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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

970 replies

LucindaE · 10/07/2014 18:08

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk/
If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!prescribinginfosub

I would like to thank Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

OP posts:
Are your children’s vaccines up to date?
AllOutOfNaiceHam · 31/08/2014 22:32

I have drugs, lots of drugs. Went to a different go who asked what I wanted and prescribed ondansetron, cyclizine, ranitidine and omeprazole. He says if I still need more we can add metoclop to it next week. That has never worked for my by itself but was quite good with the other two.
Now. Can we talk about ondansetron and pregnancy induced constipation?

Twinkle186 · 31/08/2014 22:50

You're not last emsy. I'm working with 29th March as my due date at the moment. Haven't had my dating scan yet though so might not be completely accurate. I hope everyone's feeling ok this evening.

ToAvoidConversation · 31/08/2014 23:11

Naiceham yes yes if you find a solution to that particular problem please let me know!!

basgetti · 31/08/2014 23:22

Ondanestron was great for me in stopping the vomiting but the constipation is so bad they took me off it in hospital and wouldn't send me home with it (I have existing bowel issues so it was the right thing to do). Problem I have now is my drug choices are so limited.

Stemetil is useless for me, and the cyclizine seems to work for a while but then the effects wear off. So it's been doing it's job since I came out of hospital but the last few days I've been vomiting more again. I can't take metoclopramide either. Is promethazine any good? Domperidone? I'm googling anti-emetics in desperation at the moment!

ToAvoidConversation · 01/09/2014 07:59

Basgetti... More hospital? Oh dear god. Why is it never ending?

Since being started on Ondanestrone I haven't been sick for 4 days. It's absolute relief but yes the constipation isn't nice. A few of the midwives in the hospital said Ondanestrone is what worked for them too and the rest were rubbish. I'm going to get on fluids big time today and see if it helps.

There seems to be a fair few different experiences of different drugs on here so I hope someone can suggest something for you! Thanks

LucindaE · 01/09/2014 08:34

Due Dates
Lottie 8 September
Booboostoo 14 September
mrsb87 29 September
mrsnec 1 October
George by the Sea 6 October
Pickofthepops 7 October
Oklahoma 28 October
Mampam 17 November
Sassehmonsta 15 December
SomeSunnySunday 20 December
Basgeti 21 December
Fraggle 28 December
Sarah 29 December
HenriettaTurkey 23 January
Kalidasa 28 January
Frenetic 14 February
FloweryBoots 26 February
Emysmarie TWINS! 21 March
Twinkle 29 March
ToAvoidConversation No date yet

Emys About constipation and Ondansetron, Kalidasa has the unenviable status of being an expert on that as well as having the worst case of Hyperemesis I have ever encountered on these threads...A lot find the jelly suppostiory things ok but not sure if you've tried those already? I'm sure you've tried fibregel and found it toatally nauseating.
Oklahoma Hugs> You've been incredbly stoic and supportive on this thread.
Sorry to all suffering dismally.
xx

x

OP posts:
Oklahoma · 01/09/2014 09:24

Emsy I have been on promethazine throughout. You can take up to 4 a day so you could actually add an afternoon dose rather than having to move one of your evening ones.

basgetti · 01/09/2014 09:25

ToAvoid I meant my admission a couple of weeks ago, not been in again yet (fingers crossed it stays that way!) Glad the Ondanestron is helping you so far.

Meerka · 01/09/2014 11:00

I would ask the helpline. Personally I'd try taking the evening dose at 20:00 first.

Phenergan is a reasonably powerful anti-histamine with both anti-sickness and sleepy-making properties, so don't be surprised if you get quite sleepy a bit after taking it. Which is a good thing, sleeping thru HG is the best option.

Also, please think carefully before weaning yourself off. Its sort of instinctive by now that we don't want to take meds in pregnancy but honestly, if they work its best to keep taking them especially until you begin to improve on yourself, usually around weeks 14 - 21. The extra strain the sickness puts on your body takes a lot more out of you than you realise, and growing a baby is already hard work. Please do check with the doctor before doing that, at least.

kalidasa · 01/09/2014 11:03

Hi all, sorry to be patchy recently, I've been in Suffolk at my parents' for the last couple of weeks but back in London (with better internet) now. I am pleased to report that I am still doing better: tired and weak and constantly nauseous but throwing up a LOT less. I'm still on cyclizine and omperazole and various stuff for my bowels, but have just finally come off the steroids completely. It has made the nausea a bit worse but I haven't started vomiting more (at least not yet). I am struggling a bit with eating again (steroids really really helped with that) but I think I'm still getting enough in. I'm nearly 19 weeks now and nearly back at my pre-pregnancy weight! Bit anxious about the 20 week (anomaly) scan next Monday, will be glad to get through that. Only bad news is that my pelvis is as expected - though earlier than I'd hoped - beginning to go again, so realistically I am looking at crutches and then a wheelchair in my third trimester again I think. Oh well.

starry so pleased you are going to get some help, I was concerned. Asking for help is a huge step in itself. You will feel better eventually, do PM if you want to.

Basgetti your miserable pregnancy sounds a lot like my first one, with the sickness just going on and on. I'm really sorry they didn't put you on steroids early on because even though my worst phase this time was truly spectacularly awful and even the steroids couldn't control it, I think they really have helped me recover and get my strength/energy back once the absolute worst was over. Last time I never had steroids and although the worst phase wasn't as bad as this the sickness at mid-second trimester was worse last time I think.

I am officially 'back at work' now but I have done a deal with my head of department and been let off all classroom teaching/lecturing this term. I just can't commit to the travel involved in commuting and the set hours. So I am doing a big admin job for the department (which I can mostly do from home) and continuing to look after my PhD students and try to catch up with my v. delayed research/writing commitments. But all of this is much more flexible, because PhD students can come and see me at home if necessary. I am really pleased with this arrangement as it means I will still be paid! Whereas I was thinking I was just going to have to be signed off for the whole autumn which would have been really depressing. I'll have to go in a few times a week at the very beginning of term (mid/late September) but after that I reckon I'll be mostly at home, which I hope will be doable.

Very excited that I am no longer at the bottom of that list!

Re: ondansetron constipation, like basgetti I was taken off it in hospital because the constipation was so severe; unlike basgetti I didn't have any pre-existing bowel probs so I think this is very unusual and almost everyone else seems to find ways to deal with it. If the ondansetron is allowing you to eat/drink relatively normally then you can try all the ordinary things (prune juice, prunes, plenty of fluid, even coffee!). Otherwise, you want stimulant (not bulk-increasing) laxatives - so things like senokot (or other senna tablets) and bisacodyl. You may also find softening things (like sodium docusate) useful. Lots of people have success with movicol, but you do have to be able to drink it regularly and keep it down. Ditto lactulose, which means drinking a smaller quantity but it is pretty grim.

If you've been constipated for a while it makes sense to tackle it from the 'other end' as well - glycerol suppositories are really worth a try; if you get totally desperate you can try home enemas (e.g. 'fleet' enema), but obviously this is pretty last ditch.

Annoyingly, pharmacists won't sell you anything for constipation over the counter when you are pregnant, though they will/would use all these things in hospital if you ended up there. So you need to either a) lie, b) send someone else, or c) get your GP to prescribe for you. You can also buy all these things online and have them delivered.

One thing to bear in mind is that a lot of constipation remedies, especially the stronger ones - e.g. a large dose of movicol or an enema - are quite dehydrating, so they won't work as well if you're not drinking enough, and they may make dehydration worse, which obviously isn't what you want.

Do throw the book at the constipation at the first hint of it because - believe me! - you do NOT want to end up being cleared out in hospital.

Courage to everyone slogging away.

basgetti · 01/09/2014 12:00

Glad you are continuing to improve kali, and that work are being flexible for you. I'm starting my final degree module next month, luckily I do most study from home and they are pretty liberal with extensions if needed!

Yes I was prescribed Movicol and couldn't keep it down, then couldn't hold the suppositories in either. It was awful, and being so blocked up also made me more sick. It took several days of no longer taking Ondanestron for my bowel to even begin functioning properly again, it is such a shame though as in my case it was a very effective drug for the vomiting.

For me this pregnancy has definitely been worse than with DS. That was pretty bad, I was on cyclizine and had 3 brief hospital admissions but I had respite in between where I was able to function properly and the sickness was much easier by this stage and had gone by 28 weeks. This time it is just so relentless and the meds seem less effective. It has also got worse as time is going on rather than better! I'm also waiting for the return of GD, have my next GTT in 2 weeks and I'm resigned to it returning this time, although I know it may not it seems like everything else this pregnancy is awful so why not that too!

I'm being sick again a fair bit now despite the cyclizine and buccastem, I think I need to go back to GP and ask about other options.

Hope everyone is doing ok today x

kalidasa · 01/09/2014 12:43

Are you having a girl this time basgetti, do you know? I'll be really interested to find out next week what we are expecting, as the pregnancy has been pretty different from DS. You have had a dreadful time of it, I really feel for you. Although I am still very fragile, and there's no way I could work full time/commute etc, it's still such a relief to be feeling a bit more myself these last few weeks. I actually feel more positive about the baby this time around as well, despite the even worse first stage: perhaps just because it's a bit easier to imagine the 'prize' at the end when you've got a toddler in front of you! But I suspect the steroids helped to prop up my mood through the worse bit too.

basgetti · 01/09/2014 12:51

Yes kali the sonographer struggled to determine gender but said he was as sure as he could be that it's a girl. It's good you are feeling more positive, I'm struggling to feel positive at all and then I feel guilty about it! Mind you I didn't have great feelings towards the baby last time and then the second he was born I loved him totally and I now have a 6 year old that still ends up in my bed every night and tells me he loves me about 50 times a day. I'll try to focus on the prize a bit more x

freneticfox · 01/09/2014 13:10

Another survivor of Ondansetron constipation here; my GP gave me lactulose, and I was taking two Fybogel sachets a day as well as a LOT of water. And I still had problems. It's an amazing drug for helping take the edge off the sickness/nausea, but the side effects definitely require some weighing up!

I also had good experiences with Promethazine, but only taken at night else I'd be a bit of a zombie during the day.

I had a nausea-free day yesterday. It's a small step and by no means am I confident enough to feel hopeful, but I'm celebrating a mini victory :)

Meerka · 01/09/2014 13:45

basgetti promethazine is like everything else - it works well for some people and not for others. But you've had it badly enough that I really think you should try it, and domperidone too, if you can't take ondan. How on earth you can manage to study I have no idea, you must be soooo determined.

Also, don't feel bad about feeling bad about the baby, if you see what I mean. I think most of us do. It's kind of normal and one of the saddest side-effects of HG. But it does go away. HG needs really to be treated with regards to the mental strain as well as the physical, I'm beginning to think. So many of us have felt like we just couldn't stand the whole thing. It doesn't affect long term bonding though.

kali Im so pleased to hear the sickness is improving a bit. I honestly hope and pray that you manage to avoid the pelvis problems. After all the last months, god, you so so so need a break.

frentic very pleased to hear you are a bit better yesterday after the last weeks. hope today is a bit better too :)

b oo - any news?

how are you, george and okla and naiceham and everyone?

basgetti · 01/09/2014 13:56

Thanks Meerka I will definitely mention those drugs, my GPs are pretty good and open to suggestions. I should be able to get appointment in the morning. Last year the studying was hard, I had MC in December followed by the hyperemesis starting with new pregnancy. I had to use a fair few extensions and I deferred an exam until next year. But I'm desperate to get it finished!

I agree about the mental health aspects of this needing more consideration. I think the lack of understanding doesn't help, having it minimised as a 'bit of morning sickness', along with the idea that women are supposed to glow and breeze happily through pregnancy and they must be cold or ungrateful if they aren't filled with joy. Grrrr.

Glad you are feeling better frenetic.

Oklahoma · 01/09/2014 14:03

Totally agree on the mental health side of things. Between the guilt and the isolation it's enough to make anyone depressed. And no one really seems to take that into account.

kalidasa · 01/09/2014 15:23

I think mixed/absent/outright negative feelings about the baby are 100% normal to be honest, especially in a case like yours basgetti where you are still so ill later on. I think for women who feel totally or a lot better from around the time they start to feel the baby it's maybe a bit easier to separate the sickness from the baby if you know what I mean. Whereas if you're still chucking regularly when you can see little feet churning around in there it's harder to suppress the connection! And the churning around doesn't help with the sickness either in my experience.

To be honest, I did have a hard time bonding with DS, which is why I am so glad to feel more positive about this baby from early on. I think the HG definitely contributed to my PND/bonding difficulties but I don't think it was the only cause either. I love him very much now though so we got there eventually.

Meerka · 01/09/2014 16:30

my experience was the same as your kali For me I think the main reason bonding took longer was the deep physical exhaustion from all that illness and from having ME. Not sure that nowadays people realise how much physical ill health can affect the sheer ability to feel anything at all.

It's long passed though and the bonding is just fine now.

basgetti if you think you are at risk of meltdown as the weeks and months go on - seriously ask for help early. I left it too late and in the last 3 weeks it ended up crisis situation. Use all the support you can find. Don't feel bad, this illness is hell and you've got it badly.

freneticfox · 01/09/2014 17:52

basgetti; I lucked out with my GP who had HG with both of her pregnancies, so she's not once belittled how I'm feeling and is really great when it comes to listening to my concerns. I've been a long-term sufferer of depression and on Sertraline for several years now and the general consensus from GP and midwife was that it's safer to stay on a lower dose during pregnancy, rather than risk being off it. My only concern is if it would affect breastfeeding.

I was celebrating too soon about a good day yesterday, spent this afternoon curled up on the sofa sipping water feeling awful!

Lottiedoubtie · 01/09/2014 19:17

just checking in, exhausted, back to work today and slightly regretting thinking I'd be clever and do one last week before ML. I was sick this morning for the first time in ages and then had to sit in hot stuffy rooms being talked at about nonsense all day.... Still 4 more days and then no more!!

madbunnygirl · 01/09/2014 22:47

Hi everyone, I'm new to Mumsnet and currently 11+1, due 22 March 2015, but have only been lurking on here until now.

Very excited but have been struggling with morning sickness and nausea terribly, since my 6th weeks, and I've been signed off work for the 3 weeks. Was prescribed Cyclizine, not massively convinced it's making a difference but have started being sick a bit less the last few days and hoping to return to work in the morning as my sick note has run out and I'm just so bored of being ill.

Reading some of your stories on here has helped me cope somewhat, although I don't think I'm quite as bad as some of you - hoping this doesn't go on much longer as it's really got me down. My husband has been great at keeping me sane through this but it's been hard, our summer plans have been almost ruined by my sickness, we haven't done anything for weeks now! My work have been ok, although found they put a lot of pressure to find a magic cure when it all started, they been understanding since my GP signed me off.

I hate being this poorly, after trying to get pregnant for 10 months and suffering what we think was an early miscarriage in January, I feel so guilty that I'm just so miserable about being pregnant

Hope everyone has had an ok evening xx

madbunnygirl · 01/09/2014 22:51

Just realised I've missed a few words out, writing on an iPhone is not one of my strengths - it posted my message before I'd checked what I wrote! Hope it makes sense!

Meerka · 02/09/2014 10:37

hi madbunny and congratulatoins on your pregnancy =)

It's not always all it's cracked up to be is it? Before it happens you believe the pink tinged happy pictures. The reality is so much messier! All of us have felt utterly miserable at times. I think quite a few of us have wished it hadn't happened but that is directly becuase of the misery of hte condition. Once it goes away, things will be a lot lot better =)

Cyclizine is a good first line med but there are others which are a little stronger. (Do not worry at all about the safety of these meds in pregnancy - can give you some information in pm if you like the NICE guidelines in the link on the first post gives you the drugs that the government recommends as safe in preg). It's well worth going back to the doctor as asking for something stronger - domperidone or promethazine or metoclopramide are all good second liners, there's a couple of others too.

Different people respond quite differently to the standard meds btw, so what works for you may not work for someone else.

Other than that, rest, rest, rest as much as you can. It's not laziness, it's a known thing that severe nausea and vomitting in preg is made worse by tiredness and by effort. Also, you're in this for another 29 weeks and then the post-birth time; you need to be as gentle as you can with yourself now cause you've got a long way to go.

Good luck, feel free to post anytime :)

lottie how are you today? please be gentle with yourself too!

< waves to frenetic wishing her a low-sickenss day and to everyone>

Meerka · 02/09/2014 10:38

lottie I can't beleive you're still at work 6 days before you're due!!! good grief!