Hyperemesis Support

[LucindaE]

We need a new thread.

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

hello all.
feeling miles better today in hospital. there was some blood in my vom so they are doing some tests and keeping an eye on it.
rjn hope things are progressing.
becca not sure how far gone you are but both pregnancies i had brown blood at about 7-9 weeks and all fine with both.
hello to everyone else. hope all is okay xx

Becca Hugs. It's so nerve wracking. That it has turned brown, not crimson, is surely a good sign?
Feekerry Glad you feel a bit better now. As below, mother hen was alarmed and flapping that the blood in your vomit was brown, a sign you needed checking out urgently it's meant to be a sign of bleeding from the stomach, and I am so glad they did tests.
Someone was eating iced gems the other day and the scent od them made me heave even after all these years. Keep well away from them, everyone...A shame about that fudge brownie.
Lucinda
xx

Today us a really bad day for me too :-(

I've not managed to eat or drink much but the one thing I did eat (a few bites of muller rice) a few hours back, with no warning at all I have just thrown up.
I just made it to the toilet in time but the place now stinks. I don't think its ever smelt it so bad.
Im never eating that again. It's too bad cos I've been surviving on them, yoghurt and fruit for weeks. It doesn't leave me much.

Losing weight still and it's becoming quick again. Another couple of pounds in 2 days. I fear I'm becoming obsessed with my scales as I know weight loss isn't good right now but can't stop it.
My husband laughs and tells me now I know how to diet when I do want to lose! I could punch him!

It's so depressing cos surely it should be getting better by now at 14 weeks. I'm undecided as to get in touch with the midwife or not.

Sally Hugs, poor you, throwing up something you could eat before so often seems to be the end of being able to eat it, it's such a pest. Unfortunately, with this delightful thing, it does tend to linger much longer than normal MS generally, though some are lucky. From what I've seen iit's only the lucky ones who get relief at 13-14 weeks with a lot of people finding somewhere between 16 and 20 weeks is the time when they suddenly start to feel human. Even those who suffer throughout are only rarely as bad later on as they are in those first dreadful weeks, though. Sorry to deliver this rather grim news. Once you get a few good days, its a sign of that turnaround coming. The weight loss is worrying, but think of how waves one of the worst cases on these threads, had a baby who was a fine weight and try not to worry. Always worth phoning the midwife for reassurance, though.
Lucinda
xx

Just dropping in to say hi and sorry for long absence, but work, child, HG research are taking up the full 24 hours a day. I just wanted to let you know about updated Clinical Knowledge Summary from NICE, the link is cks.nice.org.uk/nauseavomiting-in-pregnancy It's a huge improvement on the former version and actually recommends lots of medications including ondansetron, and says explicitly that a woman's quality of life must be taken into account when treating nausea and vomiting in pregnancy. These are not very indepth guidelines, but certainly soemthing to push in the direction of a reluctant GP, it's NICE, it's difficult for them to argue against it I would have thought.

The Royal College of Obstetricians and Gynaecologists are working on full proper guidelines for the management of nausea and vomiting of pregnancy including HG. I'm on the working group and the other members of it are all excellent, Roger Gadsby from PSS amongst them. The doctor who's heading the group has had HG herself and runs the best facility in the Midlands, if not the UK at Birmingham Women's for treating HG. Unfortunately for you ladies the guidelines will not be out in time to help you, but might help future pregnancies or friends or relatives. In the meantime, you could let your GP know that guidelines are in progress and they could contact Manjeet Shehmar at Birmingham Women's or Roger Gadsby (he's a retired GP and emeritus prof at Warwick uni) for advice on treatment if they think you're just making it up about other women getting ondansetron.

PM me if you want any more info about any of this or you want pdfs of any treatment protocols. Commiserations to all and death to the ginger pushers!

Well done MOH! That's a great thing to be involved in. I remember reading about that clinic, it sounds amazing. Ladies could go every day for fluids and rest and have fans blowing on them
Care for HG is poor. I've been lots more assertive this time (and so far not as ill touch wood), and I still don't have what I want.

I am
Just desperate for someone to offer me fluids. Yes I have my ketones under control, but it is SUCH hard work forcing myself to eat and drink when I feel like death.

Today has been bad, still throwing up now, but at least the bleeding seems to have tailed off somewhat!

So much for my postitive mental attitude today! Lots of heaving, vomiting and horrendous nausea all day. Hardly eaten or drunk anything so unsurprisingly the ketones are +3. Feel miserable and tired.

I can see a hospital visit in my future if this keeps up.

Hugs to all - this is really no fun at all.

Oh bad luck Jen. It's rotten isn't it.

I have just had a big blub on DH, and convinced him that we should tell his mum (who lives near us) as I really need some help, and I know she will help out if she can!

Sorry to everyone having a particularly horrible day. At least it's not quite so hot. Jen Oh dear, as you know, that is the level at which you have to think about admission. Sorry, but don't lead it too long because mental confusion does come as you get more dehydrated, I suppose the brain gets dehydrated too, and one doesn't seem to be able to accept how ill one is.
Hugs to all. Things will get better.
MOH Thanks so much for coming on and encouraging news. You are one hard worker...
Lucinda
xx

A bit behind the curve..... but CONGRATS! to waves You're a few weeks ahead of me and I'm so glad it's all over for you as it's been such a roller coaster.

I'm just checking in again to have a complain. I've been so lucky that I've been relatively normal-functioning since about week 16 (now 33wks). People are always asking me "Oh so you're over the sickness now?". It's so boring to always have to answer "no, I feel hideously sick 24/7 and every now and then I get the pleasure of being sick too". Apparently I hide it well and don't complain- does anyone else get "accused" of doing that? I don't know what else I'm supposed to do? Mope about going I feel sooooooo sick all the time?

I've had a bit of a tummy bug the last week or so and now getting carpal tunnel (alongside general pregnancy symptoms and a bit of SPD, plus constant 24/7 nausea). I've been working at home in between trips all over the SE area for meetings rather than going into the office and feeling guilty for not going in :-S. Less than 4 weeks left now though!

Flo Hugs, lovely to hear from you. I'm so sorry sickness is holding out to the end, that is so horrible, how have you ever managed all those train journeys? SPD is so unlucky, if you weren't bed ridden, surely? What, excuse ignorance, is carpal tunnel syndrome? It sounds awful, whatever it is! I don't know how you manage to appear normal, or look normal, either. Are you a make up expert? Not much longer for you to suffer, thank goodness. Are you still on the meds with them doing nothing for the nausea, but keeping the puking down?
Lucinda
xx

hello ladies. hope all is well.
becca any news re the bleeding?
rjn are you in labour yet????! really hope the end is nearing for you!
sally sorry you feel shit. please don't worry re weight loss. can i tell you a fact to prove how amazing your body is at looking after babies..... well believe it or not despite having +6 ketones at times and literally not eating or drinking for days on end and losing tonnes of weight (i am pretty skeletal now tbh) my body is STILL producing milk for my 16m dd. my body ( tho i have just stopped bf) can still sustain another human being if required. even tho at times have been quite seriously ill. your body will do whatever it has to to sustain your pregnancy regardless of weight loss/sickness!

Hey fee - only 35+5, so hoping I can eek 9 more days so I don't have hospital panic. Been contracting for weeks it feels like, and on Monday they were at a 50 on the TOCO and every 7-8 mins. More monitoring tomorrow. That said, I'm definite now that my plug is gone, and cervix is no longer posterior, as well as having thinned and started dilating.

Still being sick and very nauseous, however (oh yes!) I put on 200g this week! And I actually have a bump. Someone today asked me when I was due (in mothercare returning stuff) and I asked her to guess... She said Oct/Nov. I laughed. I had to.

Oddly feel like eating ice cream and golden syrup... Might have to send DH out...

RN my nephew was born at 36 weeks exactly in February and they were out in less than 24 hours, quicker than I was, so even if you only make a few more days you'll probably be fine.

That's reassuring. My brain is stuck on 18/08 (and has been since Feb!), so we'll see. Just want him to be an ok weight! Scan on Weds, so we'll see!

Hi all!

Bleeding seems to have tailed off. Cyclazine also seems to be keeping the vomiting (if not the nausea) at bay!

Still taking it very easy, which I think is helping!

Hang in there RNJ - and enjoy the ice cream!

Hi all

Fee- thanks for the reassurance, weight loss is kind of at the back if my mind now, due to lots of other problems.

I've now got a bad eye infection, no idea this that came about. Woke up this morning and bam! Red bloodshot eye with a big lump that irritates when I blink. It's not been long since I got rid of the ear infection :-(
Also, yes another! Had to go do a urine sample for midwife as we think I have a urine or bladder infection. This would explain the horrid pain and cramps I've been having and strange or lack of peeing habits.
And yes still have the sickness bad, breathless all the time and a blocked nose 24/7. All due to pregnancy apparently.

It's really not fair, I think I've had enough symptoms, complications and illness to last a lifetime and I'm only 14 flippin weeks.
Don't understand it at all, my house is as sterile as it could be (yes im ocd with cleanliness) and not going out, so how come I'm getting constant infections.

lucinda-carpal tunnel is something to do with restricted blood flow to your hands in particular (with increased bloodflow in pg this can occur), so when I wake up my hands don't work for ages and are really stiff like I'm an old lady :-S

Still on the promethazine, but happy in the knowledge that I've only got a maximum of one more prescription to come!

I'm definitely the kind of person who keeps busy to take my mind off things, then gets home and collapses in a tearful heap because I'm sick and tired! Not ideal but my coping mechanism!

sally please don't blame yourself- there seems to be no rhyme or reason to any of this!

Feekerry Are you out of hopsital? Cluck, cluck, flap, flap, Jen did you get down those ketones?
Sally That sounds awful, I think the lack of fluids makes one liable to bladder infections, and as for the other infections, I think one's immune system is compromised by this, so you can probably get something just from OH having been out.
Champagne LittleMachine and Becca How are things? Becca I'm glad that the bleeding stopped.
RNJ I remember them saying at the pre natal classes all those years ago that thirty six weeks the point at which they are not that bothered about early births as long as the baby weights five pounds as the lungs are fully developed, so hopefully in a day or so, all will be well...
Flo You are being too brave. I honestly think people on this thread are too nice and considerate, and try and avoid puking in front of people who actually might learn something by it. It makes the point more than a thousand words...
Lucinda
xx

Morning all...

It's a BAD day here. Feeling dreadful, lots of puking. At least iris the summer holidays and I'm not expected to be anywhere. We weren't able to tell the i laws last night as they were out. DH is working late tonight, and wants to be the one who tells them. I do understand, but they are the only ones how are close by, and I am desperate for some help/TLC.

I also have a dog who's just come into season which is really not helping!!

no still in hospital but feeling miles better so hopefully out tomorrow....for it all to start again

sally i think all your other illnesses are prob linked to the fact your body is just very run down at the mo.
rjn sorry didn't realise you were 35weeks. thought you were full term! hang on a bit longer. 35 is a tad early!x

Becca Can only send you cyber tlc, poor you, when you need someone to fetch and carry and proffer liquids and ice lollies, etc. Sorry about bad day.
Feekerry Sorry you are still in there. Are they changing dosage or combination of meds? What were ketones when you were admitted?
Jen I hope not admitted.
RNJ How are you, baby and poor DD? Everyone I hope managing.
Lucinda
xx

I'm poorly but managing thanks Lucinda. Still haven't been bad enough to consider hospital which is great.
Fee, sorry you're still in, I hope they're taking good care of you.
Becca, you've got it really tough, you sound very like I was in my previous pregnancy. Sending you hugs.