:) Jabber
I have a theory about ds at teh moment. Taking him to GP again on Tuesday and hope they agree with me! He still doesn't get the wee signals. The fibrogel means he poos and he poos easily, no discomfort, not hard. Fine BUT he still only poos every 3 days and because it is fibrogel and designed to bulk them up they are massive. We only have him on half the prescribed does because full does means he still poos every 3 days but they are bigger. My theory is that his bowls just have not been able to return to normal size because of these massive poos (and I mean frequently have to be broken up to be able to get them down the loo without blocking it) and that means that as it builds up he still has lots of pressure on his bladder and so still has lots of wetting accidents. Currently he poos, frequently then soils soon after (I suppose everything really stretched) then next day is fine an dso long as we sned him ot the loo frequently he has a day without accidents. Day 2 is mostly good, he is a little more resistant to going to the loo and may have an accident or 2. Next day he wets himself about 4 or 5 times at least, refuses point blank to go to the loo when asked, I end up leaving him naked at home to avoid more laundry but he will still be found with wee dribbling down his leg and no idea he is doing it. Finally that evening he poos and we start all over again. We are still off dairy but tbh I'm not so sure that is doing anything, on occasion a friend has invited us for lunch and forgotten or I've run out of goat milk or cheese and he has had cow and I've not noticed any difference.
Any input form Jabber or AQ before Tuesday would be great! I'm going to ask that we try Movicol to try to keep the bowls moving without bulking up. I am dreading the start of school at the moment.
Wedding today. Today is day 3 in our wee/poo cycle nad attempts to get him to do a wee so far this morning have resulted in a tantrum. Wish me luck!