Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk/
If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!prescribinginfosub

I would like to thank Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Starry 1 August
SliceofLime 2 August
IWorry 8 August
What 14 August
Lottie 12 September
Booboostoo 14 September
mrsb87 29 September
mrsnec 1 October
George by the Sea 6 October
Pickofthepops 7 October
Oklahoma 28 October
Mampam 17 November
Sassehmonsta 13 December
SomeSunnySunday 20 December
Fraggle 28 December
Sarah 29 December
HenriettaTurkey 23 January
Kalidasa 28 January
FloweryBoots 26 February

DH was here this afternoon but has had to leave now to take over with DS. Let's not start on why my mother isn't here and has no plans to visit!

Whole endocrine team headed by a prof came to see me this afternoon as apparently I am a v fascinating case! No suggestions on what to do though.

Nothing like being made to feel like a science experiment to raise morale Kali!!

...well at least you're seeing lots of doctors

Is there anything we can do to help the time pass for you?

Lottie and I perfected mumsnet eye spy when we were both bed bound...

Turned out the prof was once my dad's registrar! My last name is unusual which is how he realised. Have not been sick for a couple of hours now, not sure if just because there is absolutely nothing in there or if the v big injection of steroids is finally kicking in.

hiya sassehmonster, nice to see you, and so good to hear the HG is abating!

kali .... thinking of you a lot. I really, really hope something breaks your way soon and things improve.

kali cheerleading here for you - a couple of hours without being sick is brilliant!! Woohoo!! Fingers and toes all firmly crossed hoping that thinking outside the box and having lots of drs/profs involved provides some sort of genius idea. If ever one needed a Dr House...

Palliative team are v interested apparently and have already had one idea - they are going to fit a sort of pump to deliver constant cyclizine. Worth a try. They agree that I shouldn't be on the ondansetron. They are going to discuss me more tomorrow. Junior doctor who came to tell me all this reassured me that this doesn't actually mean that I am on the way out!!

Sounds good kali at least they are trying! You never know you might turn into the case that helps all future cases of this

Another day practically over though, and every day is a day closer to your recovery

Heh, can imagine them being all curious about you! I do hope they can come up with some nice ideas kali.

how are you doing mentally coping with all this?

Oh gosh I am so relieved to have found this thread!

I am almost 11wks and struggling.
Had a short hospital stay last week - put on a drip and switched from Metoclopramide to Cyclizine and Ondansetron.
The medication combo worked great on nausea initially, but have more recently vomitted a few times, and am feeling more and more like I'm only JUST keeping it all at bay.

I am also having pooping issues, though not as bad as dear Kali(!! :*). Totally clogged up, and uncomfortable - was not told of the gut-glue side-effect, but now I realise I need to see GP about it ASAP. Am terrified of being taken of Ondans, as previously when just on Cycl. I vomitted continuously.

So sorry to hear that many of you are struggling, and hope you find some relief soon!

sally most people respond to Movicol (i think it's called Movicolon in the uk, or it's Movicolon here and Movical in the uk, whichever). Have you tried that? It's harmless and for most people pretty effective.

You're still in the thick of it at week 10, nearly 11. The grim news is that it will probably take between 4 - 10 more weeks to really start improving, but it will. It does for just about everyone except the ones who managed to win the sickness anti-lottery.

Is your doctor sympathetic? can you explain yoru worries to him?

Thanks so much for replying Meerka
GP is lovely, for one she really fought to have me admitted to hospital, but there still seems to be a lack of awareness re: HG
e.g. I keep getting told that it should all get better in a few weeks - but as you say, most HGers, don't improve til 16-20wk

It's also all relative, and that's difficult. Compared to Kali, I'm doing great... I'm also a lot better than I was. And I guess everyone's - is this the best I can hope for? has a different answer.

Will try to see GP tomorrow re: pooping, and ask her about Movicol (haven't tried that yet).

Sally - please don't panic, this is my second HG preg and I've been on this thread/other boards for a couple of years and I haven't heard of anyone else being taken off ondansetron. Not sure how much of thread you've been able to read but I was on all poss laxatives + a daily enema with no effect. I am on steroids too so already at the end of the line re drugs.

Well after a v v grim evening back to vomiting hourly, bringing up some blood the last time, they finally got hold of the pump thing. Still feel overwhelmingly nauseous but I haven't been sick for several hours.

I am holding up ok so far, seeing the hosp counsellor again tomorrow, she was v helpful on Friday. It is a v difficult time for family reasons as well and we are not really getting any support from my family as a result. I think psychologically it will probably be harder actually when the crisis is over and I am back on my own in bed at home for weeks.

Good luck Sally, I think it's common to slide a bit at home as the effects of the drip etc wear off. Are you trying to do too much? Is your DP/DH/family supportive?

Thanks for the welcome everyone. I had a vomit free day yesterday and managed to go for a walk, I dared to hope I might be turning a corner. But back to vomiting badly this morning so feeling a bit fed up. The cyclizine seems very hit and miss with me, I was also previously prescribed the little tablets you put under the lip (buccal something??) but they didn't work and the taste made me feel even worse.

I saw midwife yesterday and my blood results hadn't been checked, turns out I've got low hb and have to go on iron tablets. She says it will be a bit of a balancing act trying to take them and avoid sickness and constipation, but hopefully they will give me a bit more energy!

Kali sorry you are struggling so badly, I really hope the pump works for you and you can get a bit of a break from it all, it sounds awful for you x

Oh Kali, hope they can get a great big bowl clear out out of you soon and get you back on the meds. I have no idea what to even say.

Okla everyone has said it already, but it's totally normal not to feel excited. I found the decisions and choices overwhelming in my first pregnancy adn that was without HG. Like someone said, we did a spread sheet and it helped us feel clearer about what we needed, what we wanted, and then looked at options one at a time and it all felt more managable. Though we did have a hand me down pram I was only to glad to accept so I didn't have to research prams - the idea of deciding terrified me, and I didn't get a changin bag because we couldn't agree and I ended up in tears in a shop and refused from that point to even consider them! This time round, and last time, with the nausea and sickness so constant I can't seem to get excited and I genuinely forget that we're getting a baby at the end of this. I just can't seem to see past the trying not to throw up any minute.

Basgetti sorry you're here adn suffering but welcome. Everyone is very lovely and supportive and helpful.

So, meds. I've been taking my metoclopramide now, and it seems to help me not be actually sick, though I was only sick 1-2 times a day any way, but it's not really doing anything for the nausea. Would anything else help more? I feel bad moaning and know that in the grand scheme of things I'm realy not bad because I'm not sick that much and I can keep down food and mostly drink. But the nausea is just so depressing and draining and it's so hard coping with the kids when all I want to do is lie still. I've no help in the week with the children and this is the last week of pre school so next week I won't even get an afternoon nap a couple of times a week while DS is at pre school and DD has her nap. I honestly think they are the only thing that gets me through.

Kali my husband is an incredible support, amazing, and has kept me sane(ish) in all this. I don't think I'm trying to do too much, as I spend my whole day seated or lying down . I hope today is a good day for you!

FloweryBoots I was on cyclazine, which didn't help at all... then metoclop... that moves food through quickly, so like you, little food would come up, but I still was vomitting A LOT - and this lead to extreme dehydration and hospitalisation. There I got put on a combo of cylclazine and endansatron, which while it hasn't 'fixed' things, has made it all a lot better. I don't think a GP along can bump you up to endansatron, but it would be worth discussing.

Back to vomiting hourly despite pump and steroids. Just saw dietician who has prescribed food replacement drinks but no idea how I am meant to keep them down. Just vomiting bile over and over again.

Kali I just have no idea what to say. My heart goes out to you and your family.

I'm seeing my nice GP again today who I'm hoping is going to sign me off again so I don't have to fight HR any more.

I've also managed to stabilise my weight and have even put on half a kilo! It seems very unfair that the one time in my life I'm trying to take in as many cals as possible I'm not enjoying it! I have literally done nothing for the last week for this to happen though so cabin fever is setting in.

Thank you for all the helpful responses to my meltdown over the weekend. Seriously don't know what I would do without you guys.

Oh kali we're here, keep talking if it's helping.

okla that sounds positive, I'm sure your GP will sign you off, you clearly can't work.

sally welcome to the thread, but sorry you're suffering.

I'm feeling more nauseous than I have been today and got random stomach pains not sure if they are indigestion/normal/something more sinister. I thought I was hungry so I just forced some food down. Now I just want to lie down and do nothing...

Poking my head in. Still signed off. Still have awful days. Just hanging in there until my EDD of Sept 1st!

Love and positivity to you all. Xx

Feeling really sick again today for the first time in weeks :( Am feeling really scared and anxious as don't think I can handle another 12-14 weeks of how I felt week 6-20.Was just starting to find myself again a bit and starting to come out of the severe depression(caused by being so ill).
I'm hoping so much that it's just that I'm a bit over tired as went to bed really late last night and then couldn't sleep but I'm just sitting in bed feeling very sick and anxious today.

So sorry to Kali and everyone else feeling so sick.It's the pits :(

george there's a really good chance it's just a bad day. HG always fluctuates and beign overtired always makes it worse!

Ok, quite a few people find the nausea comes back a bit by the end but it's never as bad as the first weeks.

Are you getting support for the depression? it's really helpful if you can especially as things get a bit busy after the baby arrives.

hope you're getting less awful days sometimes too!

okla really pleased to hear you've put half a kilo on. Encouraging =) What did the doctor say about signing you off?

Can your husband take you out for a short drive into the countryside and even just sit with the car door open for 15 mins? it sounds like nothing but a bit of a change of scenery does help, even if you don't walk!

kali ... are they giving you some nutrients by drip even? there was a woman in hospital same time as me who had a bag of vits and minerals on her stand. As always, thinknig of you.

flowery Phenergan (promethazine) is good against nausea for some people. it's a more powerful anti-histamine than cyclizine and often given. Might be worth trying. other than that, ondansetron ...

< waves at Basgetti (keep wanting to call you Bugatti! :) ) and everyone>