Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.
On my image of a pink castle: that is an image I use because when I was little, my family had a Snakes and Ladders board with an image on the last square of a pink castle in the clouds. As Hyperemesis is so like a grotesque version of Snakes and Ladders - eat a meal, go up a ladder, first thing in the morning bile run, down a snake - I have used the image of that pink castle on the last square of that Snakes and Ladders board as a metaphor for the happy end of Hyperemesis.

Welcome to the new thread everyone. Collapse on one of the virtual piles of cushions.

Place marking.

All I can say is PROCHLORPERAZINE. It's amazing for me through HG last time and will do it again!!

Worst night sleep ever. Uncomfortable hospital bed, arm hooked up to a drip nd all the noises you'd expect on a hospital. Oh and a room that's about a million degrees.

I asked 20 minutes ago about what's happening with meds this morning. At home I take 2x4mg ondansetron and lansoprazole on waking, then eat 30 mins later. I'm starving hungry which is making the sickness worse. And have had horrendous heartburn since a particularly unpleasant chucking up session last night where I brought up loads of bile.

Sorry you’ve had such a bad night but I’m pleased you at least got fluids xx

She finally came and gave me 4mg of ondansetron. I made her go and get me another 4mg. She won't give me lansoprazole cos it's not been prescribed in the hospital. So hubbys coming in with that for me. My ketones haven't moved from 2+ all night, despite 2 bags of fluid. They've said I can't go til ketones at zero. However, I've found an article on spewing mummy about why ketones shouldn't be a reason to delay discharge that I'm prepared to use if necessary. Frankly, I feel like this whole hospital stay has been shambolic. I totally understand why my GP sent me in, however what he wanted to happen didn't happen for 3 hours (drip). I actually think I could have managed things as well, if not better at home.

Hello, You probably don’t remember me (Lucinda may) but I was on here in spring scared to death as dh and I started ttc 7 years after dd was born and I had a terrible pg with hg. I was signed off from the start previously. It’s taken me this long to pluck up the courage to do it again. Only got bfp this morning so very early but had suspicions as was nearly sick last week and feeling nauseous already. Started straight away in the cyclizine this morning which gp gave me before I was pg so I could start it early.

I’m so scared it’ll be as bad as last time! I’m happy of course (although not getting ahead of myself as it’s so early yet) but I’m more scared than excited. It was very isolating and lonely last time for me which was made worse by the fact I have quite bad emetophobia (phobia for vomiting) so I’m knowingly potentially putting myself into my worst nightmare by doing this.

Eallison that’s sounds terrible. I hope you get all the drugs and a discharge soon.

reastie similar to me; my son was 3 in September. I also had cyclizine to take as soon as I found out I was pregnant. I'm about 7 qeeksweeks, started ondansetron last week. Get to your GP as soon as you're feeling sick and the cyclizine isn't controlling it. Be proactive.

We're going to make formal complaint about my treatment last night. I've spoken to 2 nurses thud morning who were unimpressed with how I was treated.

I just wanted to pop on and say thank you to everyone for all the support on this thread and especially to lucinda for keeping it running and being so helpful. My little girl is now 2 weeks old and I finally feel like I am starting to recover from the c section and pregnancy. My nausea and sickness was totally gone within about 3 days of giving birth which was a massive relief.
Reastie I think I remember you. Congratulations on your positive. I do hope it’s not as severe as last time for you.

Hotchoc I remember you too! Congratulations! I remember the first few weeks of dd being the best ever as I was just so grateful not to be pg any more! I’m glad you got through it and you’re recovering from the csection.

Eallison last time I only ever had cyclizine. It made me feel like I could cope. Sort of. Most of the time. But I was still bedbound for months as if I moved I felt it would make me sick. Now I know more and have seen my gp to make her aware I won’t be strong enough to fight but I know I should be able to have more and different drugs if needed. I hope they give them to me as and when as gp is brilliant and so supportive but she said she rings the local hospital registrar and goes with their recommendation for drug prescription after cyclizine and I can’t get a firm confirmation that they will give me ondansetron which I hear is really really good stuff. I don’t think I could have every ttc if I didn’t know there would be other drugs to try that could improve things.

Dig your heels in and insist they prescribe different drugs. Between cyclizine and ondansetron there is metochlopromide and proplpherazine (or something like that). If cyclizine doesn't work they have to give you different meds.

I tried the p one (or one beginning with p, trade name avomine) before cyclizine last time and it did nothing apart from make me sleep. Next step is to introduce something along side cyclizine (didn’t know this last time and also was scared of swapping to something different with was worse for me). My issue is mainly with nausea (or was last time) but the only reason I wasn’t vomiting all day and night was because I did nothing but lie in bed and stop myself from be sick. If I had got up or tried to do anything I would have been sick straight away, so because I wasn’t vomiting all the time I just felt lucky to be given anything, but I spoke to preg sickness support and they said despite this it was ruining my quality of life so I should be able to try escalating down the drug route.

Feeling very very dizzy and sleepy but I think that’s the cyclizine as I remember it had that effect before.

I’m dreading half term as I’ve got so many things booked for dd and I and I know I won’t manage to do them. We were due to go to legoland later this week and just the stress of thinking about going and feeling sick is making me worried. I hope she doesn’t mind not going. I don’t really want to tell her the reason but then she’s going to wonder why I can’t do anything with her. I can’t cope with feeling sick so whereas most of you are strong and try to work and do stuff regardless im weak.

Earl are you out of hospital yet?

You're not weak. Still in hospital. Waiting to a&e a doctor. Still hooked up to a drip. We've decided that we'll tell our son (3) that mummy us poorly and the doctors don't know why (Not strictly lie, as no one knows why some of us get thiathis and some don't) but that I'll be ok and they're doing what they need to do. We won't tell him about baby yet. I don't want him to make any connection with me being ill and his baby brother or sister.

Staggered over and gratefully collapsing onto pile of cushions. Today is not a good day

We did the same easlison. Only told her at 13 weeks the truth and things have been a bit easier since then - I’m so far as I’m only vomiting once per day so it’s just the nausea which is easier. Steroids have been a total game changer for me.

When did you start on steroids. They're telling me it's too early for steroids.

The doctor suggested ginger tea and other natural remedies. And told me I need to eat. No shit Sherlock. I told her on no uncertain terms to go boil her head.

Anyone ever had a combo of ondansetron, cyclizine and metochlopromide.? That was the doctors only half useful suggestion.

eallison I was on all 3 of those drugs for a month or so. Eventually they put me on steroids and took me off the metoclopramide. I was still ill even taking all 3 drugs but it was more manageable. I was 12 weeks before I was allowed on the steroids.

Thank you reastie. It is a massive relief to not be pregnant anymore.

Nurse at hospital has set me up to be able to go in daily for IM ondansetron. Got an apt with GP at 5 to discuss whether I can have the daily IM at the surgery (much easier for me to get to daily). Had a great conversation with the lady at PSS. So am armed with knowing what I am entitled to and what is recommended.

I’m was in cyclizine, ondansetron and prochlorperizine as reacted to metoclopramide. Didn’t get them untiln12 weeks as needed 3 admissions to qualify and it was such a fight and I’d been in for a week not able to even lift my head off the pillow. Have you called pregnancy sickness support? They helped me advocate for myself.

Reastie Welcome back. I do remember you. Congratulations on your pregnancy. Did you say you've already spoken to Pregnancy Sickness Support? As you are a veteran, you don't need my 'have you got kesostix' and 'do you find full sugar flat coke, the juice of tinned fruit and ice lollies any good spiel'. You are not weak. It is very hard to battle through this, let alone with a child. As others say, if the cyclizine isn't helping enough, don't hesistate to go back to the GP to ask for other meds. A good anti acid can make a big difference.
eallison Good idea to complain. When did they finally put you on a drip? That treatment plan sounds good.
beanhunter I am glad things have looked up since the steroids.
Hotchocolate What a lovely message. Do keep calling in when you can.
MamaBear (Plumps up virtual cushions). Sorry about bad day.
Bumblebee A lot of people are really helped by prochlorperazine. I am glad it worked for you.
Apologies to anyone rudely overlooked.

reastie is childcare an option? it's not ideal but even half the day without a tiny bundle of energy can help manage the exhaustion which makes the illness worse.

ealli No reason to not try cyclizine, ondansetron and metoclopramide. Just watch out for the twitches with metoclopramide.

hotchoc lovely to hear that you are feeling so much better! it will take time to recover, please please don't expect too much too soon. Easy to do but an HG pregnancy drains you so much more and it will take a while before you can do all that non-HG mums can.

Sorry for everyone suffering so badly & big hugs to all who need one.

I feel a bit if a fraud being on here as I'm doing a lot better this week - still vomiting daily but can eat/drink etc due to the new neds & don't feel nauseous ALL of the time which is such a relief.

Although saying that today is quite a bad day & I'm finding it hard to keep much down. The problem with bringing up food rather than just water/bile is that its irritated my throat - it feels burned raw & inflamed now. Really painful

Thanks. My wonderful gp only works 3 days a week and I’m already having waves of hardcore nausea at 4 weeks so I’m debating seeing her already later this week to get me on track sooner rather than later.

EaI hope you have have it at gp. At least you can get it every day.

Xposted. Sea dm hopefully can help out next week but she’s on holiday this week and I have 2 days with dd alone. I have things booked for dd next week like the theatre with a friend so I’m hoping her friends mum or my mum may be able to take them.

Tiny how awful, poor you. I hope tomorrow is a better day and I’m glad you’ve got meds that seem to be helping.