank you for all these so kind words. I really feel the support warming me inside.

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HumphreyCobbler · 07/06/2009 10:45

I found looking at the photos of my little boy unbearable to begin with.

Now one sits by my bed at all times and I take great comfort in them.

I remember that feeling of something missing . It is all so hard, and so new for you at the moment. Just try to look after yourself.

Cantdothisagain · 07/06/2009 11:51

Thanks HC, that helps me to know. I feel better now, since DD is back and normality reigns again...

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andiem · 07/06/2009 12:12

cantdo stella is such a beautiful name thinking of you today

TimeForMe · 07/06/2009 12:49

Just to send you lots of love and wish you strength to get through this difficult time. God bless little Stella xxx

ladyhelen2 · 07/06/2009 13:08

Have only just found your thread, can'tdothisagain, and just wanted to send you my prayers. I am so sorry you lost your little angel Stella. What a beautiful name for a little star. xx

daftbat · 07/06/2009 13:10

Hi, I hope having DD around is giving you some comfort and you take what other comfort from whatever other sources you can (chocolate, icecream, hot baths, us here at MN etc).

There's no point in denying that nothing takes away the pain, but I found it does get easier to live with and I am sure that you will, too: it sort of steps down from a raw raging pain, to a sense that something is missing. There is love, life and laughter in the future, it just takes a while to get there.

Love, thoughts and prayers remain with you.

hester · 07/06/2009 13:57

My thoughts are with you, your dh, your dd and of course little Stella. I am so very sorry.

nappyaddict · 07/06/2009 14:23

I don't really know what to say but so sorry you are going through this.

You say only your parents know about the pregnancy. Do you or DP have any siblings or best friends that would be good support to have at the moment. The more support you have the better

poppy34 · 07/06/2009 15:35

Cat is the way you can contact people off line- should be a little button to do this on my post. I would echo what hc said re photos- didn't look for a long time but now in precious things book along with dd photos etc

linspins · 07/06/2009 18:06

Can'tdo, sorry to hi-jack but wanted to say a quick hello
to HumphryCobbler and Musicmaiden. You were both on my thread when I was going through similar and it's nice to 'see' you here. hello! (waves)

linspins · 07/06/2009 18:10

P.s Can'tdo, hope things settle quickly regarding milk, it's a very poignant reminder isn't it. I know what you mean about wanting to save it and share..I thought that too last time, it seems too precious to waste, but on the other hand, any, ahem, manipulation will result in milk produced for longer and may make things more difficult for you.
Sleep well tonight.
Have you got a quiet week planned? xxx Lins

Cantdothisagain · 07/06/2009 19:53

Hi all

Just to say thank you still for replying.

Poppy, I am not set up to CAT - I will sort this out. Thank you; I appreciate it. xx

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LeninGrad · 07/06/2009 19:56

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Message withdrawn at poster's request.