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1000 replies

TeaSleepFood · 11/03/2009 14:45

I know there was no time and I feel all weighed down with the responsibility of it all, but here we are ladies, a new home...

OP posts:
Are your children’s vaccines up to date?
shabster · 22/04/2009 19:34

So not much going on at yours Frumpster!!!! Tom has been on the park (just across the road from our house) for the last two hours. Keep going to the front door and peeping at him The 'year 7 in crowd are there!!' He has shed loads of homework but we can attack that when he comes back. Good to see him running about like a loon!!

triplets · 22/04/2009 20:07

NEWS FLASH-After three phone calls, being faffed around by the receptionist and then being told to phone back tomorrow I have finally got an answer! I do not have cancer, and I do not have ibs either! What I have is a pocket of divertuli, which is not life threatening as you probably know, thank God! No treatment other than to up fibre and lots of water, or did he say wine . So good news, a relief but also a pain that it doesn`t ever go away, it will sometimes feel better but will flare up and can in extreme cases become infected and perforate and he said you will know it if it does. My father had that once, I remember the agony he was in!Oh he also said that the scan showed a slight problem in my rectum. It was something like a small tear caused by the finger up examination. Oh girls the joys of old age...................I need a drink

triplets · 22/04/2009 20:08

That should have been diverticuli!

snorris · 22/04/2009 21:15

Hello all. I feel a bit guilty coming here for your support when I've been AWOL for so long . Thank you for your messages, I'm just a mess of emotions at the moment .

This is something we knew was coming at some point but even the doctors are shocked at how soon it's come around. She's never been a good candidate for surgery due to her small blood vessels. Her heart has become very weak, almost certainly within the last 3 weeks. Her last cardiac appointment was back then and the consultant was happy with what he saw.
All they can really do for her at the moment to give drugs that support her heart and ease the burden on it. If there is a significant improvement they may then look at other options but the general consensus is that we are at the end of the road . TBH I'm not happy about putting her through surgery and invasive procedures if her life isn't going to be improved by it. In fact she might not even survive a GA.

We also have the other girls to think about (I feel so selfish saying that ) and I don't think we're doing anybody any favours by delaying the inevitable.

I hope I haven't upset anyone - I'm a great believer in quality of life - and little S has certainly enjoyed her short time with us.

duckyfuzz · 22/04/2009 21:24

oh snorris I wish I had something wise and comforting to say. You are very brave and loving and all your girls are lucky to have such a fab mum. Thinking of you all xx

shabster · 22/04/2009 21:30

OMG Snorris that is just horrific. I have no words of wisdom, nothing to say that will ease your pain.....but I can say that I understand your feelings and can totally identify with them. To have a child with heart problems is so very, very difficult and hard to bear.

I will be keeping you in my thoughts and am sending all our love and support. Dont forget you have my email and phone number and Im here for you any time you need to spill xxxxxxxxxxxxxxxxxxxxxxxxxxxx

AbricotsSecs · 22/04/2009 21:36

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Message withdrawn

shabster · 22/04/2009 22:16

This song is in my head and wont go away!!

shabster · 23/04/2009 06:09

Good morning girls xx

RubyrubyrubyRubis · 23/04/2009 09:08

This reply has been deleted

Message withdrawn at poster's request.

triplets · 23/04/2009 09:29

Dearest Snorris,
We are all so so saddened to read this, I can only too well put myself in your place as can Shabs. We feel helpless, but can only say you will make the right decision, you wil say you are not being brave, but you are. I wish I could wave a magic wand for you, I can`t, but I believe there has to be a reason for everything, as hard as it may be. Will keep you all in my thoughts, love Snorris and know how much we all deeply care. xx Trips

frumpygrumpy · 23/04/2009 11:45

snorris darling, of course you must come here ANYTIME you need. You can stay away as long as you like.....if the thread is running, you are part of it x.

Darling, I read your post last night and, very unusually for me, I didn't have words. Is your DD in hospital at the mo? Or home? And what support do you have? I hope you have friends and family able to bring cooking and take away laundry just to ease the pressure as you let all this wash over you and take it in.

Sweetheart, I am so very, very sad to hear your news. I wish I could make it different. Love to you all, fg xxxxxx.

frumpygrumpy · 23/04/2009 11:47

Mars has been at a birth for the last couple of days. She asked me to send you her love x.

shabster · 23/04/2009 14:07

Just read Snorris' status line on Facebook - it says that DD is off the oxygen and much happier xx

estar · 23/04/2009 14:47

Snorris, so much love to you and your family. What a horrible helpless situation to be in.

Just been looking at pictures of Seren on your Facebook, she is beautiful, like a little fairy.

(If it's not too frivolous...) Girls!I made MN blog of the week! Think they must have been a bit desperate though, it wasn't a very good one!

MarsLady · 23/04/2009 17:09
frumpygrumpy · 23/04/2009 18:24
shabster · 23/04/2009 18:30

'Really large G & T please oh mighty Frumpster'

frumpygrumpy · 23/04/2009 18:40

Let me know if it needs more gin honing .......

shabster · 23/04/2009 20:00

Same again please Frumpster

estar · 23/04/2009 20:44

Forgot to say, Triplets, sooo glad to hear that your symptoms are not hiding something sinister! Obviously it's rubbish that it's not something that they can treat but hopefully it will relieve a lot of the stress you've been under and hopefully the changes in diet will work. I think we have all been secretly worried about you, so know we can give a big sigh of relief!

estar · 23/04/2009 20:46

(Erm, Now. Now we can give a big sigh of relief. I have to correct myself incase my mother comes on here....)

RubyrubyrubyRubis · 23/04/2009 20:58

This reply has been deleted

Message withdrawn at poster's request.

snorris · 23/04/2009 21:04

Do I smell gin? . I think I deserve several one .

Jeez, what an emotional rollercoaster. I went into the hospital this morning expecting to see the scared little girl I left with her daddy yesterday, Instead I'm greeted by her sitting there without needing oxygen, bossing everyone about. The doctors certainly didn't expect to see this much of an improvment so quickly, but then S has always done what she wants!!
Of course this doesn't mean the overall situation has changed, just that we're in a better place. She hasn't been my little girl over the last few days and today I got a glimpse of 'her' again, which is how I want to remember her.

I have loads of support, my Dad works for himself so as much as possible he comes to visit and my Mum has been doing school runs too. My sister also lives not far from the hospital so she visits loads too. The ward itself is fantastic, probably it also recieves money from the Wessex Heartbeat charity rather than just having to rely on the NHS. Until dd4 was born I had no experience of children's wards and I was shocked by the difference between our local hospital and Ocean Ward. Although it's nearly 2 years since we were last there, most of the team are the same. Back in 2006 it became my second home for several months.

triplets · 23/04/2009 21:28

Wheres my margarita then?
Choccy covered nuts?
Mind you they might be a no no from now on..............life won`t be worth living........Snorris, you heart must have lifted to see your sweet girl like that, she is obviously a little fighter, been thinking of you alot today xxx

Shabs move over, my turn for the stool, just sprayed down the bobos with Diorella incase the lovely Nickos is on duty

New addition to the family has arived, and if I have my way it will be gone tomorrow. Bart Mashford........as named by its previous owner........6yr old Giant African Land Snail..........do I not have enough problems?

Estar, thank you for worrying about me, now if you could all just tell me how to get rid of the soreness please, it is a real pain. I am soooooooooooo relieved though to know it is nothing more sinister, must try and stop worrying!

Boys went to bed at 9pm, not a peep, which means they have sneaked their Nintendos up with them! Becs is singing, she cannot sing for toffee bless her, she`s practising for the talent show at school!

I feel restless tonight, wish something exciting was about to happen..........d`y know what I mean?

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