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Petitions and activism
Original poster

To think the amount of members on this site we should be able to help hit the 100000 target

53 replies

gemand3 · 13/11/2014 02:43

Put here for traffic is also in chat.
A gorgeous little boy in my area was diagnosed with krabbe's disease at 6 months old, he's now 11 months old and two days ago went into a hospice.
A petition has been set up and to make a difference 100000 signitures are needed.
Krabbes disease could be screened for during the heel prick test and treated if caught before the symptoms appear. It is currently not screened for in the UK. Neither are over 50 other disorders that could be screened for.

The UK currently screen for 9 disorders. Other European countries screen for up to 29 and American States screen for 31 to 60. The UK is so far behind and our children have and will continue to suffer because of it.
So please please please could you sign the petition so hopefully another family don't have to go through this thanks.
you.38degrees.org.uk/petitions/save-babies-through-screening?source=facebook-share-button&time=1415210164

OP posts:
OP posts:
MollyHooper · 13/11/2014 03:58

Signed and shared.

Eastpoint · 13/11/2014 07:05

Signed & posted here to bump it up

antimatter · 13/11/2014 07:07

signed and shared

londonrach · 13/11/2014 07:20

Signed

Ujjayi · 13/11/2014 07:25

Signed & shared.

fluffyraggies · 13/11/2014 07:33

Signed.

Shocked actually.

stephanielittl7 · 13/11/2014 07:38

Signed it.

QuietNinjaTardis · 13/11/2014 07:39

Signed

Original poster
gemand3 · 13/11/2014 08:15

Thankyou

OP posts:
HonoraryOctonaut · 13/11/2014 08:29

I'm really sorry to hear that your son is so poorly. Signed.

Original poster
gemand3 · 13/11/2014 08:36

Thanks
It's not my son, it's a little boy in my area and his parents set the petition up to try and stop other family's going through similar

OP posts:
KnackeredMuchly · 13/11/2014 08:40

Signed

PrettyPictures92 · 13/11/2014 09:22

Signed and bumped

CorporateRockWhore · 13/11/2014 09:25

Signed and bumped. Poor little boy, how awful.

Thehedgehogsong · 13/11/2014 09:30

Signed!

TestingTestingWonTooFree · 13/11/2014 09:41

Signed

APlaceInTheWinter · 13/11/2014 09:44

Signed and shared. So sorry to hear about the little boy in your area Flowers

APlaceInTheWinter · 13/11/2014 09:55

gemand3 have you contacted the local media (only with the consent of the family of course!)? They would help to publicise the petition for you and you'd have greater chance of it being picked up by the national media then too.

Original poster
gemand3 · 13/11/2014 10:08

Hi aplaceinthewinter I know the local radio station has picked it up not to sure if any press have been contacted I know a certain morning tv programme had been contacted but they weren't interested Hmm
Everyone local are tweeting and Facebook and getting everyone to share im just trying to help a little by putting it on here

OP posts:
Cannotbelieveit · 13/11/2014 10:11

Signed and shared

APlaceInTheWinter · 13/11/2014 10:19

gemand3 I've PMed you.

ChazsBrilliantAttitude · 13/11/2014 10:21

Signed

bumpiesonamission · 13/11/2014 10:24

Signed, shared on fb. Happy to help

allyjay · 13/11/2014 11:53

Signed.