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Original poster

Down and worried ...

34 replies

MABS · 25/07/2002 20:40

Just really need to moan to you all - sorry. My 21 month ds has to go for lung function tests, blood tests to check immunity , chest xray and ,possibly - get this - a test for cystic fibrosis, all tomorrow morning. I've known about it for a few weeks but have managed to put it to the back of my mind. Now, sitting here by myself (dh at work tonight) its finally hit me that its 9.20 tomorrow morning.

It's really not fair - he's already got mild cerebral palsy - he doesn't need all this.

Bye for now (sorry for herself) MABS

OP posts:
Mopsy · 25/07/2002 21:01

Dear MABS
Thinking of you and your family, it must be so hard to be going through this. At least with knowledge of exactly what difficulties your ds is having you and the doctors will be able to do exactly what is best for him.
Not sure what else to say except I am thinking of you all and wish you the best possible outcome. Keep posting love Mopsy xx

batey · 25/07/2002 21:03

Poor you, it must be really hard. I know it's not the same but my dd had an op at 6ms, and the anxiety and worry I felt BEFORE it all was worse than actually dealing with the situation. The uncertainty of a new situation is v. hard to deal with. Is dh going with you tomorrow? Hopefuly you'll feel different when you know what you're dealing with. It may not be as bad as you fear. Let us know how it goes, if you want. Thinking of you.

aloha · 25/07/2002 21:05

I too hardly know what to say, except that I am thinking of you and your lovely boy. To echo Mopsy, at least the tests will either put your mind at rest or give your son the treatment he needs. I'm sure they will be lovely with him. I do feel for you. The very best of luck to you both. Big cuddle to your ds.

oxocube · 25/07/2002 21:06

Oh, MABS, I am so sorry. This is a very quick post from someone who doesn't really know what you are going through, but I just wanted to send you all lots of love. I am keeping everything crossed that your son's test results are better than you are (maybe) hoping. Let us know what happens, Love oxocube xxx

Original poster
MABS · 25/07/2002 21:17

Thanks guys - you've really cheered me up

Yes batey , dh is coming with me tomorrow. But, he's in total denial of it all since ds was born 11 weeks premature and - as he'll have worked all night - will probably be more useless than normal.. no,no,no that's not possible....?
Will let you know how it goes.
Regards Mabs

OP posts:
WideWebWitch · 25/07/2002 21:19

MABS, sorry, sounds horrible. Will think of you tomorrow morning. Good luck.

bossykate · 25/07/2002 21:24

MABS, how worrying for you. All the best.

CAM · 25/07/2002 21:54

Mabs
Wishing you best of luck for tomorrow - let us know what happens

tufty · 25/07/2002 22:33

Will be thinking of you Mabs et co. How awful... but hoping for a reprieve for your brave little poppet.

sobernow · 25/07/2002 22:54

This reply has been deleted

Message withdrawn at poster's request.

jessi · 25/07/2002 23:21

Fingers crossed for you both tomorrow, so sorry to hear what your going through. Best wishes, Jessi x

bloss · 26/07/2002 06:14

Message withdrawn

ScummyMummy · 26/07/2002 07:51

Oh Mabs. You're right- it isn't fair. I think you've every right to feel sorry for yourself- it's such a worrying time for you and you're bound to get flashes of pure panic about ds. Please don't think you have to deny your feelings or be constantly "strong" for your baby, especially not here on mumsnet. This can be a perfect place to vent if you need to.
I'll be thinking of you both this morning. I hope the assessment is not too distressing for ds and that the outcomes are good. All my love.

Marina · 26/07/2002 09:48

Oh Mabs, you really don't need all this, and neither does your little ds. Will be thinking of you both this morning, and hoping the tests are just a precaution. Best of luck.

leander · 26/07/2002 10:00

Mabs thinking of you all good luck today, Lxx

chiara71 · 26/07/2002 10:50

MABS

I can only join the others wishing you and your little one good luck, no one ever needs to see theri children being sick, but when you've got already enough to worry about....all my love,
chiara

Enid · 26/07/2002 11:39

Thinking of you MABS xxxxxxxxxxx

Rhubarb · 26/07/2002 11:53

MABS, my sister has an 8 month old with Downs. He was diagnosed whilst still in the womb, they also told her he would need open heart surgery when he was born as his arteries where the wrong way round (?). She told me at the time that she could cope with the heart problem, but not with the Downs. 8 months later and she still has not fully accepted his Downs. In his appearance he is typically Downs, but she goes out of her way to convince us and others that he is not.

What I'm saying is that I sort of understand what you are going through, if it's not one thing it's another! I also understand how your dh feels. Give him time, it is a difficult thing to comprehend and accept. He will come round in his own time, going to this scan might help, he probably needs someone to talk to, God knows what must be going through his mind. I bet he's not really talking to you is he? Does he have any close male friends he can turn to? Can you not set him up to have a night out with his best pal - inform his friend of the situation and see if he can talk to him for you. Sometimes our closest ones aren't always the ones we want to talk to. When I was depressed during my pregnancy I would not talk to my dh for fear of upsetting and hurting him.

I hope you have support from your family and friends, don't be afraid to ask for help. You might also want to consider Homestart as a bit more help for you.

Thinking of you and hoping that everything eventually works out for you - whatever happens he is a very lucky boy having such a wonderful mother as you!

Original poster
MABS · 26/07/2002 11:54

Well, we went this morning to the hospital, ds was a little angel. Doc decided not to do Cystic Fibrosis test as there's virtually no chance of it being that, as my little soldier is so big and fat! Lung function test were easy as was xray - showed a slight problem with his airways and lungs being damaged , but breathing can be helped by various inhalers.

He DID NOT like the blood tests, his hands and feet are scarred so its really hard to find a straight vein to get into so this was rather distressing. He managed to cope with help of a packet of hula hoops We'll have to wait 7 - 10 days for these results which are checking his immune system is working properly.

So , on the whole, not bad and at least its over with and he's happily in the land of nod right now.... Going out tonight with friends for several very large glasses/bottles fizzy stuff. Thanks to all for your support , bye MABS

OP posts:
sobernow · 26/07/2002 11:58

This reply has been deleted

Message withdrawn at poster's request.

GRMUM · 26/07/2002 12:11

MABS so glad to hear that at least CF is not on the cards.Hope that everything else comes back 100% normal too.Have a good time tonight!

Marina · 26/07/2002 12:17

Mabs, tremendous news that it is not CF, what a weight off your mind. Enjoy that fizzy stuff!

CAM · 26/07/2002 12:24

so glad that part of the worrying and waiting is over for the moment, mabs, and hope the blood tests come back good.

aloha · 26/07/2002 12:56

I am SO pleased for you both. What a wonderful relief. I'll raise my next glass to you!

Rhubarb · 26/07/2002 14:16

We'll raise a glass (or more!) to you on Saturday MABS - one less worry for you at least!