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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
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12
Cantstopeatingjaffacakes · 15/10/2026 20:00

OonaStubbs · 15/10/2026 19:53

We all need to cut back and lower our expectations of life.

Where exactly should I cut back? Should I stop eating or should my DC not eat? Or stop the weekly therapy that keeps my out of hospital that I can’t get on the NHS without waiting 2 years.

Sirzy · 15/10/2026 20:02

Nothavingagoodvalentinesday · 15/10/2026 19:51

Just a quick reminder that we are currently £3 trillion in debt.

And it’s the job of the most vulnerable in society to fix that?

Constantrunner · 15/10/2026 20:05

Cantstopeatingjaffacakes · 15/10/2026 20:00

Where exactly should I cut back? Should I stop eating or should my DC not eat? Or stop the weekly therapy that keeps my out of hospital that I can’t get on the NHS without waiting 2 years.

Pip isn't for you or your kids to eat, other benefits cover those costs.

FunPreventionOfficer · 15/10/2026 20:07

Allseeingallknowing · 15/10/2026 17:49

Because, unfortunately, some of the money isn’t spent on what it’s intended for?

What does that even mean? The money becomes part of the claimants income. How do you determine whether their possible salary or PIP payments went towards whatever the item that you feel they’re not entitled to purchase?

XenoBitch · 15/10/2026 20:07

Constantrunner · 15/10/2026 20:05

Pip isn't for you or your kids to eat, other benefits cover those costs.

Sadly, people on PIP use it for day to day costs because even UC is not enough.

Sirzy · 15/10/2026 20:07

It is always worth remembering that everyone of us is only one illness or injury away from becoming disabled. Nobody knows when they will need the system to help support them.

princessleah1 · 15/10/2026 20:10

What is it reasonable for tax payers to pay for? Tax payers aren't the wealthy, its anyone over the threshold, so some very low paid people. There has to be some kind of consensus on what is fair. I don't think it reasonable that the person who does a 12 hour shift care assistant job on the minimum wage is required to contribute towards taxis for people whose anxiety and depression means they feel unable to walk or catch a bus. Social prescribing is a better route to recovery and fairer for everyone.

Cantstopeatingjaffacakes · 15/10/2026 20:10

Constantrunner · 15/10/2026 20:05

Pip isn't for you or your kids to eat, other benefits cover those costs.

Sorry, maybe I should have been more specific and said that my kids couldn’t eat because I cut back on taxis / delivery costs for food because I didn’t have enough vouchers that week.

ThisZanyCoralShark · 15/10/2026 20:12

I would love to get the actual costs of my disabilities covered. Pip doesn’t even touch the sides. I work full time and pay tax. I couldn’t work if I didn’t have pip to pay for my physio outside of working hours for eg.

would it be preferable for me to be unemployed and going to physio appointments in the working day?

I go weekly. And I go to hydrotherapy every fortnight. And I have an adapted car, without which I couldn’t go to work. And it made getting reasonable adjustments easier because I didn’t need to argue about how disabled I am.

anyone who wants my pip has to take my disabilities to go along with it. I’d happily swap.

Ilovemum · 15/10/2026 20:12

So my extra coats for hubbies disability- epilepsy, ADHD, autism, dyspraxia, hemiplegia
The day before a seizure often he leaves a fridge/freezer open, or leaves something important somewhere...
Costs to get him places- can't drive, either needs someone to accompany him on a journey or get a taxi if it's not familiar. He can't plan a journey
Air-conditioning- in summer he has increased seizures and fatigue due to the heat
Increased costs because he is clumsy and loses things
Extra costs to get him to be independent- bagel cutter, adaptive clothing, different graters, different knives etc...
Honestly getting frustrated with these kinds of posts. Also because of his disability he wouldn't see the extra costs either- as he struggles to manage money and wouldn't delay buying something because there isn't money in the account.....

XenoBitch · 15/10/2026 20:13

princessleah1 · 15/10/2026 20:10

What is it reasonable for tax payers to pay for? Tax payers aren't the wealthy, its anyone over the threshold, so some very low paid people. There has to be some kind of consensus on what is fair. I don't think it reasonable that the person who does a 12 hour shift care assistant job on the minimum wage is required to contribute towards taxis for people whose anxiety and depression means they feel unable to walk or catch a bus. Social prescribing is a better route to recovery and fairer for everyone.

Social prescribing is very time limited. 6 sessions where I live. They pass you on to other agencies. They don't actually really help with anything practical.

ThisZanyCoralShark · 15/10/2026 20:14

XenoBitch · 15/10/2026 20:13

Social prescribing is very time limited. 6 sessions where I live. They pass you on to other agencies. They don't actually really help with anything practical.

I got six sessions of over the phone counselling via the gp. It was a complete waste of time. I was able to access better provision via my work. Which I wouldn’t have been able to do if I hadn’t been working in the first place.

BillieWiper · 15/10/2026 20:17

If someone is too unwell to work then every cost that exists to keep them alive is an extra cost due to disability as if they were well they'd be working. Or working more if they can manage some work. So the costs of day to day existence would be covered by their wages. If someone can work but is on pip it's often the pip that enables the person to afford to get to and complete their work.

XenoBitch · 15/10/2026 20:17

ThisZanyCoralShark · 15/10/2026 20:14

I got six sessions of over the phone counselling via the gp. It was a complete waste of time. I was able to access better provision via my work. Which I wouldn’t have been able to do if I hadn’t been working in the first place.

6 sessions is a joke. It can take that many to get to trust them.
I think too many people overestimate what the NHS offers when it comes to MH issues, especially from primary care.
If you can't get buses because it causes you distress, your GP will tell you not to get them.

Allergictoironing · 15/10/2026 20:19

I managed to forget my largest cost - seeing my therapist at least once a month at £60 a time.

NormasArse · 15/10/2026 20:20

I doubt I’d qualify for PIP, but my condition leaves me exhausted, so I’d love to be able to cut my hours, but I wouldn’t be able to afford my bills if I did. When I have time to recover between working days, the difference is very real.

I don’t think it’s always about ‘things’.

ThisZanyCoralShark · 15/10/2026 20:23

I couldn’t go to work without my pip. I’m a tax payer. I pay more in tax than I get it pip. I still couldn’t afford my adapted car. (Which I had to pay a large payment towards and I pay for every month)

princessleah1 · 15/10/2026 20:24

Social prescribing is limited because the hope is that people find their own solutions, which is whats needed. People whp pay taxes can't provide extra money for years on end for some of these conditions (neurodivergence without LD, anxiety and depression for example) there has to be a limit especially as we have fewer and fewer tax payers.

LizzieW1969 · 15/10/2026 20:25

JustAnotherWhinger · 15/10/2026 18:56

The best way to cut the cost of PIP (and ESA) would be to do proper assessments, get the decisions right first time far more often and lose the costs of so many appeals.

The number of people who win their appeals despite sending no new evidence is staggering. Could you make the wrong decision as many times as DWP decision makers do and have them overturned by expensive independent appeals panels and keep your job? I seriously doubt it.

When my DD had her last appeal she waited 11 months. We went to a building with at least 15 rooms. Each of those rooms had a legal professional and a medical professional. Many also had a welfare rights professional. The cost of that set up must be phenomomal when replicated over the whole country.

My DB had to appeal twice. He wouldn't have got through this without the help of my DM and an agency’s support. He hasn't been able to do paid work in over 30 years due to his MH issues and recently diagnosed autism.

ThisZanyCoralShark · 15/10/2026 20:28

princessleah1 · 15/10/2026 20:24

Social prescribing is limited because the hope is that people find their own solutions, which is whats needed. People whp pay taxes can't provide extra money for years on end for some of these conditions (neurodivergence without LD, anxiety and depression for example) there has to be a limit especially as we have fewer and fewer tax payers.

Pip is not an out of work benefit. I pay taxes too.

XenoBitch · 15/10/2026 20:30

princessleah1 · 15/10/2026 20:24

Social prescribing is limited because the hope is that people find their own solutions, which is whats needed. People whp pay taxes can't provide extra money for years on end for some of these conditions (neurodivergence without LD, anxiety and depression for example) there has to be a limit especially as we have fewer and fewer tax payers.

Social prescribing is not the be all and end all. No one has their 6 sessions and is "cured".
People hear about people on benefits with MH issues and they automatically think depression/anxiety.
A social prescriber can sign point someone with paranoid schizophrenia to some craft groups, but they are never going to get them fit for work. They were never about getting people fit for work anyway. They are about getting people out and engaging with things. Because getting out and engaging with things can help with MH issues. And you need to work on that long before employment comes into it.

Kirbert2 · 15/10/2026 20:31

roaringdragon · 15/10/2026 19:53

If DD is eligible for FSM but can’t access them for medical reasons, have you requested an alternative (vouchers, monetary payment, etc.) instead? If you haven’t, on their website, Contact has model letters people can use.

DS1 has multiple severe allergies, but for us, the costs associated with his allergies are minor compared to the cost of his other disabilities.

Edited

Yep.

My son doesn't have food allergies but there's certain foods he has to avoid medically and those costs are also minor compared to his other medical/disability costs.

otnot · 15/10/2026 20:37

princessleah1 · 15/10/2026 20:10

What is it reasonable for tax payers to pay for? Tax payers aren't the wealthy, its anyone over the threshold, so some very low paid people. There has to be some kind of consensus on what is fair. I don't think it reasonable that the person who does a 12 hour shift care assistant job on the minimum wage is required to contribute towards taxis for people whose anxiety and depression means they feel unable to walk or catch a bus. Social prescribing is a better route to recovery and fairer for everyone.

How exactly is social prescribing going to help my multiple sclerosis? How will it help my brother's cerebral palsy? How would it have helped my mother's severe rheumatoid arthritis? My aunt's down's syndrome?

CassandraWebb · 15/10/2026 20:39

BillieWiper · 15/10/2026 20:17

If someone is too unwell to work then every cost that exists to keep them alive is an extra cost due to disability as if they were well they'd be working. Or working more if they can manage some work. So the costs of day to day existence would be covered by their wages. If someone can work but is on pip it's often the pip that enables the person to afford to get to and complete their work.

True but again it's not a binary
I don't get PIP so work full time but have no quality of life outside of work so it takes everything from me. I am usually in bed when not working.

Benefits aren't just paid for by people in rude health. They are paid for by people gritting their teeth and battling on at work despite severe chronic illness /disabling conditions

ThisZanyCoralShark · 15/10/2026 20:41

CassandraWebb · 15/10/2026 20:39

True but again it's not a binary
I don't get PIP so work full time but have no quality of life outside of work so it takes everything from me. I am usually in bed when not working.

Benefits aren't just paid for by people in rude health. They are paid for by people gritting their teeth and battling on at work despite severe chronic illness /disabling conditions

They’re also paid for by people on pip.

I pay taxes every month. Pip is not an out of work benefit. I pay much more tax than I receive in pip.

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