Eagle I am so sorry that this news was given to you just via a letter and you are left anxious about the exact diagnosis. When is your appt with medical team/geneticist to discuss this? Apart from growth failure, are there are any concerns in other areas of your DD's developement. I know of someone whose child is on growth hormone injections, we reasearched a lot and as far as I understand, most genetic causes of growth failure in a girl are a 'chance' effect (affecting only that child) excep a few conditions, but even with them, odds of passing it to next offspring is fortunately low. I would be very surprised that geneticist would fail to mention it, if it were something that could pass on to your next child and not give u an urgent appt to meet them. Obviously it will become more clear when u know the exact diagnosis and meet them and discuss it. If possible ring them up and let them know about your anxiety re your baby that you'd soon be expecting in around two months, so they could bring forward your appt. Are u expecting a boy or a girl? Its reassuring that u had normal harmony test.
Re Growth Hormone therapy, i agree its a great deal. But its a relatively safe and effective therapy and serious side effects are fortunately rare. I can totally understand your anxiety and really feel for u, all this coming at this time. Hope u get your answers and clarifications soon.
I am glad ur ferritin and vit D level is low but better than what u expected. Are you on any treatment for the deficiencies? Is someone monitoring these levels? Hope your vit B12 and Thyroid function are normal.
Lol, i just laughed when u say baby can sleep in a drawer or a box! Really??!!!!
Fragile congratulations on ur pregnancy.
Oohar congratulations. I would be cautious about anyone's recommendation to take higher dose of vit D, unless it comes from your clinician. Usually its best idea to have a baseline level before starting the treatment but if u want to go blind, the max daily recommendation is not to go beyond 2000 mcg which is only 2 mg! Most prenatals have about 10-20 mcg in them which is ok for a non deficient pregnant woman. Hope u clarify this with ur midwife or obstetrician. Bw xx
Greater whats the news from ur scan? Hope all went well xx
Brooke so glad your pregnancy is going well. Touchwood. It must be amazing to have that feeling 'ooh its really happening..not toooo long!' How frequently are u now having growth scans?
Notfrom welldone for the hospital bag, full-on cleaning etc! Hope U managed to rest the rest the of the day! Tc hun xx