Dr Shehata advice

[Wolfemum]

Hello, I am currently experiencing my 3rd consecutive miscarriage and my 2nd MMC. I have been told I will now be referred to the RMC unit but due to my age (42) i think I need to go privately and I was wondering what your opinions are on Dr Shehata? I've heard he has a brilliant reputation but is quite focused on NK cells and less on other things. Can anyone share their thoughts, opinions experiences?
My first pregnancy was healthy and resulted in my 6 year old boy but the last 2 MMC we saw a heartbeat at 6 weeks but then no growth or heartbeat at 7/8 weeks.
Many thanks for reading

@MeganBistram thank you. I definitely feel pressure less the financial aspect more the emotional impact is has on me and all aspects of my life. I’m trying to just carry on as normal but I’m planning to go back to work tomorrow and already worrying if the nurses give me patients I can’t see…I don’t want to do any manual handling until my scan but I still want to work. It’s so hard 😞 I think I’ll give crp a call on Tuesday and see if they can bring the scan forward at least a few days. Can’t have it on the 5th September as it be a year since we lost lovely father in law. The one on 8th is also at 2pm which is also a pain in terms of Friday traffic on m25…literally the first thing I mentioned when they offered it to us…but then if it is bad news we then have the weekend to be sad…it’s so tricky.
xx

@JandL2020 its just horrible I really do feel for you, I have had a lot of friends do IVF and that was extremely stressful without the added anxiety of losses.

have you had anymore spotting? I am with CRP on the 7th and I literally couldn’t get in any other time must be a busy week post holidays maybe? Any other time booking the scans has been fine.

I took my last steroid yesterday and my last progesterone. It feels so weird / concerning that I only have my vitamins and hydroxy now.. feel bare haha xx

@MeganBistram yeah it’s a double blow. And not met many people who have gone through what I’ve been through…everyone just thinks ivf is the answer to everything 😩 I need to change my appointment now as other half can’t make the 8th … so I’m hoping they have 6th available. They did offer that initially…tried calling them today but think they must be closed with bank holiday. Arghh what if they can’t fit me in 😩
must feel good not having to take those pessaries anymore!
can you tell I’ve stressed by the 😩 emojis lol
xx

Hey all, just got back from Greece and been reading over the messages. It was a nice break now back into it all.

@KatyTTC so so sorry to hear your news about your mum. You were so brave to go the that wedding. My brother was given 1 year to live 3 years ago with stage 4 terminal bowel cancer, and is currently cancer free after going down an integrative treatment route. Like we have all experienced, sometimes combining treatment outside the nhs if possible can help.

@MeganBistram wow you have done amazing, nearly finishing your meds now. Huge milestone

@JandL2020 really hope your scan goes well. Thinking of you

I have had my first intralipid today and have the wait now. I am trying to not get my hopes up too much.

@Lara8 hope you had a lovely time away. I am in France and back tomorrow. Not looking forward to getting. Back to reality 🙈

@JandL2020 did you manage to change your scan date? Have you had a repeat HCG yet? How are you feeling in general.. have things settled down a bit?

@Hope646 @whatsgoingon22 how are you both getting on? I have my midwife’s 16 week on Monday to listen to hopefully the HB. Then CRP scan on Thursday.. it’s such a weird time the drug reduction has been a amazing for how I feel but not good for anxiety as I don’t feel pregnant anymore and don’t look pregnant which I remember with my son but obviously back then life was easy .. I had never experienced loss and it never crossed my mind xx

@Lara8 oh Greece how lovely. Thank you. Got my fingers crossed for you this cycle. @MeganBistram great news you have finished meds now. I managed to change the scan to Thursday luckily. It’s still with Dr Edge.
got counselling session this morning…have to try and not cry the whole way through 😩

hope everyone’s doing okay xx

@MeganBistram we must have posted same time 🤣 I’ve calmed down a bit
now got scan changed. I had blood test yesterday but it missed morning courier so I imagine won’t get results until later today..absolutely so scared of low number/slow rising.
I know I need to stay positive xx

@MeganBistram got the call during counselling!! Hcg is 2953 so has more than doubled from initial test last Wednesday at 249. I’m tempted to get another test done tomorrow somewhere around privately. Or just wait for scan now. My progesterone is only 104. I think that’s a bit low..nurse said she will speak with consultant after theatres x

@JandL2020 amazing that sounds incredibly positive. I think but completely up to you that it will be a waste of money as it’s doubling nicely.
my progesterone was 120 but as they explained to me it can change considerably throughout the day.. I think anything over 60 is considered a good viable amount but deffo see what the consultant has to say xx

@MeganBistram yes you’re right. I guess I’m worrying cos its always been over 100 on transfer day and it was 83 and only risen to 104. I didn’t realise it fluctuated so much. I’ll get it repeated by my GP anyway. I have an appointment Thursday and blood test following Tuesday (earliest I could get it booked in). The counsellor recommended I get booked asap so I can access support early xx

Hey everyone, how are you all doing? Sorry I’ve been quiet. Trying to get through each day a step at a time but struggling a bit🫤my next scan is next Friday with Nhs and two weeks is the longest I’ve gone without one so far. Feel like some of my symptoms have decreased/gone. Still have brown/ light brown/yellowy spotting. Don’t feel as bloated or any nausea any more 🫤think I may also have gotten thrush 🫣@MeganBistram did you say you got it too? What did you take for it?
hope everything is okay but so hard when we don’t know from one minute to the next❤️🙏🏻
how is everyone doing? @JandL2020 your hcg sounds great. My progesterone was 99 and then 89 in the early days and they didn’t raise any concerns. When is your scan? how are you feeling?
@MeganBistram how are you doing now? Are all your appointments etc week? What’s the longest you’ve gone waiting for scans? Are your symptoms changing? Are you feeling different now?
@Hope646 hope you’re okay my love, how are you getting on darling? xx

hope everyone else is okay and keeping well too ❤️❤️❤️

@whatsgoingon22 hey Hun…how many weeks are you now? Is this the wait between 10-12 week scan? The wait is torture. I also don’t have many symptoms which is worrying…can only hope it’s the steroids masking them?? Sorry about the thrush too 😞I’ve spent most of the day crying 😢 struggling to keep it together too. Doesn’t help that my GP has flatly refused to do the blood tests that CRP need…even though they did it for me back in March?! Why is a postcode lottery when it comes to how women’s health is treated. It’s disgusting. I felt so awful and neglected, just because I am paying for private treatment doesn’t mean I can’t access routine blood tests. I feel so angry and upset. I took my dog out earlier for a super long walk to take my mind off things. I bloody love my dog he’s my fur baby at the moment he’s laying next to me, he’s such a comfort whilst I’m feeling this way. My other half’s work also won’t let him take paid leave for the scans. So that’s another bummer!! He’s been at company for 10 plus years ffs. I’ve told him to be a bit more upfront but he’s very private person and doesn’t like to make a fuss. Whereas I work for NHS and quite honestly not a massive fan of them right now so will exploit all the paid sick leave etc I can get. I thought work would take my mind off things but I’ve realised I actually don’t like my job much and I’m just not really living. My main goal is to have a family so I can’t be happy until I’ve achieved that.
“I’m not living, I’m just killing time”
sorry for long negative post.
I feel like I’m always negative xx

Oh @JandL2020 bless you ☹️dont be hard on yourself. Be negative if you want, be sad if you want, sometimes we just need to have those releases and then sleep it off. I was like that the other day - burst into tears 4 times out of nowhere.

Really annoying about your GP, did they say why didn’t want to the bloods? We’re not rolling in it by any means so I know every little helps. So frustrating. My hubbie is self employed so he won’t get any leave/pay anything at all 🫤

I bet it’s the drugs and hormones playing with our moods and emotions too.
im sure it’s the drugs masking the symptoms too, that happened me in the early days. Didn’t get any nausea until later on but now that’s gone too. I should be around 11weeks 5 days now❤️🙏🏻. Yeh I have Nhs one on 8th and Crp on 11th. My doggies are everything to me too ❤️they’re just the best ❤️snuggle up and get a good night sleep xxx

@whatsgoingon22 it’s an emotional rollercoaster isn’t it? Funny enough I was woken at 5.30am this morning with feeling sick 🤢 I’ll be 6 weeks on Monday, I know it’s still very early for symptoms but found that to be reassuring. It could have also been the massive chicken dinner I had last night 🤣
they said cos I was private patient and there are legalities…well they did same tests for me back in March no problems. That was when I was assessed by a woman. This was a young male GP who didn’t even know what miscarriage was on look on his face. Absolute twat. The senior partners at my GP are all in agreement. I will write a letter of complaint once I’ve calmed down a bit and have the important scans out the way. I think symptoms can ease after 10 weeks can’t they?not long until your scans, your nhs one is day after mine. Xx

@JandL2020 hope your feeling ok, sorry you had that rubbish GP experience. It is so invalidating when dealing with the likes! Really hope it goes well for you! I’m also struggling with the emotions from all these drugs/hormones too. I am an absolute witch and hate it!

My 10 day wait is up on Thursday so I’ll be testing. I don’t feel any symptoms so not too confident (probably intentional to avoid disappointment)but still have the wishful dreaming which feels dangerous.

@whatsgoingon22 gosh it’s horrible all the waiting and praying. I lost the sickness around 7 weeks when the steroids fully kicked in. I had really bad taste issues and sore boobs but other than that pretty much ok.. except for being the size of a house lol.

i went 2 weeks in the 10-12 scan and then now it will be 4 weeks by the scan on Thursday which mentally has been the worst as symptoms drop and you can feel nothing so just have to trust you’re still pregnant. I do however have a Doppler which I know is massively controversial but it’s the only thing keeping me sane. I have modwifes on Monday. I am pankicking at the 16 week they will find a problem and the pregancy won’t be viable.. but hey we take it day by day.

yes had Thrush twice and oral thrush I did the normal canesten.

@JandL2020 gosh it all sounds horrible. My work have been so great.. although we decided that I do the Epsom ones alone and the nhs ones with my husband. The way I got around my GP was getting CRP to write a letter saying I needed the tests and then they did them. Such an added stress you don’t need.
how you feeling. About the first scan?

@Lara8 good luck darling 🥰 xx

@Lara8 thank you. It’s crap but not much I can do. Nuffield health is cheaper for bloods than CRP so will just have to pay for those…still over £200 though. I’m a witch too 🤣 oh best of luck for Thursday xx
@MeganBistram I know what you mean about the taste thing…my breakfast cereal tastes of saw dust. I still don’t think they will do it even with a letter. I tried that before with the ivf clinic re to prescribe progesterone. They were of course not interested!! Even with the changes in the guidelines.
I’ll consider doing the Epsom scans on my own. My mum has even offered to come with me and she’s not close by. I just don’t want to go to a scan and there be bad news and I don’t think I would cope being on my own. After I told my other half my mum was going to come he said “don’t be stupid” so think he’s just going to take the leave and come to everyone with me.
ive never got past the viability scan…it’s always been bad news….so already I know I won’t be going in with much positivity. I’m pretty sure I’ll be crying the entire time whether it’s good or bad news.
when should I register with the nhs midwife? After viability scan? Feel likes it tempting fate before that?xx

hi girls!

Thank you all for your lovely words. I’m still following the thread and reading updates daily even though I haven't posted for a while.

@Lara8 I’m testing on Friday! Good luck lovely!

Sending you all lots of love wishing those of you with tests or scans coming up the very best of luck.

😘 xxx

Hey lovely ladies. So sorry for being so quiet here lately. lately the spotting wasn’t helping with the anxiety.. one day i had a really bad panic attack.. burst out crying feeling I was going to have miscarriage any min..even though spotting wasn’t too bad.
Every scan or check up I have, I feel calm for a day and then the fear of what will happen until next scan kicks in. I was so anxious about my scan yesterday at CRP but thankfully it was good. I was measuring 8 weeks and 5 days. Still does not feel real at all. I kept being told by the Dr that week 10 scan is very important. So I feel it all depends on that. its booked for next Friday. I feel the anxiety will take me to epu in between.

I was told about harmony test and the fetal medicine test in week 12 at CRP. Especially how much fetal medicine can tell about baby (genetically, heart condition and other organs) I am not sure @MeganBistram and @whatsgoingon22 if you ladies have done any of these tests with CRP? Or whether nhs covers that anyway? Is it worth going for either?

@JandL2020 congratulations on the HCG rise. Those are good numbers. I never got my progesterone measured in this pregnancy. Sorry to hear your GP is not being helpful. With mine it was very clear, one doctor is very cold. But the doctor and nurse who both have gone through miscarriages, they were very understanding ones. I was asked to ask CRP to write the list of bloods in an email and that was the 3 months health check: blood count, liver, kidney function and clotting. GP accepted it. It shocks me how some individuals don’t realise how a little bit of understanding can be a big support to our situation.
I am not sure how much this would help as I need to also keep myself convinced 😂. But I felt exactly as you. I never thought I would see a heart beat in week 6 as I never did in my previous pregs but under this protocol I have come this far, I have all the confidence for you. This time it will be different for you too. It will be different for all of us..I need to fully accept this too 😂 I have everything crossed for you ❤️

@MeganBistram @whatsgoingon22 my symptoms come and go. one thing i still feel which I hope it doesn’t go away is when I wake up from the night sleep, my boobs feel really sore. Throughout the day it comes and go. Sometime I feel bloated, sometimes I don’t.
But the food aversion has been crazy. I don’t know whether it’s the pregnancy or the medication. I used to eat avocados, homemade smoothies, granola..now I feel sick even thinking about those healthy food. My appetite is crazy. I dislike sugary food now which is good. It just leaves strange after taste. But I keep eating nonstop. It is not normal or healthy. My taste bud is so confused right now. I don’t know how to satisfy it anymore. I have gained so much weight. It’s scary.
i feel if I wasn’t taking prednisolone, my nausea would have been really bad.
@MeganBistram good luck for your scan on Thursday. It will all be good 🙏🏻
@whatsgoingon22 Friday scan, is that going to be your week 12 scan? That’s going to be a major milestone. I have everything crossed for you lovely 🙏🏻❤️
@Lara8 wish you all the luck ❤️

Hey all, I’ve been on the steriods, pessaries and anti acid drugs for a week now. I do my first test on Thursday (round 1). How did everyone feel when starting these drugs? I feel so so tired and wiped out, obviously emotionally unstable, a bit run down with enlarged glands at the neck. I’m just wondering if this is normal? Thanks

@whatsgoingon22 hey hun.. just had spotting and started heavy bleeding just now. Has this happened to you during this pregnancy. We just got to a family house. I don’t know whether going to A&E would help? I think this is miscarriage

Oh my goodness @Hope646 hoping and praying with all my might that it’s not.
Could you call a&e before going in to see what they suggest? Sending you so much love xx

Oh darling @Hope646 ❤️❤️❤️sending you love xxx are you cramping? How bad is the bleeding? I haven’t had it in this pregnancy but I have had it in the past and I went to a&e and they did do a quick scan and checked my cervix on a Saturday and at that time everything was okay, I m/c a few weeks later down the line. Don’t panic yet, you never know what it be, we always see this bleeding goes so many ways. Go to A&e if you think they can help but they may be slow, if not - call Crp/Epu first thing tomorrow morning ❤️❤️❤️sending you love my darling xxx I’ve had so many friends who had bleeds and were fine all the way through xxxx

@Hope646 :-( I am thinking of you. Try not to panic just yet. Although I know it’s impossible. Sending you so so so much strength right now. I imagine you will have a tough night but at least you can get to the EPU/call CPR tomorrow. You are in my thoughts xxxxxxxxxxxx

Hope you’re okay @Hope646 thinking of you and all the best lovely ❤️🙏🏻know how gut wrenchingly scary it is to be there. We’re all rooting for you here and hoping things ease off and that you can be seen tomorrow for some reassurance ❤️big love xxxx