Bad news at 20 week scan, please help.

[No1worrier]

I hope someone can tell me their experiences from something similar. I have just been told at my 20 week scan my little girl has something seriously wrong with her heart. I have been referred to the fetal medication unit to see a specialist cardiologist tomorrow. She is moving so much, heartbeat has been strong since was 6 and a half weeks pregnant, everything else like her brain, kidneys etc look fine but something is so badly wrong with her heart. I'm so confused 😥. The consultant at the hospital didn't say what he thought it looked like but he said it was serious and I will probably be given options, one being it is fixable, another is ending the pregnancy which we refuse to do! I am 21 weeks pregnant now so more than half way and I can't even think about ending it. All I know is she doesn't have the normal 4 chambers etc like a heart should have. Sorry I don't have much more information than this, we don't get to take notes away home with us at our hospital. Any input would be appreciated 💗

Sorry forgot to mention my down syndrome screening bloods came back as 1 in 99,000

thinking of you today op. I hope you get to meet your baby if that's what you want. Whereas others might have let their pregnancy continue, personally I think you are doing the right thing.

I have a friend who went through similar around 15 years ago. It has been very difficult for her and her husband but she did manage to move on with her life. She went on to have two perfectly healthy children but the whole family talks about their eldest often - this has helped her an awful lot I know.

xx

Thinking of you today OP, as are many others

God bless to you and angel.

Been thinking of you today 💖

for you and your baby girl @No1worrier

Thinking of you xx

Sending you a big hug.

@No1worrier been thinking of you constantly for 2 days now. Sending you love and strength 💛

I keep checking back to see how *OP is. My heart is breaking for her.

Hello everyone, thank you all for the support ❤. My little girl was born on Thursday night after nearly 10 hours of labour. The contractions started pretty much straight away for me so was on gas and air along with morphine injections pretty early, the morphine injections unfortunately didn't do much for me, I was in alot of pain for a long time, I cried alot and just wanted it to be over. Near the end we did consider an epidural but then I felt her coming, couple of pushes and she arrived 💗. I then had to go to theatre for an operation, I had a spinal. After I got back to the room and felt okay we held her and she stayed with us for a while in the cold cot next to my bed, she looked peaceful. I got home yesterday afternoon and felt completely empty and heartbroken. I managed to sleep because I didn't have any sleep for a long time. This morning I woke up and knew I wanted to see my little girl again. So my partner called the hospital and they got everything ready for us to go back up. Strangely she looked better today, or maybe it's just because I had a clearer head and not drugged up or exhausted. I'm glad I went again today and said a proper goodbye.

I just want to say the midwives and doctors, all the medical team that worked on me were absolutely amazing. They made me feel like I was the only patient in the full hospital. Went above and beyond for me. I can't thank them enough. They all said they hope to see me again in better times and I really hope that is true one day x

RIP little one, she'll always be remembered ❤️

Take very good care of you and DP

I've been reading your thread, I'm so sorry you've had to go through all of this. I can't begin to imagine how you feel. Have you got a name for your DD? I understand if it's something you want to keep private.

For you and your girl. 🌻

My heart breaks for you.

I am so sorry for your loss. Sending you all love and light. Thinking of your little daughter 💕

Oh I'm so sorry. I'm heartbroken for you.

💗💗💗💗💗💗💗💗💐💐💐💐💐💐💐💐a little angel in heaven and forever in your heart.

My heart breaks for you OP

Thanks for being brave about sharing your story. I know someone who went thru something similar. One day at a time. x

Oh @No1worrier I am so so sorry for your loss. I’m glad your medical support was good, you have been so strong. I’ve been thinking of you and your DP these last few days.

I hope you can be kind to yourself in the coming days and weeks, keep taking it 5 minutes, one hour at a time, and don’t expect too much of yourself too fast. It’s ok to hide away a while a d grieve if you want to, to talk (or not) about it all as much or little as you need.

thank you for sharing, one day it will help someone also with heartbreaking news.

Nice the hear about the nhs at their best too

Sending love x

💖💐 both you and your husband take care of each other and be gentle on yourself. Take each day as it comes. Xx