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Anyone else feeling sick waiting to see what the PIP cuts will be?

370 replies

Somethingthecatdraggedin7 · 18/03/2025 12:42

Wondering if I will still be able to pay for the numerous services and things my disabilities necessitate.
I think, given I have such severe issues, that I may be one of the “lucky” ones as from what I have read so far I would still have enough pip points plus I am older and have stage 4 cancer (separate to my other significant disability) but who knows.
Even if I escape the cull I am sad and scared for others who may lose their award.

OP posts:
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Normallynumb · 27/03/2025 15:16

@SecretmeetingsHow bloody rude are you!!
PIP is intended to be used for the claimant in any way they wish to bring their standard of life up to an able bodied person.
you’d strike me down. I use part of mine to pay for a dog walker to give my wonderful Westie a daily run, because I can’t.
I’ve actually just got home from a wash, cut and colour, a monthly occurrence.
i have no use of left arm.
I’ll happily swap if you want to try living with Moderate Cerebral Palsy???

PhilippaGeorgiou · 27/03/2025 15:16

Canaryhead · 27/03/2025 15:03

In the thread you’re referring to, I have repeatedly clarified what I intended to say, not what you have interpreted me to say. I also apologised for the way that I came across more than once. And you have seen all of my comments, so you are twisting my words, and for what? It is infuriating. Several of your comments were also removed on my thread. I don’t know how your account still stands. I am name changing now, but I certainly shouldn’t have to.

Edited

You appear to be misunderstanding my point which is unfair of you. The poster that you criticised probably doesn't understand what it is like to not be able to wash your hair, so they don't perceive how that equates to paying for hairdressing from benefits. Just as you criticised people with disabilities different from your own by saying that people awarded benefits shouldn't be, or shouldn't be able to get a mobility car. It isn't up to other people to decide what impact a disability has or how they should spend money which they are entitled to. As someoen with a disability you should understand that in every case, not just the cases that you agree with. If someone is lying about their disability and gets caught doing so, then that is on them and they deserve it. But that it isn't up to you, me or anyone else to decide what people whould be allowed to do with their entitlements.

And it isn't up to you to decide why I have an account, but my posts were removed because someone complained but they were not sanctioned. I received not a single warning. Posts are often removed for no better reason that a complaint. People often say things that someone doesn't like - it doesn't make what they say wrong.

FlatWhiteExtraHot · 27/03/2025 15:20

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Normallynumb · 27/03/2025 15:22

@FlatWhiteExtraHot
They just haven’t considered the implications of their callous decisions have they?
I have asked DWP for a points breakdown letter, as I just can’t remember what I had in 2016
I’ve hardly slept for a week
I literally feel your pain

Normallynumb · 27/03/2025 15:23

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LadyKenya · 27/03/2025 15:31

My last assessor was an absolute bullshitter and scored me zero in every section on DL, and I went from maximum to nothing. Obviously it was reinstated on appeal, but I still haven’t got over how he lied about me and just got away with it.

This seems to be a common theme, that I have read about, and is costing the taxpayer in terms of the numbers of claimants having to go to the tribunal. It is scandalous, but is conveniently never mentioned by the MP's. The way the assessments are carried out need further scrutiny imo.

Secretmeetings · 27/03/2025 15:35

I have a disability but do not claim a penny as I realise it is my responsibility despite being poor.

I have pride and realise I am not in a position to adequately look after children or pets.

PhilippaGeorgiou · 27/03/2025 15:36

LadyKenya · 27/03/2025 15:31

My last assessor was an absolute bullshitter and scored me zero in every section on DL, and I went from maximum to nothing. Obviously it was reinstated on appeal, but I still haven’t got over how he lied about me and just got away with it.

This seems to be a common theme, that I have read about, and is costing the taxpayer in terms of the numbers of claimants having to go to the tribunal. It is scandalous, but is conveniently never mentioned by the MP's. The way the assessments are carried out need further scrutiny imo.

I have never understood why they have this expensive system in the first place. It would surely be simpler to fund assessments within the NHS given that much of the evidence comes from the NHS, and presumably NHS practitioners are considered truthful. My GP wouldn't lie to get me or anyone else benefits, and I doubt that other HCP's would either. If anyone is lying about their disability, they are lying to both the assessor and the NHS anyway, and frankly I would have mopre confidence in the judgement of NHS HCP's that I would "independant assessors" who aren't independant. You could get rid of an entire layer of the system that must cost £millions in itself and still can't get the job right.

ParsnipPuree · 27/03/2025 15:39

LadyKenya · 27/03/2025 12:49

People have been emboldened to such a degree, by the media, and Governments rhetoric of disabled people, that they believe that they have the right to have a blow, by blow account, of how they spend any benefit that they receive. It is treating disabled people, as lesser, imo. It is offensive to me, and dangerous.

Yes they should have to say how they spend their benefits. If I was claiming as a disabled person, why would I have a problem explaining to taxpayers where their money is going?

LadyKenya · 27/03/2025 15:43

I agree @PhilippaGeorgiou . Maybe the idea is too simple for the powers that be, or there were people in the last Government benefiting financially from handing out contracts to the likes of Capita, and Atos. It would not surprise me, at all. Either way having a paramedic doing an assessment for someone suffering from paranoid schizophrenia may not work, for example.

LadyKenya · 27/03/2025 15:46

ParsnipPuree · 27/03/2025 15:39

Yes they should have to say how they spend their benefits. If I was claiming as a disabled person, why would I have a problem explaining to taxpayers where their money is going?

That is you. Do people have to explain what they spend their child benefit on exactly? Or their top ups on UC? Why should disabled people have to then?

Queenanne20 · 27/03/2025 15:46

{mention:Secretmeetings}So@SecretmeetingsSo are you inferring that people who claim disability benefits do not have any "pride"?

PhilippaGeorgiou · 27/03/2025 15:47

Secretmeetings · 27/03/2025 15:35

I have a disability but do not claim a penny as I realise it is my responsibility despite being poor.

I have pride and realise I am not in a position to adequately look after children or pets.

I am disabled but I am not poor. I am not rich either, but I am confortable. And the reason why I am comfortable is because my entitlements allowed me to work. Without PIP I would not have been able to work and pay taxes - a lot of taxes. Since the government (and you, apparently) consider it my respnsibility to work if I can, and I needed my entitlements to do so, then exactly how are you suggesting that I have no pride?

You are not responsible for your disability. It is something that you didn't invite and can't control. If you don't want to apply for the help that you are entitled to, then that is your choice. But you have no right to comment on others who do as being somehow less proud than you. They are doing whatever they can to be members of families and society. It could be argued that they are not less proud than you, just less foolish. There are no awards for martyrdom, and those entitlement you eschew could make your life so much better. Rest assured, you'll still be poor, but at least you will be less poor.

ParsnipPuree · 27/03/2025 15:49

Secretmeetings · 27/03/2025 15:35

I have a disability but do not claim a penny as I realise it is my responsibility despite being poor.

I have pride and realise I am not in a position to adequately look after children or pets.

And there we have it. I like you have a disability which I could successfully claim for, but it I am not of the opinion that others who may be struggling too, in different ways, are responsible for me financially. I just don’t have that mentality.

it’s beyond sad that the lives of people who have a desperate need are going to be devastated by the selfishness of those that could do without it.

verysmellyjelly · 27/03/2025 15:50

I’m disabled and poor. I think we can surely at least all agree the government does not care about disabled people. They are not a “true” Labour government, as they have no commitment to protecting the vulnerable.

GuineaHyggaeReturnsWheeking · 27/03/2025 15:50

LadyKenya · 27/03/2025 15:31

My last assessor was an absolute bullshitter and scored me zero in every section on DL, and I went from maximum to nothing. Obviously it was reinstated on appeal, but I still haven’t got over how he lied about me and just got away with it.

This seems to be a common theme, that I have read about, and is costing the taxpayer in terms of the numbers of claimants having to go to the tribunal. It is scandalous, but is conveniently never mentioned by the MP's. The way the assessments are carried out need further scrutiny imo.

Mine did that with mobility even though I use a cane to help me walk , have balance and muscle stiffness issues. Also my mental health issues mean planning a journey to an unfamiliar place without someone with me can cause me to panic or meltdown . Even leading to a need to be taken to hospital to a place of safety or public self harming in some cases. Care worker wanted me to appeal but it caused me so much distress we had to stop.

not all assessors lie or twist things but more than a good few of them do, I'm not the only one I know of whose had this happen IRL.

GuineaHyggaeReturnsWheeking · 27/03/2025 15:53

verysmellyjelly · 27/03/2025 15:50

I’m disabled and poor. I think we can surely at least all agree the government does not care about disabled people. They are not a “true” Labour government, as they have no commitment to protecting the vulnerable.

Absolutely

LadyKenya · 27/03/2025 15:53

LadyKenya · 27/03/2025 15:46

That is you. Do people have to explain what they spend their child benefit on exactly? Or their top ups on UC? Why should disabled people have to then?

Edited

Sits down while waiting!🪑

PhilippaGeorgiou · 27/03/2025 15:56

ParsnipPuree · 27/03/2025 15:49

And there we have it. I like you have a disability which I could successfully claim for, but it I am not of the opinion that others who may be struggling too, in different ways, are responsible for me financially. I just don’t have that mentality.

it’s beyond sad that the lives of people who have a desperate need are going to be devastated by the selfishness of those that could do without it.

I am just wondering if you have children? Because I don't, and for the best part of nearly 50 years I have been paying for everyones children, and still am. Free childcare - I pay for that. Free education - I pay for that. Oddly, I pay for defence spending which I don't agree with, for MP's expenses and salaries, and... well I pay for everything that society supports. So why, exactly, should people with disabilities not be supported? A collective society takes collective responsibility. If you are saying that we don't want that, then child benefit, schools, social care, everything should end now. And that also includes all unemployment benefits. I can see that going down a bomb. Quite literally possibly. People have taken to the streets for less. The reason that people with disabilities are being targetted is because they think we are weak. They are wrong.

GuineaHyggaeReturnsWheeking · 27/03/2025 15:56

Secretmeetings · 27/03/2025 15:35

I have a disability but do not claim a penny as I realise it is my responsibility despite being poor.

I have pride and realise I am not in a position to adequately look after children or pets.

And if you had children before you became disabled? What then? Many disabilities are acquired not present at birth.

PinkPonyPugClub · 27/03/2025 15:57

Secretmeetings · 27/03/2025 15:35

I have a disability but do not claim a penny as I realise it is my responsibility despite being poor.

I have pride and realise I am not in a position to adequately look after children or pets.

If you become disabled after having children and can no longer afford them, what then? Rehome them?

LadyKenya · 27/03/2025 15:58

It is sad to hear@GuineaHyggaeReturnsWheeking. It is not uncommon for some people to decide not to challenge an award, due to the toll that it would take on their health. The system is designed to be as tough as possible to navigate.

Canaryhead · 27/03/2025 15:58

PhilippaGeorgiou · 27/03/2025 15:16

You appear to be misunderstanding my point which is unfair of you. The poster that you criticised probably doesn't understand what it is like to not be able to wash your hair, so they don't perceive how that equates to paying for hairdressing from benefits. Just as you criticised people with disabilities different from your own by saying that people awarded benefits shouldn't be, or shouldn't be able to get a mobility car. It isn't up to other people to decide what impact a disability has or how they should spend money which they are entitled to. As someoen with a disability you should understand that in every case, not just the cases that you agree with. If someone is lying about their disability and gets caught doing so, then that is on them and they deserve it. But that it isn't up to you, me or anyone else to decide what people whould be allowed to do with their entitlements.

And it isn't up to you to decide why I have an account, but my posts were removed because someone complained but they were not sanctioned. I received not a single warning. Posts are often removed for no better reason that a complaint. People often say things that someone doesn't like - it doesn't make what they say wrong.

Edited

ihave had to repeatedly explain that I was referring to the character portrayed in the media who is faking/exaggerating to get benefits and I was under the opinion that removing the prompting criteria would stop it if it was happening. The media portrays a character that claims to be a bit anxious and gets full pip. And I was referring to that character only. Not someone who clearly has issues. And to be fair, you weren’t the only person who thought I was coming disabilities. Funnily enough, as part of my disability, I also need prompting. My observation was that someone who is disabled by their condition would get more points as well by not being able to do something safely repeatedly and in a timely manner. I apologised for the way that I came across. I also said I was open to views and changing my mind and I did actually change that opinion because assessors don’t give the right points. AND as it turns out removing that criteria was never in the proposal (I thought it was). I was never referring to someone with an actual disability.

Secretmeetings · 27/03/2025 15:59

PinkPonyPugClub · 27/03/2025 15:57

If you become disabled after having children and can no longer afford them, what then? Rehome them?

Surely a partner would assist.

LadyKenya · 27/03/2025 16:02

Secretmeetings · 27/03/2025 15:59

Surely a partner would assist.

Yes, because everybody has one of those. Honestly do some people not think before they rattle off whatever pops into their heads?

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