Bad news at 20 week scan, please help.

[No1worrier]

I hope someone can tell me their experiences from something similar. I have just been told at my 20 week scan my little girl has something seriously wrong with her heart. I have been referred to the fetal medication unit to see a specialist cardiologist tomorrow. She is moving so much, heartbeat has been strong since was 6 and a half weeks pregnant, everything else like her brain, kidneys etc look fine but something is so badly wrong with her heart. I'm so confused 😥. The consultant at the hospital didn't say what he thought it looked like but he said it was serious and I will probably be given options, one being it is fixable, another is ending the pregnancy which we refuse to do! I am 21 weeks pregnant now so more than half way and I can't even think about ending it. All I know is she doesn't have the normal 4 chambers etc like a heart should have. Sorry I don't have much more information than this, we don't get to take notes away home with us at our hospital. Any input would be appreciated 💗

Sorry forgot to mention my down syndrome screening bloods came back as 1 in 99,000

Thank you for sharing your story op. I am sure that other ladies will come across it in the future and get some level of comfort knowing what the process is and that they aren't the only one to go through it. You are incredibly brave and I am very sorry that you have had to go through this.

Did you name your daughter? Rip little one ❤️

Thinking of you x

Oh OP, sending so much love. X

So sorry for your loss and this heartbreaking experience.

I just wanted to say thank you for sharing; as a pps have said there will others who go through heartbreak and your candid, thoughtful and brave posts could really help. They must have been difficult to write but they are beautifully written.

Sending love to you and your partner xx

So sorry for the loss of your beautiful girl. Thinking of you and yours and sending love and hugs xxx

I am so very sorry for the loss of your little girl 💐

Heartbreaking op! It sounds like you did so well in an utterly heartbreaking situation.
I'm so glad you got to say a final good bye, she will be with you always.
Look after yourselves. You are in my thoughts.

I've been thinking of you all week. You sound amazing OP and like you did an incredible job in such sad times. Please take care of each other. I hope there are brighter days ahead for you

Sending love. You and your little girl are in my thoughts

So so sorry for your loss op. Sending you all lots of love xxxx

Sending you so much love ❤️

Sending you so much love to yourself and partner ❤️❤️❤️❤️❤️❤️❤️

your bravery and dignity shine through. I wish you all the best for the future and I know your lost child will never be forgotten.

So sorry for your loss

Yes we have a name. The only girl name we have both loved since finding out I was pregnant. She really does suit it. I will be keeping that part private if you all don't mind 💗.

My bleeding is very minimal which I am glad of. I expected it to be alot heavier so at least that is something.

I really do hope this thread will help someone in a similar situation in the future x

Op you have been so strong

I am so sorry this happened to you

I'm so very sorry for your loss, sending love and strength your way x

Oh OP I've been following your thread all week and have been thinking about you so much. I too had my son 18 months ago in very similar circumstances, its all so surreal, raw and heart breaking.

Please keep in your mind your daughter only ever knew your love, you did what you need to for love.

Be kind to yourself, make sure you and your husband talk and know its OK to feel all of the emotions.

I'll be thinking of you for a long time to come xxx

This thread made me shed a few tears for you op. What a horrendous thing to go through, but wow how dignified, strong, caring you are! There are very few silver linings to this situation, but the one thing you can take from it is how well and close together you came as a couple, how through you most difficult of times that anyone could ever go through you were so incredibly strong and made the best decisions you could. There is a long process of healing in front of you now, maybe counselling might help ease the pain. But you will get to that place where you have a happy healthy family, you will never forget but you will be able to move forward.

You may not be religious, but this reminds me of the passage in the bible about footsteps in the sand. Where the person claims 'I thought you were always going to be beside me, there are only one set of footprints 👣 in the sand.' God replied 'that's when I carried you'. Your angel, your star in the sky will always be there x

So so sorry for your loss x

I am so, so sorry. Truly heartbreaking

So very sorry for your loss op. You sound incredibly strong and brave. X

I'm so sorry for your loss xx

Sending you healing wishes from one bereaved mother to another.