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Petitions and activism

Heart failure

61 replies

TurnipTheHeartBeet · 05/03/2021 10:06

I know people get fed up of petitions, but please consider signing and sharing this. We need about 1500 more signatures to hit the 10000 target for a government response.

petition.parliament.uk/petitions/551283

I have heart failure after having cancer treatment, and it took months to get my HF diagnosis because of delays in testing. My cancer was diagnosed on the two week pathway but what I have now is actually more serious (my cancer didn't spread), but took longer to be diagnosed.

I've name changed for this but I've been around for years.

OP posts:
TurnipTheHeartBeet · 05/03/2021 16:06

Hopeful bump.

OP posts:
spiderlight · 05/03/2021 16:52

Signed and bumping for you.

RandomMess · 05/03/2021 16:56

Done

Houseofvelour · 05/03/2021 17:05

Done xx

TurnipTheHeartBeet · 06/03/2021 09:38

Thank you to everyone who signed. If you see this and you haven't signed, please do. Flowers

OP posts:
RandomMess · 06/03/2021 10:20

.

peachgreen · 06/03/2021 10:29

Signed. DH's heart failure diagnosis took months because the GPs he had phone appointments with treated him for everything else (asthma, chest infection, reflux) rather than refer him to cardiology, despite his mum dying from heart failure. He didn't get diagnosed until he was at crisis point and ended up in ICU on a ventilator and in an induxed coma. He died from sudden cardiac death at 42, almost 2 months post-diagnosis. I'll never know if an earlier diagnosis could have saved him but it almost certainly would have helped. It's atrocious that people are having to wait so long - it should absolutely be treated with the same urgency as suspected cancer.

Sending you strength OP.

TurnipTheHeartBeet · 06/03/2021 10:47

I'm so sorry to hear that, Peachgreen. I can't imagine how hard that was for both of you. Flowers

No-one will tell me what my life expectancy is, but I can google, and I'm not an idiot. I won't make old bones, but I've always known that.

OP posts:
Bremusa · 06/03/2021 10:51

Signed Smile

Ihoeihoeihoe · 06/03/2021 10:57

Signed for you x

Rupertpenrysmistress · 06/03/2021 10:59

I am sorry to read this, it's awful. Signed.

tilder · 06/03/2021 11:03

I've signed.

Crunchymum · 06/03/2021 11:05

Signed and shared.

My mum died of natural causes but heart failure was listed on her death certificate. She dropped dead in front of my dad and sister. She wasn't young but nor was she old (65)

@peachgreen I remember your threads, I do hope you and your little one are coping as best you can.

@TurnipTheHeartBeet I hope you get your signatures and I hope you manage to get the treatment you need to be well.

Muffinbutton · 06/03/2021 11:06

Signed

Olinguito · 06/03/2021 11:54

Signed - I lost a parent to heart failure. I hope you get all the treatment you need without further delay.

Silvercatowner · 06/03/2021 12:40

Signed

Ballbagisnotmyname · 06/03/2021 12:50

Signed xx
Hope you get the treatment you need, my father had HF, when he was eventually diagnosed the doctor just casually mentioned it, his treatment was delayed and he passed away before they did anything, I actually had his cardiologist call me after his death apologising that they couldn’t see him sooner

magimedi · 06/03/2021 12:54

Signed.

peachgreen · 06/03/2021 13:47

@TurnipTheHeartBeet During the time DH was ill I met many people who had lived with heart failure for decades or had gone on to have a transplant. I do believe treatment is improving all the time and I hope you benefit from that. Flowers

peachgreen · 06/03/2021 13:48

Thank you @crunchymum. We are plodding on. DD is an absolute angel and doing SO well.

aibusux2u · 06/03/2021 13:51

Signed

talkingdeadscot · 06/03/2021 13:56

@TurnipTheHeartBeet

I know people get fed up of petitions, but please consider signing and sharing this. We need about 1500 more signatures to hit the 10000 target for a government response.

petition.parliament.uk/petitions/551283

I have heart failure after having cancer treatment, and it took months to get my HF diagnosis because of delays in testing. My cancer was diagnosed on the two week pathway but what I have now is actually more serious (my cancer didn't spread), but took longer to be diagnosed.

I've name changed for this but I've been around for years.

Just wanted to say that I'm in exactly the same position as you, rubbish isn't it. Already signed the petition Flowers
Soulstirring · 06/03/2021 14:06

Signed

Isababybel · 06/03/2021 14:32

Signed

TheCatWithTheFluffyTail · 06/03/2021 14:33

Signed. Flowers

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