Really quick help needed

[xkatyx]

Hi, kick run down

I'm 30+3 weeks with identical twins

Have Been adamant my waters were leaking since Thursday they said not.

Fast forward today I have a scan and twin 1 fluid is reduced and I'm showing signs of infection so they may be delivering babies tonight

To say I petrified is a under statement I'm so scared I suffer from panic attacks as it and I feel like I can't catch my breath at the though of it

I have got my self in a state please help calm me down, keep my mind off it untill I have to go :(

Hi Katy

So, are they saying your waters have or haven't gone?! They need to clarify this as surely if they have you need to be delivered?

You need to make a nuisance of yourself, you are a high risk pregnancy and I'm not sure all midwives even understand the difference between MCDA and DCDA twins so you need to keep pushing to be monitored, AT LEAST weekly.

I made a giant pain the arse of myself the week before my girls were delivered, I knew something wasn't right, but not what and they kept trying to dismiss it as a UTI and send me home. Not to put to fine a point on it, if I hadnt of been in hospital when they made the call to deliver it could have been a very different outcome.

xx

Er, I'd day not Katy, protein in your urine because your waters have gone?! Well surely you need scanning again and at least weekly appointments.

I know its really hard, but i think you need to make a nuisance of yourself, like silver said. silver how did you know something was up? I'm worried about this, and getting rubbish care at the end, as Katyseems stuck with. How are you managing with childcare too Katy or do you have to take your youngest in with you when you go?

Katy I'd demand to be scanned today and at least once a week (although if be pushing for every other day). If they are not playing ball go to the hospital PALS service. I thought they said there was no sign of waters breaking? Now they are! You are getting mixed diagnosis and poor care and your little girls are too important to risk - i think it's time to start stamping your feet a bit.

Here here!! What bb3 said!!!!

Hi everyone , right I'm up the hospital now demanding answers!!!

I have told them how I feel and she listened and said that I need a consultan to explain exactly what is happening.

The ony prob is the last consultant I saw who apparently is the top one is the one who they listen to, he told me waters havet gone and only wants to see me once every 2 weeks and wants me to go aslong as poss even past 38 weeks :0/ so I don't know how it's going to go

But Katy, the new NICE guidelines say 38 weeks for dcda and 36 weeks for mcda or placentas can start failing. That's not right!!! They're on internet for anyone to look up, and are new out, but they are what everyone pg with twins should be following. my consultant said shed let me go to 39 but I am certain in my head I'd fight that, plus she did say could have elcs if struggling at 37.

Good luck standing up for yourself, and you can still ask for different consultant even if he's top dog.

They told me they hadn't last time- top male consultant. I thought he was wrong and i was right- he changed his mind 24 hours later

Will keep fingers crossed for you, but don't leave until they've scanned and found both heartbeats at the very least. It's your body and your babies and you are the one who is best placed to know if something is up. Keep fighting

Hi, I'm back home now, basically been told to ignore all other advice and directions etc and to go by the "top" consultant plans.
She said no one will change the plan because he is high up etc.

So I now atleast have a plan so next wed I will be havin words with the consultant. I have also printed out the twin guidelines etc so I shall be taking them with me too.

Hi Katy, Another Jan mum dropping by to wish you strength, health, calm and HCPs who listen to you! Did they actually scan you yesterday?
Glad you've got this far - every day in there for those little girls is helping them. Keep strong xxx

Had a word with a few friends who has alot of experience with consultants today and they all said the one I have is awful awful awful!

I called today to try and make a app with another one but no luck, god just my luck .. I am really concerned as I dont haw faith in him either

So glad to hear you've decided to fight this decision and get a 2nd opinion katy - I am always wary of any HCP who disregards the patient's feelings so completely. Keep fighting and best of luck.

May I ask what hospital you're under? Or at least what area of the country?

I'm at royal Sussex county hospital in Brighton.

I have never had any problems with them before with my other babies, it's like a completely different hospital.

I wouldn't trust a consultant who.totally disregards the new guidelines designed to help women have healthy and safe multiple pregnancies. Even if that's leaving things as they are til 36 weeks with twice weekly appointments if he must- though seems silly to me when you've had so many worries and issues so far, I could understand that but 38 weeks or longer!!! Wtf!?! It is your right to seek a second opinion or change your consultant, what did they say about not changing?

Gosh, it all sounds so stressful, you're not selling the end bit well . Joking aside, I'm cross at all the extra stress you're getting on top of an already difficult pg. Stay strong. Xxx

Hi katy just dropping by to say I'm sending you lots of positive energy and hoping you manage to get a consultant that will listen to you! It always surprises me why these people get a job that it is so intrinsically related to having good rapport with someone (aka patient!!!) and then they chose to give orders instead of discussing possibilities....keep at it! It is the only way they will listen to you. Hugs!!!!

Go back if you are not happy, can i ask which consultant it is?

you're entitlted to a 2nd opinion. I didn't like my conultant either as he totally disregarded my thoughts/feelings, so I asked to be referred to someone else, now I am with them for all my appointments.

demand a 2nd opinion from another consultant, they can't refuse - Esp when it's such a high risk pregnancy!
They see so many women and treat them all the same, they will not remember you kicking up a fuss or think anything of it, so don't worry about how you're coming across! TRUST YOUR INSTINCTS.

fingers crossed for you!

I wish it was that easy really i do, splats Ty they have tip consultants for different problems etc. The one I have is the top consultant for twin pregnancy and I have been told that no one will disagree or change the plans he has made!! BUT I have my print out of the new guidelines for twins .. I know my babies would be better off till 37/38 weeks as such but they have guidelines for a reasson. I'm not willing to risk it.

I will be demanding babies be out by 36 weeks and no later!

Working dates out today, it works out I will be 36 weeks on 17th dec, kids break up from school 16th completely typical. I would love to of have some organization and feel like I have some controll over situation like kids vein at school safe and happy then hopefully pick them up to visit us.
But things aren't goin to work that way.

I was thinking maybe asking to have csection 2 days earlier on the Thursday but I seriously doubt they will.

Change hospital. Seriously. I've only heard bad stories about care at the Royal Sussex so I opted to give birth at the Princess Royal in Haywards Heath instead. The care I received was excellent and attentive.

If that's really not an option for you then be strong and demand better care. Sending you positive vibes!

I will have to stay at Sussex as babies itcu is fantastic one of the best, just incase babies need to go there.

It's just the dam consultants, the midwives are lovely and because I have been there so much I seam to know most of them so there is always a lovely friendly face. Like I said I had all my other babies there and beer had a problem BUT obviously different situation with twins etc.

If I could see another consultant I would be happier but they all do what this (exscuse my language) knob head sais!!!

I feel completely wiped out from it all. I'm
Exhausted my body is shutting down on me bit by bit, I look awful and just constantly worryin all the time. I'm so nervous about my scan on wed I wish I was having one every week (like they said I should be having) :(

Feeling really sad and down

Katy when you go on Wednesday ask to be seen the week after as well. Tell them you understand their position but don't feel comfortable risking the lives of your twin babies without weekly updates x if they say no ask them to put in writing the reasons they don't feel it necessary / won't allow it so you are able to use this in any future correspondence / issues (hopefully they will see that they will be held to account and give in!). It really might be worth having a word with the hospital PALS about the problems you've had as they can put pressure on them internally also x

you are right Katy, scbu is marvellous there, my two dc would not be here if it wasn't for Trevor mann unit .

Thank you bb3 I will defenetly being doing something if I don't feel happy after Wednesday.

Trevor mann are amazing my little girl was in there also, abs my nephew wouldn't be here without them.

How was today's appointment Katy? I hope you feel better and are more reassured. Let us know if you can. Not seen you on the twins thread for ages either! Hope you and babies ok. Xx

Hi, I'm still going strong :)

Had a scan yesterday baby1 weighs 4lb 3 and baby 2 weighs 4lb8 lots of fluids, all seams good.

Today I ha consultant who was indeed very nice today. I signed my section consent forms (eeek) and have been booked in for 21st dec! I will be 36+3 I really hope the babies are well and we can all be home
For Xmas!

I'm so nervous about it all.