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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

See all MNHQ comments on this thread

For me this sums up MNHQ treatment of autistic posters

137 replies

StopHateAgainstAutisticPeople · 28/10/2022 18:23

I took this screenshot today of my two watched threads and I thought a good visual representation of the ableism autistic people face here.

one thread where non-autistic people get to spread misinformation about autism and another where the OP wanted to talk about ableism in general. Of course it ended up with two non-autistic people asking us over and over to justify ourselves.

one is on thread 6, the other has been deleted (they say hidden but it has been 24+ hours)

i feel so despondent. Knowing this is how society sees us just makes everything too much of a struggle. I’m an inconvenience. I don’t think enough about how non-autistic people are adversely impacted by me. I don’t matter.

being autistic is so fucking shit. We’re the blame-magnets of society. I want to shut my eyes and mind.

For me this sums up MNHQ treatment of autistic posters
OP posts:
PipMumsnet · 04/11/2022 14:02

Hello everyone and thanks for all the reports about this thread - we will delete all posts that break our Talk Guidelines. And we would like to ask that posters please not derail this thread - the OP is looking for support and we ask that you please bear this in mind when replying.
MNHQ

StopHateAgainstAutisticPeople · 04/11/2022 14:09

Thanks @PipMumsnet - is there any chance of deleting the posts that are derailing. Surely they are not being made in spirit of the site? Or this forum?

I am looking for support. There is no way this thread can return to that if the poster is allowed to post continually, even is she is stating she is autistic. She may be, but the effect of her posting the same thing over and over and over is to reduce this thread into her own personal soapbox.

OP posts:
WahineToa · 04/11/2022 14:12

@PipMumsnet I second what the OP just wrote. Totally understand everyone is entitled to share an opinion. But surely repeating a point made and accepted over and over and over and continuing after polite requests to stop, should be against guidelines? It feels like goading to anger us and then posters have snapped eventually and had reports because of it. That just doesn’t seem to be in the spirit. I tried very hard here to clear up misunderstandings to move things on for the OP.

Clarice99 · 04/11/2022 14:17

StopHateAgainstAutisticPeople · 04/11/2022 14:09

Thanks @PipMumsnet - is there any chance of deleting the posts that are derailing. Surely they are not being made in spirit of the site? Or this forum?

I am looking for support. There is no way this thread can return to that if the poster is allowed to post continually, even is she is stating she is autistic. She may be, but the effect of her posting the same thing over and over and over is to reduce this thread into her own personal soapbox.

I've repeatedly asked for the same - for the derailing posts to be addressed, but instead, the deletions are confined to members who have shown their exasperation at the total lack of compassion from a certain individual.

Scautish · 05/11/2022 08:53

@WahineToa @Clarice99 @arctica @madnesss

thank you for your support yesterday. Really, really appreciated.

YourTruthorMine · 08/11/2022 18:54

Sorry another derail, I have severe ADHD and autism and I pointed out that I thought a high profile person is neurodivergent (we usually recognise a member of our own tribe) My post was deleleted, why is that? Is it such an insult? I think the OP is correct and we are seen as the lowest of the low by MNHQ

Legofigure · 08/11/2022 19:26

@YourTruthorMine It was probably deleted because it was speculation about the personal details of someone in the public eye, which is often deleted regardless of whether it is about a potential disability or not, nothing to do with whether it’s an insult or not.

Tired2tired · 08/11/2022 19:27

I am pretty sure you can email them to find out why or you used to be able to or maybe report your post and ask in the report section and I think they will answer?

On the topic of it i'm not keen on guessing/suggesting/arm chair diagnosises people based on just a small part of their lives, I don't find it an insult but I don't like it iyswim

Harrysnippleno3 · 08/11/2022 20:21

YourTruthorMine · 08/11/2022 18:54

Sorry another derail, I have severe ADHD and autism and I pointed out that I thought a high profile person is neurodivergent (we usually recognise a member of our own tribe) My post was deleleted, why is that? Is it such an insult? I think the OP is correct and we are seen as the lowest of the low by MNHQ

I'm actually agree with this kind of delete. It's the very armchair diagnosis that is being complained about.

YourTruthorMine · 08/11/2022 22:36

The thread in discussion is full of speculation about this individual's mental health, even accusing him of being stupid, but when I suggested this person may be neurodivergent, it got deleted. Is stating that someone is neurotypical a diagnosis too? That's just ridiculous

BonstanceBarroll · 13/11/2022 09:32

Long time lurker here who just wanted to say thank you for being so open and authentic OP and I am so sorry and frustrated and hurt that this happens...my typing skills and cognition are not great at present due to health and an ongoing bullying situation by a nasty, manipulative criminal who lives below us. I do not want to say the wrong thing or trigger anyone, so just to warn that there is mention of police intervention and verbal agression in this post.

I am so tired of assumptions that are made about people who also happen to have ASD/traits/ND, and the assumption that someone must be ''insert armchair diagnosis here'' because they behaved in a certain way. It fans the flames of misconception about what ASD is and forgets individuality of people. Their character, traits, genetics, how they were raised, environment...but there is a need in society to label and make sense and assign diagnoses to any behaviour, typically negative ones.

The discrimination and ignorance is pervasive, sadly - I trained to be a degree educated counsellor a few years ago after years of nursing and felt lulled into a sense of safety that I shared with the group that I was 'on the spectrum'. I rue that day!!
I wish I hadn't, as I was treated quite differently from that day on (noticed by a few good friends on the course), to the point where, for example, I had to ask the tutor why she felt the need to ask me permission before she gave me a hug, but not anyone else. She admitted that she assumed that I didn't like to be touched!! Why? Maybe just ask everyone then, as some people HATE hugs no matter what their 'label'.

The final straw was a very bitter soul who encountered me in group, and said that it was really bothering her that I was training to be a counsellor. It was REALLY bohtering her. I was doing well and feedback was positive - my placements were great and I had fantastic working relationships with clients.
She stated that one of the core conditions that was required to be a fully present counsellor was empathy and she knew that autistic people lacked empathy - it was troubling her...I explicitly told her that this was a psychopath she was describing, but she stood firm and compared me to another autistic person she knew, saying it was well known 'they' don't have empathy.

This is the level of ignorance and at a semi professional level from a handful of individuals who claim to be nonjudgmental, kind and open minded, and groupthink can overtake. I have found that the opposite can occur too, thankfully, when you meet more emotionally intelligent souls but the bad experiences tend to stick in the memory and still hurt.

Sadly, this emotionally intelligent approach was not the type of officer we dealt with recently, and disclosure to them that we struggled with verbal engagement and stressful situations have been pointless; utterly useless with recent events, even after I reported that a drug using, antisocial, no paper trail, does not exist at the property bully neighbour had been verbally abusive to me because I asked him to stop parking on our driveway - as soon as we told the police that we were all were ASD (DH, DS11 and I) the main officers demeanor changed and the sarcasitic, assumptive and domineering tone kicked in. A familiar one.

Cue victim blaming of 'why didn't you report them sooner if you have been suffering for 4 years?' Trying to explain about our fear of confrontation and difficulties with 'thinking on our feet' fell on deaf ears and we are now in the position that the police are insistent on knocking every day to check on the welfare of the nasty man's wife (who is of a similar character) because we mentioned that they used to be 'loud'...loud parties, screeching, music, overt weed use all throughout 2020/21 lockdowns. We shutdown emotionally - couldn't cope. Hoped it would just go away in time.

I understand and respect that the Police have to take any hint of DV seriously (my father treated my mother terribly, we never ever called the police out of fear and being controlled). I even tried to support the wife when she offloaded all of her woes about how everyone had been so awful to her (no mention of DV) and all of her family had cut her off (I haven't heard anything of 'concern' - I would report if I was worried, its my moral and ethical duty of care no matter how I feel about that person), but the Police are being so overt in such a vulnerable, tense situation, talking to us in the shared hallway of the flat at full volume with no respect for what is said/disclosed. We now feel at risk all because we finally did the right thing and reported these bullies to the police, and they are saying they will visit every day until they get to meet both people and check on their welfare. My report of his verbal abuse (screaming in my face to fuck off - he is 6ft, I am 5ft3) has been filed and the officer said that it was not important now given their concerns for the wlefare of both occupants downstairs.

I'm not sure why I felt I had to share all of this, but I am happy to chat to anyone - I am not currently working as a counsellor due to the situation we are in and impact on my health, but I am aiming to return with a view to being a voluntary counsellor and advocate for adults with ASD/related - my husband too, but in the legal capacity with regards to the Equality Act and supporting individuals in accessing support. I guess I am trying to give to others what we so depserately needed for so long.

As we always used to say to clients when it came to labels, jusgments and assumptions from others: 'you are the expert on you'.

saraclara · 20/11/2022 12:13

BoardLikeAMirror · 30/10/2022 18:00

I'm exhausted and depressed after a recent meltdown and feeling guilty because my DH had to cope with it. I don't need NT posters to tell me how rubbish I am, I tell myself every single day.

You're absolutely not rubbish, and I'm sorry about the meltdown. But after your DH dealt with it, do you understand that he might need somewhere where he could decompress?

ND people have this board to let loose on with their frustrations with NT people. In fairness, surely NT partners and parents should also have a space to share their feelings with people in the same position?

I read both boards because I straddle both situations, btw.

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