Page 8 | Anyone else feeling sick waiting to see what the PIP cuts will be?

Somethingthecatdraggedin7 · 2025-03-18T12:42:08+00:00

Wondering if I will still be able to pay for the numerous services and things my disabilities necessitate. I think, given I have such severe issues, that I may be one of the “lucky” ones as from what I have read so far I would still have enough pip points plus I am older and have stage 4 cancer (separate to my other significant disability) but who knows. Even if I escape the cull I am sad and scared for others who may lose their award.

LadyKenya · 27/03/2025 12:49

selffellatingouroborosofhate · 27/03/2025 12:43

It's very clear that @Secretmeetings and others don't think disabled people deserve privacy, dignity, respect, or safety. Because that's what PIP is for.

Show quote history

People have been emboldened to such a degree, by the media, and Governments rhetoric of disabled people, that they believe that they have the right to have a blow, by blow account, of how they spend any benefit that they receive. It is treating disabled people, as lesser, imo. It is offensive to me, and dangerous.

hairbearbunches · 27/03/2025 12:51

Mumsday · 18/03/2025 14:14

I think there might be a lot of people claiming in this age bracket who don’t need it.

My daughter has autism and ADHD. I was told by my UC work coach that she should claim PIP. I explained that she doesn’t need it, as she manages day to day fine. Her mental health isn’t great as she struggles to make friends, but she certainly doesn’t need extra money to help with that. He said I should claim it anyway, as she is ‘entitled’.

She hasn’t.

I wonder how many other 18-25 year-olds are claiming when they don’t really need it.

Show quote history

I agree with you. A family member of mine has two autistic children. One needs all the help they can get and they are certainly entitled to everything that is claimed on their behalf. The other is a high functioning individual in their early 20s who, like your daughter, doesn't have any friends (she does have a boyfriend) and gets almost the same amount of money. She's 'entitled' too. Her biggest disability, frankly, is her mother.

I applaud you for not automatically going down the benefits route because of 'entitlement'. It's my strong suspicion that the older child of my family member will lose PIP and also their entitlement to a motability car they recently got (which they absolutely do not need) unless they lie through their back teeth to maintain it all. Once an individual knows and understands their way around the benefits system, it looks to be fairly easy to pull the wool.

GuineaHyggaeReturnsWheeking · 27/03/2025 12:52

selffellatingouroborosofhate · 27/03/2025 12:23

vanishingly small "healthy" workforce

The healthy workforce isn't vanishingly small. It's the overwhelming majority of working-age people, many of whom are out of work because there aren't enough jobs to go around. Employers aren't going to choose a disabled person over a non-disabled person at interview, no matter how much it's illegal to discriminate, because it's nearly impossible to prove discrimination.

Show quote history

This. Why aren't the government talking about the fact that many of us disabled people are not considered employable (even mildly disabled people) when compared to able bodied people with the same level of skills and qualifications .

Hallo1 · 27/03/2025 12:57

Well done to all the silly fkers who voted labour

LadyKenya · 27/03/2025 12:57

GuineaHyggaeReturnsWheeking · 27/03/2025 12:52

This. Why aren't the government talking about the fact that many of us disabled people are not considered employable (even mildly disabled people) when compared to able bodied people with the same level of skills and qualifications .

Show quote history

Because then they will have to admit some home truths, about the way that Society at large views disabled people, and the fact that it is not really set up to be as inclusive, as they are claiming it is. It is far easier to overlook these issues, and put the onus on disabled people, as if it is somehow their fault, if they cannot gain employment etc,

nodramaplz · 27/03/2025 12:58

Haven’t they threatened this before? Why is this time different?

GuineaHyggaeReturnsWheeking · 27/03/2025 12:59

Secretmeetings · 27/03/2025 11:54

The cuts we will result in people paying themselves.

But many of those of us who have care and support workers through social services are paying for our care. Not everybody gets their care fully funded through direct payments. Our PIP funds this. If someone needs support to help them live independently or semi independently then there difficulties are considered severe anyway. So you can say what you want about mild conditions but no one who has a support or care worker even for only 4 hours a week has just a mild condition.

LadyKenya · 27/03/2025 12:59

Hallo1 · 27/03/2025 12:57

Well done to all the silly fkers who voted labour

People do not have a crystal ball. Maybe they could borrow yours, for next time.

GuineaHyggaeReturnsWheeking · 27/03/2025 13:02

@Hallo1 right, because of course the Tories never said anything about exchanging PIP for vouchers. The Tories haven't been the ones cutting services to the bone and selling off bits of our NHS piece by piece. 🙄

I'm politically homeless and don't support either of them. None of them have our interest at heart. Not sure the lib dems do either but even if they did they unlikely to get in within a coalition.

GuineaHyggaeReturnsWheeking · 27/03/2025 13:04

LadyKenya · 27/03/2025 12:57

Because then they will have to admit some home truths, about the way that Society at large views disabled people, and the fact that it is not really set up to be as inclusive, as they are claiming it is. It is far easier to overlook these issues, and put the onus on disabled people, as if it is somehow their fault, if they cannot gain employment etc,

Show quote history

I'm afraid this is so. You're absolutely bang on the money.

Canaryhead · 27/03/2025 13:59

LadyKenya · 27/03/2025 12:28

Disabled people, just like other people will tighten their belts, where absolutely possible. Many, are already in poverty. The point that I am trying to make, is when people forgo spending, on absolute necessities, it all affects the economy, which then in turn affects us all.

Can I just say I’m disgusted by the person acting like you getting your hair washed and dried at a hair dresser when you can’t wash it yourself is a luxury and suggesting you should just cut it off (undignified)
I needed my hair untangled and washed at the hairdresser when mine got all matted during depression.

verysmellyjelly · 27/03/2025 14:16

Losttheplotornot · 27/03/2025 10:57

Unfortunately this isn't true for everyone. I was downgraded with each pip assessment meaning now all 2s. The assessment isn't fit for purpose mine even contains what I assume is copy and paste evidence from another patient saying I set fire to the kitchen so cannot cook (but awarded 0 points) I never set fire to the kitchen.
Assessors always downplay need, even with reams of evidence, and award a fictional 0 or 2 when the score should have been higher now they'll have an even bigger incentive to give a 0 or 2 won't they? Now, what’s the betting that assessors will have a target or be otherwise pressured to award less than 4 to force people off PIP/save money.
I had a very indeph multiple occasion assessment (including independent doctors) unlike the 40 minute pip assessment and was awarded tier 2 nhs ill health pension (the highest they offer). This means they don't ever believe that I will be able to work in any job (in or out of the nhs). Yet the government are going to force me back to work. How am I meant to work/what job do they think I'll do? If I could work I would (I'd be on over double what I currently get from pension/benefits).
Yes the system needs to change but they are going about it all the wrong way. They need to sort the assessments out first, sort the nhs out (because we don't have supporting evidence when we can't access the care and some not all might not evenneed pip then). They need to have assessors who are trained to be fair and consistent, not downgrade to meet targets.
And most of all they need to stop the drip drip of disabled being a burden on our society/giving some information but not enough to understand what's happening because the mental health of the disabled is going to get worse with all this uncertainty.

Show quote history

Assessors don’t always downplay need.

PhilippaGeorgiou · 27/03/2025 14:19

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Canaryhead · 27/03/2025 14:20

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Oh, you again. Misquoting me and wasting everyone’s time. I only agreed with the removing of the prompting criteria which has been pointed out isn’t happening anyway. I also changed my mind about my opinion

PinkPonyPugClub · 27/03/2025 14:24

When I was awarded PIP, I took a long hard look at my finances and considered how the money could improve my quality of life. I don't owe anyone an explanation, but some of the things this has covered included:

Expensive shoes that aid my mobility
Glorious wash and blow dries on my long, thick afro hair that I can't do
Private physio
Decent voice dictation software
Convenience foods, like pre chopped fruit and veg
Small adaptations to my home

The result? The £72.65 I receive each week keeps me employed in a job where I earn enough money to live a comfortable life. If I didn't have a job, I'd be receiving a lot more.

EDIT: And my beloved dishwasher, who I possibly love as much as DH.

verysmellyjelly · 27/03/2025 14:27

@PinkPonyPugClub You are so incredibly lucky to be able to work. I’m glad the PIP is helpful in enabling that. Not being able to work is such a horrible position to be in, in terms of financial fragility and constant societal stigma. PIP is literally my only income so although I do get the highest rates and have an ongoing award, I mostly have to use it for day to day costs.

PhilippaGeorgiou · 27/03/2025 14:29

Canaryhead · 27/03/2025 14:20

Oh, you again. Misquoting me and wasting everyone’s time. I only agreed with the removing of the prompting criteria which has been pointed out isn’t happening anyway. I also changed my mind about my opinion

Edited

Show quote history

I am not going to get into an argument since people can read what you said. You were asked to have the thread removed because it was causing offense and refused because it was informative. I agree now - it is very informative.

FYI what you said was "So I can see that currently you can score 2 points across a number of categories for needing prompting. And I can see how that relates to mental health, and if you score enough you would then get the full amount of the care component, with the full mobility component if you say you need to have someone with you for your mental health condition (I agree they need someone with them but they shouldn’t be able to use that money to pay for a mobility car in my opinion if they aren’t physically or cognitively disabled)" so not at all misquoted.

PinkPonyPugClub · 27/03/2025 14:38

verysmellyjelly · 27/03/2025 14:27

@PinkPonyPugClub You are so incredibly lucky to be able to work. I’m glad the PIP is helpful in enabling that. Not being able to work is such a horrible position to be in, in terms of financial fragility and constant societal stigma. PIP is literally my only income so although I do get the highest rates and have an ongoing award, I mostly have to use it for day to day costs.

I’m very lucky that the nature of the work I do fits around my illness. My illness got much worse after I joined my primary employer, I’m not convinced I’d convince another employer to see past my disabilities.

I have been unable to work in the past and can remember the shitty toll it took on my mental health.

Lovettrer · 27/03/2025 14:39

Does anyone know what is happening with LWRCA please?
I currently get standard mobility and standard daily living (but no single 4 point award) and LWRCA.

If I lose my daily living or/and mobility at my next review does that mean I lose my LWRCA too and will be expected to work?

I don't really understand what is happening aand every time Instart to try and read about it I can't.

I didnt sleep for 48 hours lst week and ended up calling the crisis team because my mind wouldnt stop over this

Canaryhead · 27/03/2025 14:48

PhilippaGeorgiou · 27/03/2025 14:29

I am not going to get into an argument since people can read what you said. You were asked to have the thread removed because it was causing offense and refused because it was informative. I agree now - it is very informative.

FYI what you said was "So I can see that currently you can score 2 points across a number of categories for needing prompting. And I can see how that relates to mental health, and if you score enough you would then get the full amount of the care component, with the full mobility component if you say you need to have someone with you for your mental health condition (I agree they need someone with them but they shouldn’t be able to use that money to pay for a mobility car in my opinion if they aren’t physically or cognitively disabled)" so not at all misquoted.

Show quote history

Stop before I scream in frustration. You are infuriating

Fraudornot · 27/03/2025 14:51

@GuineaHyggaeReturnsWheekingbecause they have convinced themselves that the back to work scheme they are funding is going to make all these disabled people employable.

PhilippaGeorgiou · 27/03/2025 14:57

Fraudornot · 27/03/2025 14:51

@GuineaHyggaeReturnsWheekingbecause they have convinced themselves that the back to work scheme they are funding is going to make all these disabled people employable.

And because it has got to a stage where they have not only been successful in turning the general populace to a view that many people with disabilities are frauds that don't deserve support, but they have set even people with disabilities making their arguments for them. I don't think they are in the slightest bit convinced that back to work schemes will suddenly work when they never have before. Back to work schemes are a smokescreen to prove that people claiming benefits don't want to work because if they did they could IYSWIM.

Canaryhead · 27/03/2025 15:03

PhilippaGeorgiou · 27/03/2025 14:29

I am not going to get into an argument since people can read what you said. You were asked to have the thread removed because it was causing offense and refused because it was informative. I agree now - it is very informative.

FYI what you said was "So I can see that currently you can score 2 points across a number of categories for needing prompting. And I can see how that relates to mental health, and if you score enough you would then get the full amount of the care component, with the full mobility component if you say you need to have someone with you for your mental health condition (I agree they need someone with them but they shouldn’t be able to use that money to pay for a mobility car in my opinion if they aren’t physically or cognitively disabled)" so not at all misquoted.

Show quote history

In the thread you’re referring to, I have repeatedly clarified what I intended to say, not what you have interpreted me to say. I also apologised for the way that I came across more than once. And you have seen all of my comments, so you are twisting my words, and for what? It is infuriating. Several of your comments were also removed on my thread. I don’t know how your account still stands. I am name changing now, but I certainly shouldn’t have to.

FlatWhiteExtraHot · 27/03/2025 15:04

Normallynumb · 18/03/2025 17:11

I’m really worried after seeing the green paper. I have moderate cerebral palsy and receive enhanced rates of both components but IIRC, I don’t have 4 points on one category but 2/3’s which meet the total.
i am also in the legacy old ESA contribution support group, but if I don’t quantify for PIP Daily living, I may lose the Support group of ESA too
i realise that this has to be passed first but I understand the PIP criteria will change
The more I think about the knock on effect the more nauseous I feel
im shocked by the harshness of the proposed changes

Exactly the same here. Legacy ESA support group, having worked full time for nearly 30 years before I became disabled and PIP with plenty of points overall but I’m not sure I’ve got 4 anywhere.

I don’t imagine they will bother to reassess everyone, I imagine they will just look at people’s awards and remove the DL component from anyone who didn’t score a 4 on their last assessment. Ongoing, it will be nigh on impossible to get a 4 for anything as assessors will be even worse than they are now.

FlatWhiteExtraHot · 27/03/2025 15:12

Lyannaa · 19/03/2025 11:56

I have heard from a reliable source that although you are going to require more points, those points will be easier to get in the first place because the assessment criteria is changing.

Also, there is a suggestion that all assessments will be filmed. This is a good idea as it will stop assessors from telling lies. And that the outcome at the first stage will be fairer with fewer people having to go to appeal (which also costs the state resources).

Also, there is a suggestion that all assessments will be filmed. This is a good idea as it will stop assessors from telling lies.

If this is true, it would be amazing. My last assessor was an absolute bullshitter and scored me zero in every section on DL, and I went from maximum to nothing. Obviously it was reinstated on appeal, but I still haven’t got over how he lied about me and just got away with it.