Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk/
If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!prescribinginfosub

I would like to thank Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Grrrrr I'm so fed up of bloody nausea. I'm 32 weeks, can I not just have one nausea free day? Vomited twice already and can't face any food :-(
Half a year of this!!!! Don't think there is any chance I will get off prednisolone before delivery :-( :-(

They use Harmony in the States too but they call it a free cell test (I only know as my friend had it at eight weeks gestation) they get baby DNA and look at the chromosomes, much better than the combined test....you can find out the gender too!

Meerka must be boring...presuming if induction fails it will progress to CS?

Hope everyone else is having a reasonable day

Sounds slow going meerka, fingers crossed things pick up today.

Nausea about 7/10 today, about to drag myself into the shower then got to pack a bag. Giving DH 24 hours off for good behaviour because he wants to go out tonight/tomorrow and going to stay with my parents.

LucindaE the Harmony test is the new test developped by Dr Nicolaides (who did the nuchal scan/bloods test) to detect some chromosomal fetal abnormalities. They take a blood test off the mum and extract from it the DNA of the baby. It has a small false negative rate, like the nuchal scan/blood test and a lower false positve rate than the nuchal. This means (if I understand my statistics correctly!) that a negative result off both tests means the chance of a false negative overall is miniscule, while a fewer false positives mean fewer women risking an MC because of an amnio. It is currently only available privately, NICE wants to gather more evidence before making a decision about making it available on the NHS (they need enough women who have had it to confirm the results after the birth of their child). It's been available in the UK since about autumn 2012.

Meerka how frustrating! I hope the little one makes an appearance very soon!

Hi all,

meerka hope it's not too long now.

Lottie that sounds like you're having a good day.

Boo that's great about the harmony test. I've never heard it offered here if id have wanted it I think I would have had to go back to the UK and gone private I think they would have sent me to Nicosia for an amnio. The risks I know are small but still significant to me. But I'm so scared of losing this one even the flight felt like a risk to me.

My friend here has a disabled son with a rare chromosome disorder and he goes to a special school. He is such a lovely little boy. He had a birthday party last week and she wanted as many people there as possible since he couldn't invite his classmates as their families keep them hidden away. I almost burst into tears when she told me that. It does feel very backward here at times.

Hope everyone else is having a good day.

Not having a great few days but it's self inflicted. Giving my body a few days off ondansetron to let my bowels recover so nausea is back. A particularly spectacular cough-vomit-pee after dinner the other night which left poor DH scrubbing the sofa.

Think I have nesting energy however, I walked to antenatal class yesterday which was 2 miles ish... The most exercise I've done in months and I'm suffering for it today- pelvis and nausea!

Doing nice normal pregnancy things at last though on ondansetron days, the hospital bag is started, baby clothes shopping nearly done, pushchair ready to go.

Can't believe you're so close now meerka. Hurry up baby!

ok im fed up. they're using stronger hormone gel now and im getting strong contractinos but they're not triggering full labour. If it doesnt happen tonight they will send me home tomorrow to rest, then try again friday. still being sick too sigh

the worst is that the friendliest mum in the school playground is also in hospital. walked past her door, she called out, the poor woman is having her 2nd miscarriage. She wanted to chat, but I could have cried - how bloody awful for this to happen.

mrsnec they definitely do it in Athens which is a much shorter flight if you decide it's something you want to explore and given the Greek attitude to disabilities I would take a guess and say they do do it in Cyprus as well. These people will perform the test for you if you post them a blood sample which your doctor may be willing to arrange for you (in France it is illegal to transport blood unless you have a license!)

www.ariosadx.com/ordering-process/

Oh meerka that is so sad about your friend! I have a friend who MCed a couple of weeks ago when she was a month ahead of me and it was devastating for everyone. I hope things speed up for you and you are not discharge to come back another day.

Meerka Poor poor you, Hyperemesis is determined not to let it's grip go easily, by the sound of things and your poor friend too.
Oh dear, there seems to be bad nausea and puking all round.
Sympathies to all. Pats on offer.
xx

punk yes I imagine if I left it a year I would hate, hate going back so it makes no difference whether it is 2 months or 2 years! At least she will be with DH and not in nursery 24/7, just for the times he has class. I have been checking out prices and nearly cried at how expensive childcare was.

I know what you mean about being over it all. 33 weeks and it feels neverending. I felt so so sick this morning and had to go back to bed twice today. And had to order more medication, I can't imagine coming off it now before the baby arrives.

BUT minor victory, for the first time in seven months I cut up chicken to cook today! This was the first meal I have made since getting pg, admittedly with a packet sauce but still, I'll take it!

petit not too long for you either is it? How nice to have gotten some stuff done but sorry it is still so bad.

mrsnec I know the flying fear, last week I was dreading it and next week I fly to London. Neither is far, no more than an hour but still it was a relief to get off. And Amsterdam airport omg you have to walk miles and miles to get around. I should have asked for a lift on one of those cart things. It is perfectly safe to fly though, so if you do want to do the Harmony or something similar it may be worth it for peace of mind. My consultant told me that it is more effective the later you leave it so that is something. You have to weigh it up with the fact that in the highly unlikely possibility that there is something, then it is a more difficult decision. But really, they spot so much at the 20 week scan now anyway it may just be worth waiting.

They just introduced it in NL this month I believe so too late for us but before you could go to Belgium and have it done for 500 euro. Not sure if we have to pay here now or if it is under insurance (knowing things here, probably have to pay!).

meerka sorry you are still waiting, sigh. I guess the little one is pretty comfortable in there so hope the stronger stuff does its thing overnight. That's so sad about the other mother :( and difficult for you too I imagine.

Good luck Meerka!! I've been thinking of you whilst cluster feeding Imogen. I really hope it happens soon for you!

C'mon baby meerka!!!

I had my appointment with the midwife to go through my bloods, apparently I'm a negative blood group which...I nodded along but I feel a stupid now as I'm not entirely sure what the implications are of this? Anyone have any insights?

Morning all!

Petit, I did giggle at your dh scrubbing the sofa! Glad you're getting organised.

Meerka,hope something is happening now and so sorry to hear about your friend.

boo, thanks for the info. Good luck with your results. I do think the private lab I use for blood tests anyway would send it anywhere but I'm still undecided. The attitude towards disabled people here is hideous I know but I've had a termination an an mc and I don't think I could lose another one, especially since this one took 5 years to conceive. I also look at my friend's son and think id rather a son like him than no children at all. It's such a tough choice.

Living, that is a victory with the chicken, I couldn't do it! I agree about flying. I know that airport is huge. I have a long weekend away booked in June which is less than an hour and I'm dreading it but both tiny airports though. Yes one of those carts would be great! On the other note, my next scan is 13th may so it's not like I have that long to wait.

Mrsb, it's really annoying when they do that. I don't know what the implications would be either. Maybe it's just a little less common and they don't keep as much in the blood banks but that would be a guess.

Mrsb I think it has something to do with Anti D and whether you need it. I don't know the specifics though. I'm A+ and I didn't need it. Anyone else know?

ho hum, Im back home still looking like there's a pumpkin up me jumper. the next step was a C-sectoin and they preferred to wait.

We try again next tuesday! They've been very supportive though and kept me informed all the way through. Good folk.

mrsB one thing with a negative blood group is that if the mum has the -ve blood group and the baby has a +ve blood group, your antibodies can get confused and start attacking the baby's blood leading to anaemia and stuff. It only happens with a second baby, if you have a +ve baby the first time it's ok, its just you become sensitized. It used to be a problem but isn't really now because it's easy to fix now with injectoins. more info here

hpe everyone is ok

mrsnec it's a very personal decision and you have to see how you feel about whether you want to get tested or not. The only thing I will mention is that the tests looks for Patau's and Edwards' syndromes both of which are incompatible with life. Babies with these conditions are either born stillborn or die within hours of birth. Again this is a personal decision but some people prefer to terminate such pregnancies earlier on. The test also looks for Downs syndrome but can't give you any indication of how severe the condition would be in a particular case.

meerka oh no :( Well at least they looked after you. They are so big on natural birth aren't they here!

I thought the negative was something to do with rhesus as meerka says. They give you a test very early on to look for the antibodies and then you get a second test around 27 weeks. I had a little 'c' come up in my tests which is a tiny indicator that it might be a problem but 27 week test was all clear. Consultant said chances of anything being wrong are miniscule.

Permission to murder neighbours please

Meerka Oh no, you poor pumpkin! This is such a let down. Baby intends to stay inside for a bit. What can I say? Massive sympathies.
Petitelapin I seem to have stupidly missed that bit about the sofa...It mus tbe awful off Ondansetron - I know Kalidasa on here had to use a bowel rinsing out thing she got online to clear the problem.
I hope bile runs have been minimal this morn.
Liviniginzuid Oh dear, have they kept you awake again? May they all get Hyperemesis in a later life!
Booboosto When did you say you got results - really sorry - I must be in a fug today, I can't find that either, how pathetic of me...
xx

Tallyra I meant to say - what's the matter with me today - lovely to hear from you, and so lovely to think o fyuo with a baby after three mc's!
. I really and hopeless today, and no excuse.
xx

Living having lived below a family who enjoyed stomping around on their wooden floors from five am onwards (for five years!!!!!) permission for murder granted ;-)

Aw petit understand your ondansetron pain, the constipation is horrendous (although my vommimg is on the up and I'm thinking about restarting it rather than increasing pred :-(

Meerka how frustrating....presumably they are like us and don't like to do CS prior to 39 weeks unless essential.

I have absolutely no idea how any of you are flying! My car journey limit is an hour, the thought of airports and airplanes with nowhere to curl up if needed (even work has a couch I can lie on.....flight = worse than working)

MrsB if you are rhesus negative you should be given an anti-D injection at 28 weeks which should stop any problems in future pregnancies (if baby is rhesus positive)

I'm working tomorrow, hope the puke fest subsides a bit....

Hehe Lucinda love the HG cursing of neighbours !

Meerka, sorry to hear that, poor you! Roll on Tuesday!

I'm having a reasonably good day today, TLC at my mums is helping lots!

LucindaE results take two weeks but I haven't had the test as such yet. All I have is the gynea's agreement to write me the prescription...now she has to get round to it! I know that sounds bonkers, but that's France for you!

Meerka what can I day, deep breaths, loads of chocolate (if you can stand it) and best of luck.

Bawling my eyes out at 'protecting the parents' and feeling sooo sick. How are you doing meerka and lucinda at the hg curse! punk do has made a complaint and we can only keep our fingers crossed. They have a leak which has completely destroyed the bathroom ceiling and we can't get hold of the landlord to fix it. And I want to vomit again. Oh well :)

Hi all
Sorry have been away for a while been locked out of mumsnet all week due my own disorganisation! Good luck for tue meerka!

Thanks for the info ladies, I feel less worried now

Oh meerka how frustrating! Fingers crossed baby decides for evacuate of its own accord before Tuesday!