Hyperemesis Support

[LucindaE]

We need a new thread.

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH MOP Ovaltine bluebirdsunshine (I think she's changed her nickname) Fluffy, Horsey Kalidasa, Nannyl and Everyone who has given such invaluable support and advice on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

Hi all, checking in from hospital, PICC line seems to be working well, but still waiting for an info sheet on how to take care of it etc.

I half managed 10 days back at work but it was way too much. Still hopeful I'll get back at some stage, but it all depends. I now have IV ondansetron twice a day up here, but nights and mornings are still brutal.

lucinda yes, I'm a channel islander born and bred. Lovely, if expensive place to live. But it's home. We have to pay for gp visits but not hospital here so I'm very relieved that I've just been in hospital care for most of this or I'd be flat broke. And moh I can't fill in your survey as ci aren't part of the uk. Best of luck with everything.

I need to sleep now, was up having hugs with the loo til about 3 then had to chase the DCs to school so feel exhausted

Good luck MOH doing a Stirling job for those of us too weak and ill to stand up for ourselves. Let us all know how it goes. Feeling slightly better this morning thank goodness. Yesterday was a tough one.

Gooduck MOH, although it seems you've got it well in hand. Sounds like a gigantic step in the right direction. U haven't filled in the form because I simply can't remember specifics. I'm sure I did experience negativity but the majority of my treatment was good here so I must have blocked out the bad stuff. it's bad enough feeling like crap, so when someone belittles your efforts it must be absolutely heartbreaking and deflating. I really was so out of it most if the time, I can't imagine how all of you are managing to work as well!!
Lucinda I'm still waiting to hear about an appt. re-faxed the letter yesterday in case it didn't make it. I'm amazed at the vagueness of the letter though. makes my worries seem so trivial and doesn't even mention the hg - I know it's a separate medical issue, but it's very important in my decision making process!

Just wanted to report that I saw the duty doc this morning to get help my increasing nausea and vomiting and say I wasn't coping (7 weeks, been building for last ten days).

She was great, tested for ketones which were present but not terrible and straight away prescribed prochlorperazine. I've used it before for vertigo so I'm hopeful that this will bring things down to a copable level.

Seems like at least my GP surgery has got the message that early treatment is best!

Welcome to the thread ladymedea and to the joy of HG in the early days. I'm 8 weeks and been suffering since 5 weeks plus. Hope your meds work. Mine been good for a week but very on and off and starting to feel increasingly worse. Hang in there, this thread is a fab support.

LadyMedea Love that name- according to Robert Graves she was maligned by patriarchs saying she killed her own children by Jason - welcome, here's a pile of cushions, glad you were taken seriously, excellent to hear good news about early treatment before that dismal dehydration -collapse - admission - grudging giving of cyclazine that so often follows from desperate visits to GP's surgeries.
Honeymoon Did you say earlier you were on stemetil? Worth asking for a change, of course, if the puking begins badly again, but I so agree the sick feeling is almost worse.
Waves I have never been to the CI but I am determined to see them sometime. I am speechless that you went back to work, can't even cluck - how did you have the energy and what is the world coming to if you were pressurised into doing so when you are so ill. You didn't pass out? How goes the lodger situation?
Tallyra After three miscarriages, I've read that the chances are about 85% in your favour for a successful pregancy, overwhelmingly in your favour, but it's nasty and nerve wracking and I think people should take
your fears seriously, particularly with Hypermesis. I think Kalidasa who used to be on here and was the worst case I had encountered until Waves had three early miscarriages...Her boy's some months old now.
Apologies to anyone rudely ignored.
Lucinda
xx

Hi luncinda I'm not on stematil as went back into hospital and was given ondansetron on top of cyclizine. Spoke to my gp today who said she can't alter the dosage of ondansetron and I need to contact hospital but I have no number or idea who to ask. Shall I ring ward I was on? She said I'm afraid its crisis management now and nothing they can do unless I'm so sick or dehydrated I need admission but to call anytime if I felt this was the case. Basically I just have to suffer through it as we all do.

Afternoon ladies.

Internets been down so I've missed you lot,

Got discharged on Saturday. No new meds lucinda but the advice that I should be taking both the cyclizine and metochlopromide and not just one to manage it myself, however, I'm feel SOOOO much better. 14+2 and things are definitely improving. My energy levels are up and I think I'm out the other side. Been late with meds a fair bit and no repercussions of it whereas before it would send me into vomiting hell.

There is light at the end of the tunnel. [grik]

Teleconference went really well, a great group of people who want to get good guidelines out as soon as possible. I'm going to ask what the timescale is, there are several steps in the process still to go through and evidence gathering will take time.

honeymoon no harm in calling the ward you were on, that is what I was told to do. I am sure they will be able to put you through to the right place / person if its not the right thing.

really happy to read that you might be seeing the light at the end of the tunnel hayle

welcome ladymedea if that's the right word. I have had lots of good advice from the lovely people on here, I felt quite lost beforehand!

Hello, I'm in pain from PICC line today. Apparently this is common so I have to try hot compresses on my upper arm. Paracetamol recommended too but the vomiting just started again so I'll see if I can get something on the ward tomorrow.

lucinda i did pass out at work yes, another reason I'm signed off again. My blood pressure is not great though, the lower reading refuses to go above 50, so I seem anywhere between 80/40 to 100/50 at the moment.

I have had enough. Just managed to wee myself whilst vomiting hard, and earlier had to use ky jelly to get my own poo out. It is making me feel like a disgusting freak. My teeth are stained but i can't get dental treatment with the picc line in apparently. Not that I have the energy to make an appointment let alone attend one!

I hate this.

Poor poor you waves the degradation and discomfort we have to go through. It's just awful. haylebop you are my new inspiration! Just had booking appointment with lovely midwife who came to my house and DH home tonight. Managed some cheese on toast ????? !!! For lunch, the most meal like think ive had in weeks and generally feeling but better. Small gains people, small gains, it's all we have. Hope you all get at least one soon x

Waves I feel for you. Yes, it is degrading and horrific. I cannot manage without ondansetron though so sometimes I just have to deal with the constipation. I am not ashamed to give (graphic) advice on here because I personally think that ondansetron is so useful for HG but we need to be honest about the side effects. I really wanted to be off of it weeks ago but at the moment, it is the least if my worries. They are being really good with regularly offering me ondansetron in whatever form I can manage and were lovely when they had to bring me bowls last night while I was contracting (again, sigh).

Keep hanging in there ladies. And thank you to MOH for fighting our battles. I'm having great care this time but I know how rubbish the care can be.

Hayleybop12 So glad you feel a bit better - lovely news.
MOH More good news!
Waves Hugs, avoiding picc line, poor you, I did a lot of that simultaneous peeing and puking, it's awful, 'Lucinda E can't have a puke without having a pee' - the KY jelly was a brianwave if you haven't got any of those suppositories.
Room No tmi on here, can't be - be as graphic as you please with advice.
Honeymoon Contacting ward seems good idea as Tiredfeet says. Congratulations on cheese and toast.
Bodo Very quiet of late...
LadyMedea How are you?
Lucinda
xx

Room How could I have missed that bit about your premature labour, poor you, how nerve wracking. Someone else on here had that, they managed to stave it off for some weeks. Are the bowls for puking or the other end?
Lucinda
xx

Hayle glad you're feeling better.

I swear...if my DH tells me one more time it just sounds like something got stuck in my throat when I'm dry heaving stomach acid, or rolls his eyes & shrugs when I say I've been sick. I'm going to kill him. & now he's sulking because I don't know what I might be able to eat for dinner. He just doesn't get it :(

Waves poor you, I was hoping tehe picc line would become more comfortable, not less. I hope it improves soon. I am totally with you on the indignity of it all, have had the vomiting/peeing problem too! the only thing to cling on to is that it will pass one day, however far away it must feel right now

room how are things going?

boy that's rubbish for you, he really doesn't get it! the strange thing is, most people have had a tummy bug or similar at some point so you would think it would be possible for them to at least try and imagine what it might feel like. I think people cling on to the idea that you're 'pregnant not ill' but it is so unjust in these circumstances.

I have found it so much easier not having DH around these last few days! How come his parents are able to be nice and look after me and DS (and they cleaned the house top to bottom bless them!), and yet for DH he is having tantrums when I ask him to delay going out mountain biking till someone can get here to help me.

Hi all, thanks for checking up on me Lucinda. I'm OK. I went back to work on Monday. School have been incredibly supportive. They've said that I can prioritise my A Level classes and they will cover my younger year groups so I can rest up at home. I'm OK but absolutely shattered. 6 weeks of not eating properly has left me severely lacking in energy. Since my 'incident' on Sunday night, I'm a bit scared to go to the toilet! Been trying to drink more and eat more fruit. Just sent my hubbie to buy dried apricots... thanks for the tip! I've tried cutting down a bit on my meds in the last day or so. So far so good. Still nauseous, but managing to keep food and drink down thus far. Taking a day at a time. Love to all. Well done MOH for all your hard work.

tired and boy my DH is back tonight meaning my mum leaves and even DS1 aged 4 said I don't want daddy to come back I want granny to look after me! Mum has been so fab and I'm sure that's why I've managed to eat a little since she has been here. I do love DH dearly but he is a rubbish carer!!!! Men!

Lol honey maybe it's just not in many of their natures (I'm sure some men are fantastic carers). They think provide - hunt - procreate not 'hold hair back and rub back whilst hurling' :p hope you manage ok now your mum's gone x

MOH well done, I am so glad someone is fighting for us outside.
Waves I hope the PICC line feels better soon. It sounds like they are taking your situation very seriously at least.
Room, that must be very stressful for you. I hope you manage to hang on in there.

Yesterday I had my first 'work' conversation in 6 weeks or so. It was short and casual but I found it exhausting. Still, things seem to be improving as I can eat 5 different things and am going to the hairdresser today (haven't had strength to wash hair, so it's been well over 3 weeks, yuk!).

poll great news about feeling better. I'm so sick of toast and toast based food. Also of HG mind games ie feel ok one minute then like death the next. Can't plan anything and I too am in desperate need of grooming-though as I'm not currently leaving the house what does it really matter? Urgh roll on an end to nausea. So so grim.

Poll You're back at work too - another - everyone goes back too early ( I don't think people should have to go back until the baby is months old if they've had this for more than a few weeks). But what was the incident you mention that makes you scared to go to the loo, can't find the reference, I may be being obtuse.
Oh dear, I think men are hopeless carers too. I bet they could develop the pathways in their brains (mean joke - their what?) if they tried to do it enough times, though...
Room How are things? Everyone?
Lucinda
xx

Hello everyone. I have had a rough day, although I have not been sick I have been on the verge all day. This is a very retrograde step, I have been feeling really well. Then DS comes home with a sickness bug, threw up in the car and then twice since getting home. What are the chances I will escape? My sense of smell/nausea has suddenly got really sensitive again too.

Oh no humphrey I'm just the same, half a step forward then back to musing in bed feeling so nauseous I can't think. I managed to escape our puke bug last week but pretty much stayed right away from whole family. Fingers crossed you are spared/ feel better again soon.