When will it stop please help

[Alwaystired4]

I have joined this site because im out of ideas and so desperate for help. Please.
My second baby- girl this time- has not slept for the entire 14 weeks of her life.
Colic or reflux or both or whatever. The gp and health visitor have a different theory and different prescription to try every time i see them. I have told them how much i am struggling and it makes no difference.

I have tried EVERY product available to stop her 247 fidgeting and crying. I have tried EVERY method in the world to calm her.
I have not slept for 48hours at all. This evening i fell on the floor crying and weeping with exhaustion whilst she wiggled all over her cot. She permanently has her hands all over her face during feeding and sleeping. She wiggles in her sleep and all the time shes awake.
There is no family support locally and i cannot stop crying.
When does this end? When will she relax? Its nearly 2am and i have been trying to pacify her for 7hours straight.
Please please dont say anything rude or unhelpful i am so desperate for someone to tell me that they have experienced this too.
All day she cries and all night if i dare lay my head on my pillow its for a minute before shes wiggling and climbing out of her blankets again.
Im so shattered i dont know who i am anymore

Sorry about this. Have you tried swaddling her?

Have you tried swaddling her? Mine would wake herself and upset herself by fidgeting and moving her arms. Swaddling fixed it and rolling a blanket up and positions it around her to feel comforted

I have tried the tightest swaddle possible :(she is so strong she breaks right out of it. She can already sit up by herself and just bursts out of her blankets.

Can you borrow an amby nature nest? They move around and are tilted slightly for colicky babies.

I highly recommend it.

I havent heard of that il google it right now thank u so much :) x

Does she sleep in the car seat or out walking? Just wondering if there's anything from those scenarios you can try to replicate....

Don't want to read and run. So sorry you are having a hard time. Mine were not as bad as your lo, but my 2nd did spend quite a lot of time in her car seat, it was the only place she settled. I did worry about her turning out car seat shaped for the rest of her life, but she's 17 and fine. 3rd child never slept much and still doesn't aged 15, it was a bit of a nightmare. If he slept in the day in the cot I would take the other 2 to bed with me put the TV on feed them cornettos and have a nap myself. Bit unconventional but I was desparate. And they are all ok now. for you

I'm not sure what you've tried but here's a list of what we tried;
Gaviscon & Ranitidine (if your LO is still showing reflux signs then the GP can prescribe something else)

colief or cut diary from diet if BF

Don't use infacol

Tummy massage and bicycle legs

Raising cot

Day naps in vibrating chair

Dummy

White noisy - myhummy is the best I've come across.

This sounds awful, I feel so sorry for both of you. Has it been considered that she might be intolerant to cow's milk? Does she have any other symptoms other than reflux and colic?

My gp wont prescribe the milk and thats the only thing we havent yet tried. Im going back on monday to request a pediatrician- my gp doesnt seem to understand.
Mostly she has this thing with her hands where she just waves them around all day and nite. Health visitor reckoned its reflux and colic

Thank u so much to every1 replying its been such a bad nite! She slept for about 40minutes so ive had a cat nap but it'll be morning again soon. I just so wanted to talk to some other mums xxx

I had a very colicky baby, tummy runs in a clockwise rotation helped to settle her in so sorry 💐

I've been where you are. My Lo had horrible silent reflux, cows milk protein and soy allergies, comic and was 75% tongue tied (anterior and posterior).

The things that helped were:

Omeprazole. She needed 20mg to achieve symptom control. My GP was less than useless. We presented to a&he because she wouldn't stop crying and they sent us to the Paeds as area where she was immediately diagnosed.

I was exclusively BF so went on a very strict dairy and soy exclusion diet.

Let her sleep upright on my chest while I slept upright propped up against some pillows in the middle of the double bed with my hands locked around her (fingers interlinked). No duvets or pillows near her. Wasn't ideal. But she literally would not sleep unless held. DH was away for work a lot and i was alone and almost hallucinating from lack of sleep.

Read the book 'colic solved' all about silent reflux. Written by a Paediatrician gastroenterologist who had a child of his own with reflux!!

If you are FF I would get some gaviscon, omeprazole and if that doesn't help, get a prescription for some highly hydrologysed formula milk (the milk protein is really broken down - the Paeds can prescribe it for you).

You will survive this I promise

*colic not comic!

Don't let your GP fob you off.... mine did, despite the fact I used to work in HV! I was so tired and exhausted that I didn't put up a fight - went to see GP at 5 weeks old and was dismissed and told i needed to "adjust my expectations"

Struggled on for another 3 weeks until we went to a&e in desperation.

Still so angry that my baby had to suffer an extra 3 weeks of pain because of that stupid GP.

You are not going mad. You are not imagining things. Your baby is not meant to be this unsettled. Something is causing it (silent reflux? Cows milk protein allergy?)

Once the cause it addressed it WILL get better. Hang in there

Sorry you are having a tough time OP . My dd is similar as she has reflux sleeps very little unless forced to sleep. Things that have worked are gaviscon, white noise (Ollie the owl), daytime naps in the sling or pushchair and the sleepyhead at night. She wouldn't sleep at all at night until we got the sleepyhead so it was a good investment. We are also seeing a cranial osteopath, have only had one session so far but in the 4 days since she has been much calmer and thrashes about a lot less. The night after the session she slept 5 hours straight, she'd not slept more than 2 hours before that.

I hope you find something that works and manage to get some sleep soon. It's horrible but it will get better.

Ok tomorrow morning get your partner to take your child out for the day, does she have formula? You need a decent sleep - my husband did this for me when DD literally slept four hours a night so was up at 4am every morning and I found that exhausting which is far more than you're getting. She got to about 3.5 months and suddenly switched and slept 12 hours straight! I hope this happens for you

By the way I literally spent all my spare time winding my child, she still is very windy now ay 9

Why are you the only one trying yo settle her? Why can't her daddy? You need some sleep my lovely, it takes two to make a baby and she has two parents. I used to get my dh to take baby downstairs so I could get a good chunk of sleep, that was even with baby being ebf!

Sending big hugs xx

If you are ff try comfort milk. One of our twins was like this at first, and the combination of comfort milk, anti colic mam bottles and sleeping her as upright as possible ( we propped her bouncer chair up a little) improved matters. I feel for you, but I promise this won't last xxx

Thanks everyone, youve all been so friendly and genuine. I shud have mentioned hubby is really good but he has a viral bug atm. He's upstairs shivering in bed like a an arctic penguin.
I've tried every formula and every medicine. Ranitidine made her scream the house down so i guess the only other things to try are hypoallergenic formula or/and omprazole!
Thank u so much everyone i will go back to my gp on monday- shes sick of seeing me :( can see on her face everytime i go in shes thinkin 'oh its that mad woman and her baby again'!
This is my second baby and such a shock to the system because my son just used to sleep and guzzle milk all day!

I went to my GP and begged for a two week trial of dairy free milk. The difference became apparent very quickly and we never looked back. Ds used to scream, awful high pitched screaming for hours on end. It was hideous and like you, I was desperate. The GP seemed to be able to handle the thought of a two week trial - I was at the point where I wasn't going to leave until I got that prescription

How awful, cows milk protein allergy is my first thought that it could be with the constant squirming. There are some great Facebook groups on it if you have facebook with other mummies who can help you find the right milk for your child. Unfortunately you might have to really push your gp to prescribe new formula but don't give up! Also would suggest getting checked for tongue tie as this can cause issues with taking in too much air and causing reflux. Hang in there

Another vote for cmpa...if go won't prescribe then buy a tin and test for yourself. If you notice a difference (maybe keep a diary or film her) then straight back to the GPs and simply refuse to leave until they give it to you.

DD has cmpa but was admitted to a and e so we didn't have to fight for the milk, but the peadiatrition told me that most mum's struggle as gps won't prescribe it simply because it's expensive and eats into their budget. Don't let them for you off anymore.

The only thing that ever settled my baby during this phase was cooled camomile tea (in caffeinated obv..), which the health visitor recommended. Hed be screaming for hours, have 2oz of tea and settle within twenty minutes.

for you, tis a hard hard stage xxx

Ranitidine made my DD worse too - she spent the WHOLE DAY screaming when we gave it to her. Honestly up there as a contender for worst day of my life!

Omeprazole made an instant difference and got gradually better and better as it takes 5-6 weeks to reach full effectiveness. Plus you need to keep putting the dosage up as they put on weight.

I would definitely push for omeprazole and highly hydrolysed milk - I think maybe it's called Peptic something Basically the milk protein needs to be really broken down so it doesn't irritate the gut lining and induce a delayed immune response (Non IG allergic reaction if you want to be technical )

Don't take NO for an answer!!!!!!!

Good luck