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Original poster

I dont suppose there is anyone else trying to study with M.E is there?...

134 replies

meandthomas · 07/02/2008 08:38

Hi, I've had M.E for the last 8 years and have good bits and bad bits with it.
I am resitting a module that I didn't manage to complete last year due to ill health and I'm nearly through it this year but my symptoms have kicked off again.

My ds is 4 and a gem.

i just wondered if there was anyone in a similar position..

Sam

OP posts:
Coro · 10/04/2008 10:03

Hi, struggling to keep up with paperwork :-s
I've got my hospital appointment today, which I'm nervous about..

I'm feeling kinda flat but hoping things'll Iron out again soon.

How are you both?

avenanap · 11/04/2008 09:22

We're fine. I've found ds a new school and have told the old one he's not going back after easter unless they can guarantee in writing how he is to be treated. They have not done this yet.

How did the appointment go?

Coro · 14/04/2008 16:43

The appointment went pretty well actually, the consultant I saw was a physio type but there is a specialist ME unit down the corridor so she's going to have a chat to them and work out what the best cours of action is.
She gave me a lecture about how I needed time for myself. She's obviously not a single parent!

I'm glad you've found another school just in case. I hope it works out one way or the other
Ds is back at nursery. He's loving the new house
Glad things are going ok for you.

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avenanap · 14/04/2008 22:12

I'm glad you are both well. Have you looked into the benefits side of things? I'm going to go and see my nice GP when I've sorted ds out. I'm hoping he'll refer me to someone. I'm completly knackered tonight. I can't sleep though. Research suggests that mild exercise can help . I wonder where you get the energy from to start though. I've got a meeting with the head tomorrow, I have no idea why they want one though, given their opinion of ds I thought they would be relieved that I wasn't going to take him back. He's been lovely over the holiday, he's even been playing with my baby nephew. My mum and sister even said how nice and polite he was.

Coro · 15/04/2008 14:44

I haven't had the energy. I'm still trying to sort out Housing benefit for the new place.

I dropped ds off at nursery this morning + went shopping. It wasn't even a big shop and I needed to rest! It's so frustrating.. I hate it.

I hope the meeting goes well. In that you get the result you'd prefer.

avenanap · 15/04/2008 17:14

He's agreed to not allow the two teachers that are making ds's life a bit miserable to tell him off. If they have a problem with him they are to take him to his class teacher who will decide on whether it was a insignificant thing or if he should be told off. Do you think I've gone OTT?

Coro · 15/04/2008 17:19

That seems fine. Hopefully it'll work out in practice
Definitely not OTT.

I'm trying to gear myself up to do some housework. It's at the point where I trip over things!

avenanap · 15/04/2008 17:22

I started a thread asking for help to be diplomatic with the head and they were jumping down my throat. Are a few people on here always like this?

I have a sign in my kitchen "Housework is evil and must be banned". This should sum it up a bit

Coro · 15/04/2008 18:32

I get that impression. I spose it's what happens when lots of women get together.

I read a lot but dont tend to post..

I chat on msn more often than not.

Lol, I always feel much better when it's done. Atm I still havent unpacked lots from moving.. and the groceries are still in the living room, on the floor!

avenanap · 15/04/2008 19:12

Ahh, groceries. I think you are wise not posting. I think alot of them read the last few posts and don't bother to read the rest so have no idea what's going on. Have you seen much of Grandad?

Coro · 15/04/2008 19:45

It's much more interesting to watch most of the time.
That and it can get a bit cliquey.

No, Grandad has drifted back now the initial excitement has worn off.
My brother bless him, keeps ringing me from work to check up on me - he's 21.
I just get so infuriated. I achieve so little with so much effort.

avenanap · 15/04/2008 19:47

Ohh, that's sad. I've got to go now, ds wants to use the laptop. I'll be back at about 9:15 though to see what those nice ladies have been saying now .

Coro · 15/04/2008 21:55

What have they been saying?

avenanap · 15/04/2008 21:58

Nothing very interesting. I can't be bothered to answer. Have you finished tidying up? It's a bit sad about Grandad. I bet he could have been helpful. Are you managing to get time to yourself then?

Coro · 16/04/2008 07:20

That's it isn't it, it becomes not worth the energy posting.

I didnt get going on the housework! Well I put a load of washing on, but other than that..

Yeah Grandad could have been helpful. Hey ho really.
My brother has taken to visiting a lot of the weekend and usually gives a hand tidying up and stuff. Always changes ds bed and things like that. Which helps, as for time to myself, I haven't got the energy to do anything positive to help myself be well. I have time during the day when T is at nursery but I have so many things that sap my energy, like grocery shopping. I think I might experiment with online shopping and see if that helps at all.

avenanap · 16/04/2008 18:55

Online shopping's a great idea. I used to use Tesco but they tend to deliver alot of things that are close to their sell by date. I get a big box of organic vegies delivered every couple of weeks, this saves having to carry them home. Your brother sounds like he's a big help for you. Cleaning can be exhausting. Swimming's good if you fancy trying the exercise theory.

Coro · 21/04/2008 19:35

Sorry it's taken me so long to get back to you. It's been quite busy this weekend and I'm paying for it ( as usual) now.

I'm doing shopping online this week.

How are you?

avenanap · 21/04/2008 21:34

Tired. My mum's on the phone wanting to know how to tune her tv in. I'm brain dead. Other then this things are ok. How are you?

Coro · 22/04/2008 21:34

Ok, I couldn't cope with the online shopping. My brain wouldn't work! My mum came down after work to help me do it which was nice.

I'm ok, feeling brighter than last week. Still hurt and sleeping too much though.

My ex ( ds controlling, intimidating father) is contacting me complaing about things and while he hasn't said anything wrong I hate having contact with him. It brings back bad memories...

Did you manage to get your mums tv sorted? I'm waiting in for my friends plumber tomorrow. At least I can be useful while I sit and do nothing!

avenanap · 22/04/2008 21:40

I gave up and told her to get my brothers (they are both at home and both useless) to sort it out. The online shopping's a good idea, you can click a button and order exactly the same food as you did last week . I managed to do without a nap yesterday but felt like shit. I dropped ds off this morning, came home and went to sleep for a few hours and feel great. I may do some work later. I'm thinking of applying to do another course, I've always wanted to do it but I thought they wouldn't let me. I emailed the Uni yesterday and they said they would, I'm so pleased. I have to sit an exam though and it's a bit (alot) on the demanding side. I recon I may be mad!

Why's the ex moaning?

Coro · 22/04/2008 21:44

because I spoke to his dad about something not him. it was about my paperwork and stuff.

I still need to fill in my ucas form to change uni's. I cant write a very positive personal statement atm..

I dropped ds off then slept til lunchtime too! I hate sleeping so much of my life away.

I'll get there in the end with online shopping, I just need to get it started when I'm feeling better I think. Less brain fog needed

What course are you looking to do?
Are you ever on msn?

avenanap · 22/04/2008 21:54

I can't work out the msn thing. Sleeping's ok, we'll have to make a pact to try and reduce the amount we sleep though. I need to join a gym and see what that does. I'm starting tango lessons with my neighbour next week, that should be fun. Ignore the ex, he's an ex for a reason, there's some handsome italian out there for you, you just have not met him yet.

What have you written so far for the statement and what are you trying to say?

I can't tell you about the course, you really will think I'm nuts. I sat the exam for it when I had glandular fever, I did very well and was 6 points off their cut off mark. A bit more work should do it . I hated my last course, I was pining for this. I've always wanted to do it, I must be a sadist.

Coro · 22/04/2008 22:08

I doubt it's that nuts.. try me

Yeah I know he's an ex for a reason. He just terrifies me and I dont scare easily.

I cant even remember what I'm trying to say, something about why they should have me on the course.

Tango lessons sounds cool, I'm going to try and get to the swimming pool this week I miss going.

avenanap · 22/04/2008 22:13

Erm, um... medicine. The 4 year course. I've always wanted to do it. Nursing was never the same and I spent years wishing I could do it. If I get my GP to diagnose me with ME I can be classed as disabled so they will be more flexible with the work load.

You need to talk about how much experience you've had, how committed you are to the course and a carrear (sp? It's the 3 sips of wine)in the subject, how much you will benefit from being on the course, what you can offer the University and why you want to study there. Sound ok?

Coro · 22/04/2008 22:23

Medicine sounds fab

Fingers crossed with the GP. I need to go back and explain how crap I'm feeling at the moment. Nothing I do seems to help.

That sounds good I'll copy and paste it and write it when I'm waiting for my friends plumber tomorrow. There are less distractions there. Thank you.

Give me a kick up the backside if I haven't done it!

I'm off to bed, speak to you soon