Bad news at 20 week scan, please help.

[No1worrier]

I hope someone can tell me their experiences from something similar. I have just been told at my 20 week scan my little girl has something seriously wrong with her heart. I have been referred to the fetal medication unit to see a specialist cardiologist tomorrow. She is moving so much, heartbeat has been strong since was 6 and a half weeks pregnant, everything else like her brain, kidneys etc look fine but something is so badly wrong with her heart. I'm so confused 😥. The consultant at the hospital didn't say what he thought it looked like but he said it was serious and I will probably be given options, one being it is fixable, another is ending the pregnancy which we refuse to do! I am 21 weeks pregnant now so more than half way and I can't even think about ending it. All I know is she doesn't have the normal 4 chambers etc like a heart should have. Sorry I don't have much more information than this, we don't get to take notes away home with us at our hospital. Any input would be appreciated 💗

Sorry forgot to mention my down syndrome screening bloods came back as 1 in 99,000

I'm so, so sorry for your loss. Sending you lots of love and big hugs.

Thinking of you OP. So sorry for your loss .

Hope someone can help, it's been 4 days since my daughter was born and I'm having incredibly sore cramps today, been okay up until now. Possibly from not going to the toilet for a number 2? It feels like I'm having contractions again which is not ideal. Just feeling like total rubbish today x

Hello Op, call the hospital department for advice, they will know best. Possibly uterus contracting down to the usual size but it would be best to check with a medical professional. Sending hugs x

Hi OP just seen your update and hoping you’re ok?
I am finding it hard to remember but I think I had something like this about a week after my (healthy) daughter was born. It’s a bit of a blur so I can’t be much help I’m afraid, but the idea of it feeling like repeat contractions sounds familiar. I do remember a doctor coming out to see me at home, but not much else. As Mia says above, get checked out ASAP and hopefully they can reassure you

Hi @no1worrier. Did you get any help? I'm sorry I don't know what is normal when you've had the baby so early, but afterpains where your uterus contracts certainly are normal after full term delivery can be very painful (mine were worse than labour at some points).

In the early days it really helps to have a steady painkiller pattern, it can be tempting to think you don't need it but it definitely eases some of these pains.

However, I believe really terrible pain can be a sign of retained placenta.

Either way, give your GP/hospital a call. Noone will mind. After a full term delivery the midwife would normally visit you at home and check things like stitches and that your uterus was contracting properly etc.

I am so so sorry you have gone through this and are still suffering physical pain. You are stronger than you will ever know and you and your daughter have been in my thoughts!

Morning,

I have been awake nearly all night with the contraction type cramping. I phoned the labour ward late last night and she did say it is quite normal after birth. To take ibuprofen and to try going for a bath. I done both which helped for a small amount of time but then it came back. I'm not bleeding any heavier so she doesn't think it's retained placenta, I did have a d&c after the birth and they scanned me to make sure everything was away but I suppose they could of still missed something. I've to keep an eye on it today and if it doesn't get any better to go up and they will have a look.

I do have a midwife coming out this week but not sure when. Maybe she could come earlier to save me going up.

I kept crying during the night, saying to my partner I wouldn't mind this as much if I had my little baby lying next to me in a crib but I don't 💔. I'm going through all this for absolutely nothing. It really isn't fair.

Thank you for the advice once again girls, I will see how today goes x

Here for a handhold.

If they did a D&C then chances are they did get it all. Keep an eye on your temperature or feeling generally unwell.

You are so right, it is not fair! Words can not express how devastated I am for mums and dads that experience pain like you are now! I really hope your pain starts to ease up soon.

Hi OP,

I have just read your thread and I am so very sorry that you lost your little girl

Look after yourself x

Nothing more to add than a handhold and a hug here, OP. I don't have DC (through choice), but I lost my mum last week. Not quite the same, but it does mean I really feel for your loss. Hopefully, if there is a heaven or some place all our souls go, my mum will look after your little one for you. She was a good mum, so I can recommend her [flowers}.

I'm so sorry for your loss . I hope your cramping is better this evening. It's awful having to go through it without a happy outcome (mine were much earlier so can't imagine what you are going through).

@Justlovedogs That is very sweet, I'm so sorry for the loss of your mum .

Thank you @HappyWinter

I hope that the cramping has started to settle down and that you are doing as well as can be expected.

@No1worrier I just wanted to check in and see how you are? Did the cramping go down or did you end up going back to the hospital? Sending strength 💐