D'ya ever wonder how long the sun will last...?

[Sokmonsta]

Morning! Since its a sunny day here I thought I'd say sunny hellos. Unless of course anyone else has beat me to it and I've missed the new thread.

I love reading too, Trips. Nothing beats settling down with a good book. I get lost in them so easily. I'm currently reading The 100-Year-Old Man Who Climbed Out the Window and Disappeared and then reading The Wise Man's Fear for the DC and NICU.

What book you started, Trips?

DH is home and grumbling about a mother on NICU who kept sneezing. Sigh.

What a glorious morning, sun sun sun :) Just finished Gone Girl by Gillian Flynn..........quite a book! It was my choice for our book club, so girls here next Frid for supper to discuss. Now reading The Sea by John Banville. What to do today? Don`t fancy housework!

Think I'm still hormonal! Sat in the hosptal canteen and the Johnsons baby advert comes on, you know, when a baby is born. And I started crying! I got dress Artemis today she currently wearing a daisy yellow dress, it's big on her but so adorable!

I saw the Johnsons advert tonight and sobbed my heart out................

So glad I wasn't the only one!

Had a call from DH to say Apollo has a grade 2 bleed on the brain and something wrong with his heart; Patent Ductus Arteriosus, of course I went into panic mode wanting to head up there but he managed to calm me down so now I'm cuddling my sleeping boys and waiting for DH to come home so I can pry details from him.

Morning girls xx

Hope A can soon get sorted out - the medical world has made massive leaps and bounds over the years with regard to heart problems. x

Oh Mama, I admire your outward calmness, I am sure in side you must be so very worried..........if it was me I know I would have have gone straight to the hospital. I really hope its not as serious as it sounds. x

Mama - I hope your DH comes home with dome positive news about little Apollo
Soks- so sad you couldn't have some personal time with your parents, I hope you get to arrange some more soon.
Triplets - I used to spend hours reading, I just don't seem to get the time lately. I did spend several hours on Saturday morning in bed alone with my book, but that was the first time in ages. Both DH and I have been avid readers, and, luckily, this has passed on to both boys.
I was actually in a bookshop Saturday afternoon looking at books for the boys Christmas presents, I saw the "Alone" series they would probably like as they both enjoyed the Hunger Games books.
Shabs/Mama- I haven't seen the Johnsons advert yet, I'll have to get the tissues out just in case.
DH has just taken the care out for a test drive, fingers crossed he can use it tomorrow.

Update on Apollo; his PDA is too large to be left to see if it'll close on it's own so he tests today to see if he can have the iburofen IV that should close it, they said they'll give another course if this one doesn't work and if that fails they'll wait a week before booking him in for PDA Ligation. Apparently it's not unusual to see in preemies and they think it's what's causing his stats to fluctuate and why he's having a hard time breathing on his ownn. So good news, I think.

Everyone had a good day? X

Did you get to see him today Mama, I must be so difficult for you with your other lovely babes and only a week since you gave birth, I can`t imagine..............

Well I am dreading tomorrow. We are off to Lewisham Hospital in London to see Prof Sanjay Sharma, specialist in sudden death. He is checking the kids, last time he saw them was three years ago, their hearts now should be full adult size. I am sure they are all fine, but it brings it all back, the reason why we are there :(

I really hope you're proved right, Trips, and that they have wonderful adult hearts! X

I saw him for "my time" which is 9am-3pm basically the school hours. DH picks them up, we have family time and keep routines normal. He heads up around 8pm for about 5 hours. We'd love to be there all day and it's heartbreaking not being able to share moments with DH but I have to think of my kids and how special they are to me too. We make it work because we have no choice not the outcome I wanted or ever allowed myself to think about. Weekends we've decided to wing it. It's so hard! How you ladies did it I have bo idea! Superheroes.

Still unable to hold him but being able to do some normal things help and of course, Artemis' cuddles are like treasured gold.

... wow I need to stop ranting! X

Hope everything goes really well tomorrow Trips - I understand your anxiety....have been there and 'bought the tshirt.' I had them scan Matt and Toms hearts repeatedly when I was pregnant with them. Will be thinking about all of you and keeping everything crossed for a fantastic outcome xxxx

Thank you Shabs, you above all understand. Night night xx

Morning girls xx

Morning girls x

that does sound like good news for Apollo. Must be so hard leaving them in the hospital, I can't imagine it.

Good luck for today trips, I'm sure it will all be fine xx

I've still been busy a lot, trying to keep on top of everything this week, then at the weekend we're off to Norfolk to spend some time with my family - my dad is 60 on Friday! Really looking forward to that, we don't see enough of them.

dd is in the doghouse, I am really rather disappointed in her atm. She is developing an absolutely filthy mouth. She watched a you tube video, bascially a mash up of Gordon Ramsey, rearranged so he was talking about sex, mostly anal. So she then posts a load of rude stuff on facebook thinking it was funny, and on youtube. Stuff about 'mouth full of penus' (sic) and 'gangbanging'. She is 13 fgs! In general atm, all she cares about is sitting in front of a screen and her friends. She had a maths detention yesterday which she decided not to tell me about and so didn't go to it. So, she has been banned from facebook, her youtube account has been deleted and is having her time managed again so she WILL study and she WILL tidy her room, and she WILL shower!

...and breathe!

It really is shocking what young teens get up to online though. I monitor dd very closely, but I see all her friends and what they are getting up to, and I don't think their parents have a clue :( And this stuff is stuck there for eternity!

Totally agree Chops - Tom still has 30 private messages stored on FB....they are from the couple of years he was verbally bullied at High school. He has never spoken to one of the 30 people who sent the offensive messages. He says they are staying there until he is ready to delete them but, for now, he says that they make him realise how much progress he has made.

He has let me read them and they are disgusting, abusive and revolting. I have, by the way, forwarded them to the Head teacher.....sadly not very much was done about it.

I hate FB for younger kids......they have to be thick skinned and savvy to survive on there.

Chops, that's shocking! It's disgusting what kids deem funny these days. It may make them cool and funny to their friends but to everyone else it's nothing to be ever to be proud of. Does she not realise this is her education she's messing with. I mean, take that girl who resigned from that police apprentice because people found out about her twitter and her tweets about gay people. I admire your will, Chops, hope I can be firm and fair when my kids are older. Hope she realises what a great mum she has.

Can't believe my babies are a week old! K got to hug his sister on Saturday. He held her so gently! He's a proud big brother and Aubrey kept giving her kisses. The Child life specialist was so brilliant with them in helping them understand especially with Apollo. Grateful for them.

Any plans today ladies? How's the car, bubs?

Just heard the Baby P parole verdict. I lack faith in a justice system when they deem a cruel, cold hearted, unremorseful woman (doesn't deserve the title of mother) fit to be free. Anyone who allows their child to be abuse deserves no freedom, she lost that right the day Peter was cruely murdered. She's as bad as the man who raised his fist and stroke that poor child. Oh, I'm so mad.

And what is it with prisons these days since when does commiting a crime mean you get the luxuries of watching TV and playing video cames. You should be locked in box with only the nessessities and that doesn't include a yard to roam in.

Artemis has had to endure my rants and grumbles today, poor girl.

thanks ladies, i had wondered if I had overeacted in coming down so hard on her, glad I wasn't.

I was shocked too Mama, it's only been 6 years. They keep going on about her not being a danger to the public, but that's not really the point is it!

Update on Apollo: because he's being treated for an eye infection and has a grade 2 bleed they're not risking treating him with ibuprofen as he can't have due to the antibiotics he's on so it's a case of waiting for the bleed and infection to clear up and then try but will slow his progress as he's loosing weight and having longer periods of apnea as it is.

Or do the ligation but that's risky as he's not stable enough. They're in talks about it.

Artemis is doing great although now she needs high flow nasal oxygen on a night and still struggling with her temp. She's now latching and feeding but only for a few minutes due to her lack of patience and short temper!

Is the waste build up serious, Soks? Or will ease with time as she grows up? Poor mite, bet she loves being able to get about :)

How was the appt, Trips?

Rubs, Bubs... how are you? I feel like I'm missing someone out...

Hi ladies.......Shabs, could have done with you by my side today to hold my hand as you will understand the turmoil I was in. It was a very long day, we left here at 9am and got home at 8pm. The kids were so good bless them, sat all day waiting for ecg, echo, then our chat with the Prof. They are all fine, we thought this would be that last time he would see them, but he has decided that he would like to keep an eye on them for a while yet, a relief to me. He said Rebecca now has a normal adult ecg, he also told us she has a slight leakage of her mitral valve, as I do. He reassured her it is nothing to worry about, its quite common. The boys ecg is still as he termed it a childs ecg, meaning their heart is not yet adult size, apparently their is quite a difference on the ecg. He spent a long time with us and for the first time really spoke directly to the children, asking them about their life style etc. He also wants us to transfer over to St Georges Hosp where he has his own cardiology suite, he would like to see us there as he feels Lewisham cardiology dept makes it far more stressful than it needs to be. We waited almost 2 hours for the ecgs, then we were told the ultrasound scanner wasnt working so another wait for just under 2 hours. They then get it going and James goes in, next thing the fire alarm goes off and we were told to evacuate the building. I said I cant as my son was in the scanning room but they insisted I go. 20 mins late we were called back in, it had been a false alarm, poor James was standing in cardiology wandering where we had been.................I was stressed out. Before we even got there me and dk had a huge row at the station over which platform we needed as we had to change trains He really shouted at me, I stormed off to where I knew we had to go, kids followed, he did eventually and I was right. He then wouldn`t speak to any of us vitually all afternoon, I could have done with a hug and the kids needed abit of reassurance.................it was all very stressful. So anyway we can hopefully put that behind us for another year. I am very tired, thank you all for thinking of me, night night xx

So delighted you got good results Trips....so pleased for you - was waiting up until you posted I too would prefer to be kept under the consultants 'wing.' I can truly imagine your reaction when the kids were given the all clear. Have been thinking about all of you all day......as for DK - kick him in the nuts Trips - that will shut him up LOL