Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

scottishem Welcome. As you have been following, there is no need for me to give my juice and fruit of tinned fruit, flat full sugar coke, ice lollies spiel or my 'Have you got kesostix?' question when you have avoided being admitted. You will find lots of support on here. I am glad Cyclizine helps you.

Mustang Great advice. Lovely to hear from you, as ever. DeadDoorPost and from you. Sorry it hasn't started yet - maddening.
Meadhowhay Sorry you are suffering badly. I so agree with DeadDoorPost about the value of a really good anti acid - say, Ranitidine or Omprzole. I suppose they have tried to combine Cyclizine with Ondansetron and it hasn't helped? I am sorry that it's gone out of my mind how far along you are - if may well significantly improve shortly. It's dismal being isolated; have you got audiobooks as you find looking at a screen for too long unbearable? The radio is invaluable, too. It must be awful worrying about finances too but you are being sensible in putting your health first. It might be that the retired doctor on 024 7638 2020 Pregnancy Sickness Support might have some ideas about meds? I know they avoid steroids except in cases of really uncontrollable vomiting, but he might have some ideas about combinations of other meds. You will get there.
Shez21I am still outraged about that 90 day wait, too.

Hi sorry to barge in - I'm panicking and either going crazy or pregnant. I have 2 hg-pregnancy children, and additionally had 3 miscarriages. I'm an old hand at early pregnancy, just not be good at it lol. Last pregnancy was my dd four years ago. Hg from early on. Hospital / drip and every medicine under the sun except for the steroids. My doctors were quite frankly awful and I've completely blocked out the experience because it was such an unhappy time. Fainting. Oh and then gestational diabetes and 4 injections a day.

My question is - how early on did you start feeling awful? It is, by my very accurate calculations, far too early to test (which are negative) but I remember this feeling. Far too much Saliva. Nauseous. Shudder at food.

This was a once in a blue moon complete accident event. Oh god.

I didn't start feeling awful until about 5 or 6 weeks Crunchie but you might be more sensitive to the hormones so feel it earlier. Can you get to a doctor soon to ask about meds and explain about previous pregnancies? You can get avomine over the counter in the meantime to help as the sooner you start the meds the better chance of them working.

My article is out www.computerweekly.com/opinion/My-brother-Lauri-Love-should-have-the-right-to-a-trial-in-the-UK

Crunchie someone said re entry they knew within a week of conception as they felt like they were coming down with something.

I say I knew for sure from about 6 weeks but I had been feeling rough from maybe 4 weeks, so kind of when my period would have been due again just due to the timing of dtd.

Massive hugs it's going to be ok though however it goes. Plus you have this thread for lots of helpful advice. Things have improved I think.

Shehz I wish you were to so you didn't have to suffer. You could put a fb post out and ask if anyone knows a good Physio that has experience with pregnant women might get you seen a bit quicker. I don't even use fb but I know it was good for that kind of stuff. I'd worry with spd that a standard pregnancy massage might do more harm than good.

Going to read your article now Natsku.

How have I missed that your brother is Lauri Love??

I have been really interested in this case especially seen as this could easily be my partner, had he gotten more on that side of computing. He obsesses more on the design side of it all. I nod in agreement with all the issues on Aspergers, MH and physical symptoms and prison being the worst place you could put someone with Aspergers.

They cannot and should not extradite it's beyond unthinkable and Lauri's human rights aren't being considered at all.

Iv watched a few things about him and this situation, he seems like a very endearing character and it makes me sad that society would rather throw people like Lauri to the wolves than try and harness an inch of that brain power. We should be beyond stamping out or jamming a square peg in round hole.

I'm not a smart person Nat and a lot of these things are above my comprehension but you really do have all my thoughts and prayers in this as it's a bloody disgrace.

Thanks mustang we've got a lot of people on our side plus reams of evidence to support blocking the extradition, we just want trial at home - UK prison system is far far better for vulnerable people like.

And these things are beyond my comprehension too! Computers beyond the MSX we played with as kids confuse me far too much!

Dead I am 11 weeks. I don't think there is anything else they can give me now? I have tried cyclizine already which knocked me out and didn't help at all, tried prochloperazine which didn't help, then tried that in conjunction with ondansetron which did help, but the pharmacist didn't think the prochlorperazine was actually doing anything so told me to try and stop it, which I did and he was right as stopping it made no difference. Hospital doctor wanted me to try metoclpromaide (sorry I can't spell...) but the pharmacist said I couldn't be on that so they agreed against it. I was taking Omeprazole pre-pregnancy for acid reflux anyway but have not really bothered trying to continue it since the HG started as couldn't keep it down. I find trying to swallow tablets often makes me vomit - I've always had difficulty with swallowing them anyway even pre-HG so this has just made it worse. I should really start trying to take it again though and see if makes a big difference.

Lucinda As above I guess, I am going to see GP again this week as need new sick note for work and things so will discuss my medication and how I'm doing with them and see if they have any new suggestions. I've seen soo many different GPs at my practice over the last few weeks and they've all been absolutely excellent and so sympathetic, I feel very lucky in that regard.

Hi Scottish, sorry to hear you've been feeling poorly . Yes SSP is crap, DF has just lent us a grand because I'm on SSP now and DH is unemployed and we are getting no other benefits atm so financially things are going to become very tight if this continues long term :/ .

Crunchie I had morning sickness in week 5 but not super bad, still was at work as usual just sometimes vomited a bit in the morning or ocasionally once again later but didn't feel unwell in between. Then week 6 came and the HG just started out of nowhere and I've not been back to work since or made significant progress since, I'm 11 weeks now.

Just rushing on to say, Crunchie I have to say I had heartburn and feeling odd from about the day after conception, and I didn't suffer that badly compared to most, as it didn't get really bad until week 10. Sympathies over dismal symptoms and the mismanagement of your Hypperemesis pregnancies and your losses, too. You are certainly a veteran with that record.
...and Meadowhay Very few sufferers from Hyperemesis feel better before week fourteen, so take heart. The majority see a big improvement sometime between weeks 14-21. Even those unlucky ones who suffer throughout never suffer as badly as in the first tri.

Natsku Much sympathy. It must be stressful for you. My half brother brother is autistic spectrum, and I can imagine how worried you must be.
Mustang You don't strike me as 'not smart'! Now I, as someone dyslexic, have massively uneven intelligence. The phraesology reminded me; did you say you were from the US?

@MeadowHay it's such a shame that finances have to play such a stressful role when pregnant and we can't just take the time off that we need to feel better (as told by Drs not just our own opinion) without having to worry about making ends meet! Terrible that being on SSP also effects maternity pay.
But you are definately doing the best thing by putting yours and your babys health first.

Welcome Scottish and Crunchie. Crunchie I definitely felt ill earlier this time round than with DD, I think it was 5-6 weeks the vomiting started (I then started medication immediately). My first inkling was earlier though as I kept feeling faint. So sorry to hear about your negative experiences previously with medical help.

Sounds like everyone is having a crap time at the moment to be honest. Sorry to hear things haven't improved meadow, and that things are so tricky with work winky and Scottish.

I have reached the end of my tether today and had a bit of a meltdown, I am just so fed up. Getting phone calls/messages every 5 minutes joking about 'where's the baby'. DD's more poorly again today. I feel like rubbish as the vomiting's picked up again, and the waking up in the early hours continues. I just want some space to get into that relaxed zone, but there's just too much going on. For some reason I am really worried about the birth. Everything was fine last time, but now I'm irrationally scared and just want it all over and done with. Going to have a soak in the bath and a cry tonight, it's the only solution!

Natsku I just realised I totally missed your post. Sorry for my totally selfish rant, the situation with your brother certainly puts things in perspective, what a terrifying situation for all of you.

Lucinda Mustang Yes I had a good cry about it today and spoke to my GP AND midwife about an earlier referral and all they said was "We can try but the earliest would be 8 weeks wait"...
The pain is excruciating today.
Just gonna have to book myself in with a physio/chiro?
Genuine question regarding that, is it a chiropractor or a physiotherapist that I need regarding the SPD/PPGP?

Welcome and commiserations to the newbies

Pippa Argh so sorry about the wait. You must feel miserable with all the things going on with yoh atm,DD being sick, the relentless phonecalls and msgs about arrival of baby pip which are maybe leading to the anxiety about the birth?
Don't worry Baby Pip will come safe and sound and you'll be gushing all over him/her soon

Meadow Glad to hear about the sympathetic GP and maybe you could add avomine/phenergan to the mix and try that ? Works well with a couple of us on the thread!
Re swallowing tablets; some of them are the dissolvable ones(under the tongue/cheek pouch). Would those be better than swallowing tablets?

Hope everyone else are coping today.. justtheonethen with the trip and dead with the wait..

Just made mince pies because I've got to do something to keep me occupied.
natsku I'll read the article in a moment but I remember hearing about it as the name rings a bell.
pippa relax as much as you can. I'm sure the birth will be just as fine this time around but obviously it sucks that you can't relax
meadow I'd do everything you possibly can to help alleviate the sickness. If that means taking the tablets then so be it. You can get dissolvable ondansetron so I don't know if that'll help at all or Not?
crunchie I knew something was up from week 5 and by week 6 I should have gone into hospital but didn't. Try and get pre-emptive meds. It could make a huge difference.

Midwife appointment went well. 3/5ths engaged still, but plateaued in fundal height again. 40cm... oh well.

Parents have decided they're coming down next weekend. They were going to try it on with this weekend but hell no am I dealing with that. Everyone else will appear sometime after that weekend and DH's granddad funeral the Monday after.

And update on crazy neighbour... he'll be moving out in the next few months! He's being kicked out because it's ridiculous how he's treating the flat. So I get some respite from that too.

@Shehz21 I've just been catching up on your hip/pelvis pain story. I had my first physio appointment on Friday after suffering from about 10 weeks with pelvis pain and just thought i'de let you know what was said incase any of it can help you!

My physio said that I have pelvic girdle pain which is being exasperated by the fact that my pelvis/hips have moved out of alignment (left one is twisted backwards) which is causing everything to be tight and stretched past their comfortable point.
Ive been told to do self massage on glutes by rolling a tennis ball on my bum against a wall.
Try and do gentle activity like swimming even if its once a week to stop seizing up. Sleep with pillow between legs to line pelvis up whilst sleeping.
She gave me a biggggg piece of tubie grip to wear over bump (might be able to get this online or a bump band) which can be worn all the time and gave me a maternity support belt to wear beneath bump but can only be worn whilst standing/walking, not for sitting in (can get online) But feels amazing when on like its pulling all my bones back into place! Also after a nice long bath have a slow gentle stretch like touching your toes.

Sorry post ended up becoming so long but fingers crossed some of it can give you some form of relief!!

@Shehz21 also I would try and get a private physio (with antenatal experience) as opposed to a chiropractor.

Where online can you get the maternity support belt Scottish?

Rant away pippa it's not selfish and in any case I think when suffering from HG we have a right, and duty, to be selfish! Hope baby comes soon. And you too dead hope that baby gets out soon!

My sad has dyslexia lucinda definitely makes his intelligence uneven, he has a fairly high iq but the dyslexia distorts it to a certain extent.

Also, how can you tell when baby is moving position? Movements feel quite different lately, more like twisting than kicking, don't remember that with DD.

@Natsku the one given to me is by Promedics (the whiltshire belt i think) and they have their own website.
Cheaper ones on Amazon and found this one on boots which seems similar www.boots.com/emma-jane-reenie-maternity-support-belt-skin-10122325
And this one from Jojo www.jojomamanbebe.co.uk/maternity-supportbelt-b4761.html
The one i have has velcro straps on each side that you tighten and thats what seems to make all the difference

Cheers Scottish

Natsku I didn't realise that Lauri was your brother. I hope everything goes well for his appeal.
I have Tourette's Syndrome so have some similar challenges to people with AS (especially dealing with noise). I hope his needs get recognised.

Shez Apologies if someone has already posted this but have a look at pelvic partnership. They have a list of practioners that have experience of PGP so that might help you find someone who can see you privately. Some of them are chiropractors and some are physiotherapists but it is important that they know about PGP. Manual therapy is meant to be really helpful which is when they push you back into place rather than just give you exercises. www.pelvicpartnership.org.uk/treatment

Thank you ladies for your stories. I'm almost convinced I'm going crazy and yet... I feel a bit silly jumping to conclusions and yet...

Natsku I wish for all the best for Lauri - my son is neurodiverse (I think somewhere on the AS / adhd) and I see a lot of things I recognise. Fingers crossed for this week x

Lucinda I was on these threads during both pregnancies and in the early weeks, they kept me going. Can I ask - Have the new green top guidelines made any difference?

Crunchie I knew about 8 days post ovulation. I'd normally call BS on such a statement, but I know my body and how (badly) it reacts to pregnancy! I felt a bit off about 10am and by 10:30 said to a friend that I was either pregnant or about to come down with norovirus. Positive test the next morning, but the HG didn't kick in properly for another few weeks.

natsku for Me, I could feel the baby moving as he was digging into my hip and his bum was under my ribs. But the night he turned position was full of agony. I couldn't get to sleep at all I was in that much pain. Lasted 2 nights then settled down to be a problem for sitting comfortably but there we go. He's been stubborn the whole pregnancy. As for recently when he's been twisted etc I could feel where his side was and his arms. And then when he went back to back last week I could feel the kicks on my stomach a bit more despite my anterior placenta. So if the movements feel different then it's likely BabyNat has shifted slightly.