Dear Mr Brown,
I am the mother of a lovely 4 year old girl, who has a brain malformation called Cortical Dysplasia. She is globally affected, although she can walk and talk. She currently receives High Rate Care of Disability Living Allowance, has a Blue Badge and has 1:1 at preschool. In September she will start at a brilliant Special School, after getting a Statement of SEN.
When Social Services came to assess our need for respite care, we had 3 children under the age of 4, and DD1 was sprinkling sand into the eyes of her then 9 week old baby sister, and was generally very hyperactive (the norm for her). The social services report stated that she was an 'active child who enjoys adult company' and denied us respite care or any access to a named social worker for Support.
We are not alone in experiencing the denial of Social Services assistance for our disabled child. It horrifies me to hear that there may be plans to replace DLA with allocations to Social Services for Direct Care packages. Many of us know already that even the most severely affected disabled children (quadriplegic, visually impaired, etc) get very little support, and every hour of respite is fought for.
PLEASE, PLEASE reassure me, and many others, that you would not strip our children of the only thing that enables us to function as a family?