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How can we manage financially as Universal Credit support reduces?

1000 replies

elliejjtiny · 26/05/2026 12:19

We have 5 dc aged between 19 and 11 all with disabilities. Dh was a manager up until youngest was born, then he became unwell and had to take a massive pay cut. I'm a Sahm and get carers allowance. We get UC. Dc1 in his first year at uni, dc2 about to start in September.

We are just about managing at the moment but barely. In September we are going to lose the child element of universal credit for dc2 and I'm worried how we are going to manage. When the dc were younger I thought I would be working by now but I'm only getting 4 hours sleep a night and my 11 year old needs constant supervision when not at school so I don't know how I could fit work in. Dh has to work away about 15 weekends a year (from friday morning until late Sunday night) which leaves me completely exhausted each time. We spend 9 weekends a year picking up/dropping off/visiting dc1 and I imagine spending the same amount of time with dc2. There is no childcare for children my dc age with SN and they have to be picked up and dropped off at school. The dc have appointments about once a week on average and dc4 stays in hospital about 1 night a year when I don't get any sleep at all.

Realistically I can't think of any employer who would employ me with the amount of time off I would need and on so little sleep. At the moment I spend the time dc are at school doing the housework, cooking the dinner and trying to catch up on a bit of sleep.

I'm trying to think of anywhere we could save money but I can't think of anything. Dc1 doesn't cost any less money while he is at uni.

OP posts:
Crimpit · 26/05/2026 23:48

ForWittyTealOP · 26/05/2026 23:45

I think there's a lot of data harvesting by companies putting up jobs on sites like Indeed - which UC work coaches tell people to use to apply for three jobs daily. These jobs seem not to exist in reality, they never come to anything but they require a lot of information in the applications. So I guess it looks like there are plenty of vacancies but in reality these jobs aren't genuine.

Yep, ghost jobs etc.
I see them on FB. You click on the link and it says job is no longer available.
People spend time on an application, send it off, and it is rejected minutes later at 2am. Fucking AI.

ForWittyTealOP · 26/05/2026 23:48

Crikeyalmighty · 26/05/2026 23:42

I don’t agree with you on all things , but I must admit I do kind of agree here - I cant quite see why you would carry on having disabled children one after another . Obviously if they were not and then became so when onset that’s different but that seems unlikely to be the case here multiple times

Do you realise that you are dehumanising disabled people when you post like this? Disabled lives are as valuable as anyone else's, not a terrible thing to be avoided where at all possible. Any disabled person reading this sort of rhetoric will be in no doubt that those who use it believe it would be better if they didn't exist.

ForWittyTealOP · 26/05/2026 23:49

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ForWittyTealOP · 26/05/2026 23:50

Crimpit · 26/05/2026 23:48

Yep, ghost jobs etc.
I see them on FB. You click on the link and it says job is no longer available.
People spend time on an application, send it off, and it is rejected minutes later at 2am. Fucking AI.

It's odd, as well, that the DWP is so insistent that people apply for jobs with Indeed. Nobody gets these jobs as work coaches very well know. 👀

IsEveryUserNameBloodyTaken · 26/05/2026 23:51

Simplelife1 · 26/05/2026 19:21

So they don't have mobility issues? Someone else has driven them to said parking space? Why do they need to be on the doorstep of where they want to go? They are able to walk medium distances? Nope no blue badge needed

Ya what.

TheTideIsNigh · 26/05/2026 23:51

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I'm hardly scared of your opinion, just amazed by it.

Goldencoast2 · 26/05/2026 23:52

ForWittyTealOP · 26/05/2026 22:58

I think you'll find it's "hardworking (sic) taxpayers"!

I suppose they could sell tickets for said hardworkers to visit the institutions for a look, let the useless eaters earn their keep? 🤔

I understand that you’re trying to imply that you are more educated than the rest of us, but I think you need to review the appropriate use of “sic”.

Uni is a commonly used term for university in Australia, it is not a typo or grammatical error.

Hardworking is now an accepted alternative to “hard-working”: see Oxford Learner’s Dictionary, Merriam-Webster Dictionary

Crimpit · 26/05/2026 23:53

ForWittyTealOP · 26/05/2026 23:50

It's odd, as well, that the DWP is so insistent that people apply for jobs with Indeed. Nobody gets these jobs as work coaches very well know. 👀

It is nuts. My work coach wanted me to apply for jobs you needed an HGV license for, and I am not even allowed to drive.
The big job agencies seem to be shit now anyway.

ForWittyTealOP · 26/05/2026 23:55

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TheTideIsNigh · 26/05/2026 23:55

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And apparently making sense is not yours. Oh well.

Crikeyalmighty · 26/05/2026 23:56

Crimpit · 26/05/2026 23:44

I am sure OP said they are all ND.. and that can take years to be diagnosed.. and most likely OP and her DH are also ND too.
A lot of parents get diagnosed after their kids do.

My son is ADHD diagnosed at 19 -he was a pain in the backside albeit I loved him to bits between 11 and 16 but I must admit it never stopped me working. It is quite alarming to me though how much this seems on the rise - I’ve got neighbours both sides that are in their 60s both with a severely autistic child at home.

Feis123 · 26/05/2026 23:58

I thought I was leaning towards Old Testament, center-right politics, but I am distinctly uneasy about what I read on this thread - some comments smack of the Third Reich ideology. Reading it makes me feel uncomfortable. I am trying to understand, but not succeeding.

ForWittyTealOP · 26/05/2026 23:59

Goldencoast2 · 26/05/2026 23:52

I understand that you’re trying to imply that you are more educated than the rest of us, but I think you need to review the appropriate use of “sic”.

Uni is a commonly used term for university in Australia, it is not a typo or grammatical error.

Hardworking is now an accepted alternative to “hard-working”: see Oxford Learner’s Dictionary, Merriam-Webster Dictionary

Sorry you don't understand subtle irony. My use of "sic" was perfectly placed, used as it was to point out a very deliberate and specific use of language by politicians and the press in recent years to create a false dichotomy between the "skivers" and the "hardworking" (sic).

I'm not trying to imply that I'm more educated than the rest of you but statistically speaking I probably am among the better educated here. That's not an insult. It's fact. What do you want me to do about that?

Crimpit · 26/05/2026 23:59

Crikeyalmighty · 26/05/2026 23:56

My son is ADHD diagnosed at 19 -he was a pain in the backside albeit I loved him to bits between 11 and 16 but I must admit it never stopped me working. It is quite alarming to me though how much this seems on the rise - I’ve got neighbours both sides that are in their 60s both with a severely autistic child at home.

That sounds really difficult for your neighbours. Parents of disabled kids worry about the future.

ForWittyTealOP · 27/05/2026 00:01

Crimpit · 26/05/2026 23:53

It is nuts. My work coach wanted me to apply for jobs you needed an HGV license for, and I am not even allowed to drive.
The big job agencies seem to be shit now anyway.

Everything is so difficult. There are so many barriers that people are supposed to clear. Lots will never get off the ground, then they're blamed by society and sanctioned by the DWP for being unable to achieve the impossible.

Autumngirl5 · 27/05/2026 00:02

Thousands of people including myself would have liked more children but realise that it is unaffordable. Why then should we pay for others who go ahead and have large families I realise this is an unpopular view but It is the reality.

Crimpit · 27/05/2026 00:03

Autumngirl5 · 27/05/2026 00:02

Thousands of people including myself would have liked more children but realise that it is unaffordable. Why then should we pay for others who go ahead and have large families I realise this is an unpopular view but It is the reality.

Nothing physically stopped you.

Goldencoast2 · 27/05/2026 00:06

ForWittyTealOP · 26/05/2026 23:59

Sorry you don't understand subtle irony. My use of "sic" was perfectly placed, used as it was to point out a very deliberate and specific use of language by politicians and the press in recent years to create a false dichotomy between the "skivers" and the "hardworking" (sic).

I'm not trying to imply that I'm more educated than the rest of you but statistically speaking I probably am among the better educated here. That's not an insult. It's fact. What do you want me to do about that?

Nice attempt to redirect, but that explanation doesn’t hold up for your use of the term in relation to uni.

I think what you “should do about it” is refrain from petty attempts to critique the writing of other people on a public forum.

eatreadsleeprepeat · 27/05/2026 00:07

In the eyes of UC your household has dropped, in term time at least, by two adults. Your eldest two are no longer being fed on a day to day basis so you will probably see a reduction in your food bills. That is your first saving.
DC1 needs to appeal or reapply for PIP and should use student services to check that he is getting all the financial help he is eligible for. If he is able to work in the holidays then he should contribute to the household finances.
DC2 needs to do the same with regard to funding. Is there any form of remote work he can do in the long summer holiday where elective mutism would not be a problem?
After that you need to sit down and really look at your budget. Where exactly is the money going each month, can you identify savings. After you have accounted for all the essentials is there money left for trips to see DC at uni? You might have to reduce the frequency.

BrokenWingsCantFly · 27/05/2026 00:09

Crimpit · 26/05/2026 22:14

Also, her DH is on less money due to illness.

She said he is on less since the youngest was born. They have had 11 years to get use to that

ForWittyTealOP · 27/05/2026 00:12

Goldencoast2 · 27/05/2026 00:06

Nice attempt to redirect, but that explanation doesn’t hold up for your use of the term in relation to uni.

I think what you “should do about it” is refrain from petty attempts to critique the writing of other people on a public forum.

Yeah, we'll agree to differ there. Mainly because I knew what I meant and you don't.

GiaGia16 · 27/05/2026 00:12

Autumngirl5 · 27/05/2026 00:02

Thousands of people including myself would have liked more children but realise that it is unaffordable. Why then should we pay for others who go ahead and have large families I realise this is an unpopular view but It is the reality.

It isn’t an unpopular view, it’s an opinion shared by many.

ForWittyTealOP · 27/05/2026 00:14

ForWittyTealOP · 27/05/2026 00:12

Yeah, we'll agree to differ there. Mainly because I knew what I meant and you don't.

To add, I was being a little snobby about "uni", it's true. I was outraged by the idea that higher education exists solely for the purpose of getting a job.

I don't owe you that explanation but I hate being misrepresented, particularly by people with an axe to grind.

BrokenWingsCantFly · 27/05/2026 00:14

5128gap · 26/05/2026 22:22

No, I know she isn't expecting to pay for their tuition. But if she says DC1 costs just as much now, I'm assuming she is still paying for or towards their living expenses, food, travel etc, which is unrealistic in her position.
In theory the benefits lost to the household should be off set by no longer having the expense of keeping the newly independent child.

Oh ok, I missed that bit.

She also said he had a part time job, he will also be entitled to the full loans/grants available, so no idea how he could be costing just as much

99bottlesofkombucha · 27/05/2026 00:18

Northermcharn · 26/05/2026 15:05

I'm so fed up of paying taxes which then pay for other people to e.g. have more children (and not pay tax). Absolutely sick of it. As are millions of others.

Taxes are supposed to help pay for a safety net in benefits, old age, illness etc. This makes sense. We all agree about this (I think).

Benefits are not meant to be there as an assumed way of life.

I’m fed up with people who can’t read. She’s explained it all, how her dh lost his job, how they didn’t know the dc were disabled. How the youngest was conceived while using 3 kinds of contraception.

actually you know what? There are legitimate reasons for not being able to read, maybe you’re dyslexic. There are not legitimate reasons for having no compassion for life circumstances or for coming online to kick someone who’s struggling. I’m fed up with people who do that. Like you have.

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