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Dr Shehata advice

1000 replies

Wolfemum · 10/02/2023 08:58

Hello, I am currently experiencing my 3rd consecutive miscarriage and my 2nd MMC. I have been told I will now be referred to the RMC unit but due to my age (42) i think I need to go privately and I was wondering what your opinions are on Dr Shehata? I've heard he has a brilliant reputation but is quite focused on NK cells and less on other things. Can anyone share their thoughts, opinions experiences?
My first pregnancy was healthy and resulted in my 6 year old boy but the last 2 MMC we saw a heartbeat at 6 weeks but then no growth or heartbeat at 7/8 weeks.
Many thanks for reading

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whatsgoingon22 · 31/07/2023 15:45

@MeganBistram that’s good that you have had distractions 🙏🏻❤️do you have anything nice planned today? My bday is also on Friday. Epu have just confirmed they will see me on Wednesday this week for a scan too…. Last week at the Crp I had overlooked the cost of the consultation along with the scan, do we need to pay for both each time there’s a Scan? And then the intralipids on top!!!!!! My furthest was 13 weeks but measuring at 12weeks and a few days 😞had just had the 12 wk scan before and everything had been fine 😞its no wonder we are full of fear xx

MeganBistram · 31/07/2023 15:54

@whatsgoingon22 oh god that is horrific, Did they test to see if there was anything wrong? I am actually quite glad I have 3 scans coming up 7th with NHS and 14th with CRP so that would be 12 and 13.. I just hope these drugs get us our rainbows.

Oh yes its a stinger, its either £290 or £670 alternate 2 weekly +drug costs and anything else they randomly throw in for fun lol.

Hopefully you will see a strong heartbeat and be able to enjoy your birthday as much as you can pregnant. This time round my taste has been HORRIFIC I literally cant describe it. I am hoping it goes in the next week weeks as eating / drinking is not fun xx

Hope646 · 31/07/2023 16:26

@whatsgoingon22 @JandL2020 @Lily1990 @KatyTTC thank you ladies for your responses❤️❤️❤️🙏🏻really grateful. Honestly it has helped me so much to stay calm.
Last night I think I went to toilet 8 times just to see I am not bleeding. During my first miscarriage, cramps started in the evening and I was in A&E from bleeding 4am in the morning. That fear has stayed. But thankfully period type pain has calmed down and spotting seems to have gone too. Not sure if progesterone has helped with that. I still see some small stains.
GP was helpful when I walked in earlier this afternoon and they took a HCG blood test straightaway. I think the nurse had gone through miscarriages herself so she was very understanding. I should hopefully get the result tomorrow .
I have emailed CRP.. waiting for their feedback.
I took a clearblue digital test just now and it is showing 2-3 weeks pregnant. So really hoping it was an implantation.
All my 3 miscarriages had happened within 5 weeks. I never got to see any heartbeat. So I don’t think I will 100% believe my pregnancy until my week 6 scan.

Happy Birthday @MeganBistram wish you all the amazing things in life. Hope you are having a lovely day. I am so happy your scan went well and thanks for sharing it. It brings so much happiness here ❤️❤️

JandL2020 · 31/07/2023 19:01

@MeganBistram fantastic news, what a wonderful birthday pressie.
feeling good thanks. Although my manager kind of stressed me out today. She was questioning my symptoms medications etc and I had to send her my appointment schedule. She wants to share the info with her manager (service lead) which I didn’t want her to. I don’t want to be forced to take sick leave after my transfer. She was asking why I wasn’t using my annual leave. I reminded her of the ivf policy. Really doesn’t understand 😩
xx
@Hope646 2-3 on digital is a good sign. Took me ages to move from 1-2 weeks when I found out I was pregnant naturally in January and that was testing after my period. I knew something was wrong and turned out to be ectopic.
xx

KatyTTC · 01/08/2023 12:52

@JandL2020 I'm speechless reading that. What a cow!! I’d put my fingers up to that and get signed off on stress leave or something! If they want to play that game you can too 😡🖕🏼💪

@MeganBistram wooooo hoooo 🥳🎉🎂🎁🎈🤰🏼!! Over the moon for you! What an incredible day yesterday must have been for you. So special.

@Hope646 any news from CRP?

@whatsgoingon22 how are you feeling?

xx

Hope646 · 01/08/2023 16:07

@JandL2020 thats just shocking. They can't be adding more stress when you are already going through alot. Just keep pushing the IVF policy on them. It makes the whole thing more fraustrating when people around have no sense of understanding.

@KatyTTC not much. They asked me to carry on taking my medication and another restest this morning which I did and it was positive. I was also told to stop aspirin if i get further spotting but that has stopped. They might book me soon for my postive intralipid infusion.
I am still waiting for my HCG result from my GP. I should hopefully get that tomorrow.

How are you doing? Are you on your 2ww?

Quick question to all, I always wondered if someone is on progesterone which usually stops bleeding. but what if you are miscarrying. would it stop miscarriage bleeding too and so you would't know you are miscarrying?

whatsgoingon22 · 01/08/2023 17:09

Hey @Hope646 i can’t believe what a whirlwind you have had in the last few days but all sounds really good thank God - are you going back for repeat HCG bloods ? Yeh I thought they may stop the aspirin as that’s what they said to me last week. Re the progesterone I had a missed miscarriage before on it previously. My own natural levels of prog weren’t rising enough for what they should be in early pregnancy so I think although the pessaries increased them it still wasn’t high enough to sustain a viable pregnancy. So I was spotting and ended up inevitably miscarrying in the end….

@JandL2020 yes I agree with the others that is ridiculous, like really insensitive and unprofessional. I can’t believe women still treat women like this in this age and all you have been through/are going through already. It’s not good enough- I’m sorry this is an added pressure on you.

@KatyTTC hope you’re doing good love! I’m okay - I have an nhs scan tomorrow. I’m still spotting brown intermittently- it goes for hours on end and comes back like last thing at night or first thing in the morning. It’s not a huge amount but it’s enough to notice and to have me cautious and nervous. And today I’ve been on my feet a lot so I’m just so conscious that may increase it 🙈Everything was fine at CRP last Friday - heartbeat was fast and measuring a day or two ahead so I just hope if continues tomorrow - I am nervous though as I’ve been so heartbroken in the past so many times even after such positive scans 😞❤️🙏🏻

JandL2020 · 01/08/2023 21:16

@KatyTTC @Hope646 thank you. She’s passive aggressive is the best way to describe her. The ivf policy is outdated and I had a meeting with HR in April to help them formulate a new policy but it has not been published yet. I sign posted her to contact them. In response to my very lengthy email with my schedule symptoms etc she just replied with “good luck -my name-“
today she sent me a face to face meeting invite on Friday when I told her I was going to feel tired on Friday so may work from home and so I called her and she sounded off with me but agreed to do it via teams. I expect she’s worried I am going to be off a long time which potentially I could be if she does not agree to flexible working and for me to work from home. My colleague is working the 2 weeks after transfer so she has agreed to see the clinical face to face stuff and I will order equipment etc and do all the behind the scenes stuff. She doesn’t realise just how much work I do agile. In fact I prefer to work in office but it’s just the physical side of my job that I am going to struggle with.
I’m planning to do my home work to educate her during her meeting on Friday. She has children herself and we are flexible working organisation/family friendly so it’s really quite crazy how anti flexible she is with those with kids. I dare not ask to have flexibility to go home and feed my fur baby lol I just do it anyway and I work loads of overtime which I do not claim.
@whatsgoingon22 thank you. Can’t women just support each other and be understanding ?! Best of luck for your scan tomo.

thanks for all your support ladies.
trying to stay chilled as much as possible.
re : progesterone can delay miscarriage. I’ve always been on quite a lot during Ivf so I don’t have any spotting. I had a bit with ectopic but was natural so I suspect progesterone was low.
I said to my friend today…I don’t know how I’m keeping it together. She said its exciting. I said I’m terrified. I am terrified of it 1) not working 2) miscarrying 3) being potentially pregnant with twins and whether I am ready physically mentally to handle that pressure with work being how it is too.
xx

Hope646 · 02/08/2023 12:11

@whatsgoingon22 wish you all the luck for your scan today. Really hoping it all goes well. The fear and anxiety from past experience is cruel but hoping todays scan will give you that assurance. Please keep us posted ❤

@JandL2020 It's unbelievable how another woman can be so insensitive. the least she can do is support you with working from home. Some people really like to make things complicated than it needs to be.
The feeling you are having is so relatable. After miscarrying you get all sort of feelings but the excitement falls back sadly. The fear of MC happening again, over analyzing everything. I see couple celebrating their pregnancy as soon as they see BFP. but with me and my husband, the excitement was gone after 2nd miscarriage. It's been more of ok what is going to happen next. What should we do next. Hopefully, they will start being more accomodating at your workplace.

So I got my HCG blood test result from 31st July and it is showing 292 u/l. The GP was nice enough to arrange a repeat one which I took this morning. I should hopefully get the result tomorrow or by Friday. I have been so nervous and anxious the last few days. especially today I feel more cramps compare to yesterday and there is a bit of spotting. I keep thinking it is about to happen again. Maybe I am overthinking right now, but i have pain on my left leg too. I don't know what that means. Everything depends on my next result

JandL2020 · 02/08/2023 16:33

@Hope646 thank you. I hope your next hcg is going in a positive direction. Impossible not to worry though xx

whatsgoingon22 · 02/08/2023 16:45

hey @Hope646 how are you doing now? I hope you’re feeling okay and not too much cramping/spotting. I’ve had pain in my legs in previous pregnancies and I think I read then it could be something to do with progesterone levels. I hope your HCG will double too when you get your results and it can put your mind somewhat at ease before you get a scan. Mine was a 190u/l at 4weeks when I first got tested. It’s so hard trust me I know - all we can do is hope and pray for the best and a different outcome this time.
Thank you for your well wishes ❤️ it means a lot! I’m thankful to say that everything was okay again at the NHS scan today 🙂! Measuring 7 weeks 2days and heartbeat seen again. They did also notice the hematoma and did think that that is causing the spotting. Will have another CRP scan next week and hopefully all going to plan another NHS at 9 weeks. @Hope646 The midwife did say again as we all know that spotting can be completely normal and that some women will spot during pregnancy regardless of M/c or not but acknowledged that of course we will assume it’s a bad thing after so many M/c so I guess all you/I/we can do is know that we are doing everything we can and just take it each step at a time and hope for the best ❤️🙏🏻easier said than done I know ❤️❤️sending you love xxxx

JandL2020 · 02/08/2023 20:50

@whatsgoingon22 fab news 😊😊😊

MeganBistram · 02/08/2023 20:57

@whatsgoingon22 amazing news so pleased for you. Hopefully the weekly checks will help keep the anxiety at bay.

I am just struggling to look in the mirror with how much these drugs impact my weight… I only put on 6kg in my total pregnancy with my son and so far I have put on 3kg already..

@Hope646 over 200 would be great I thin based on when your dpo was? Do let us know how this test goes.. I am surprised CRP have not made you come in yet.. as soon as I had two positives they made me come in.
in terms of the progesterone I think the amounts we take it would not prevent a miscarriage showing if it was going to show.. although I am by no means an expert. All my miscarriages were missed by 2-3 weeks so not sure what progesterone would have done.

@JandL2020 i am in shock.. as a manager I wouldn’t even question the timings or needs. Your priority is to look after the welfare of your team and if I were her I would be very concerned about a potential HR case.. try not to let it get to you.. you have to be your best self going into next month and remain as calm as possible :)

xx

Hope646 · 02/08/2023 21:22

@JandL2020 thank you soo much 🙏🏻❤️
@whatsgoingon22 i am so happy your scan went well 🙏🏻❤️I hope you are feeling much better. I am glad they explained the cause of spotting too. Hopefully that will reduce. I can imagine how triggering it can be. Yes, I keep telling myself that this time it’s going to be different. We are all in good hands. But I get moments when I get bad anxiety with every pain I feel. The blood test result will put me in ease so really waiting for it impatiently. Hoping GP will give it tomorrow.
My spotting stopped as the day went on. I do feel sharp pain now and then. hoping it’s just Preg symptom

@MeganBistram I don’t even know when I ovulated. I think I must have ovulated much early maybe just after my period. Hopefully I will find out in the next couple of weeks (praying I get to that stage).
I have got my positive intralipid infusion for this Friday. They didn’t want to delay it to next week. Hopefully by this Friday I will have my repeated HCG result too.

Don’t worry about the weight 😂 I am sure you are only glowing beautifully ❤️

whatsgoingon22 · 02/08/2023 21:52

Thank you @JandL2020 @MeganBistram and @Hope646 - really appreciate it xx

@JandL2020 I hope your meeting goes okay on Friday. Maybe I’m wrong but I would keep a track of email or comments if you can just incase you need them. Like where is the compassion and empathy? Urgggh as if you don’t have enough to worry about.

@MeganBistram oh love I’m the same, I look about 4/5 months (no joke) so bloated and face super puffy -I’d say I have put on about the same in the last few weeks - I really over indulged whilst I was away and my portion sizes remain on the large size 🫠Will need to keep an eye on my bmi and weight gain….having a peppermint tea as we speak.
Can I ask if you don’t mind, did your share your NHS scans with CRP or did you tell them at all that you had been for extra scans?

@Hope646 im glad your spotting has stopped that’s good news ❤️and yes I hear you i never stop worrying. I came out with a new train of fears today 🫠🫠 I have an arcuate uterus too so I started questioning in my head if that will impact where the placenta develops etc …. Never a dull moment in my head 😵‍💫 good luck tomorrow, I hope you get your positive results ❤️❤️

ncedforthisprofessionalquestion · 02/08/2023 23:12

I have been reading this thread with interest, as I have been debating whether to seek a consultation with him, too, after recurrent losses and one very difficult successful pregnancy (but very prem).

My issue is bad placentas. I get relatively easily pregnant, but the moment the placenta kicks in end of first trimester things start to go badly. Is there anyone who similarly had bad placentas and has been helped by Dr Shehata? I don't get the impression that for most PPs the placenta quality is the issue?

whatsgoingon22 · 03/08/2023 08:48

Hi @ncedforthisprofessionalquestion thanks for sharing x do you mind me asking how far along your M/c were and how did you find out about your placentas was it at the scans?
I know on my furthest m/c (13weeks) that my Papp-A was low at my 12 week scan and i know that is related to the placenta….but I don’t know if that was the cause of the M/c, when it was sent off for testing there was no chromosonal/genetic abnormality found so that was kind of hard to take.
Dr Shehatas natural killer cells treatment he says work better on earlier M/c but after other NHS testing that found nothing I didn’t know what else to hold on to and the more M/c you have the more your NK cells increase so really hoping his medications work xx

whatsgoingon22 · 03/08/2023 10:21

Sorry @ncedforthisprofessionalquestion forgot to add I had another raised marker when I did Dr Shehatas testing (I can’t remember which one off the top of my head) but it basically meant that I had raised levels which affect implantation. I had to take 4 injections of Humira earlier this year to lower those levels before I could start the next phase. I remember they said to me at the time that the quality of implantation could affect the pregnancy later on and may have contributed to the 13wk miscarriage…… not sure if any of that helps 🙏🏻

Hope646 · 03/08/2023 12:55

@whatsgoingon22 thank you so much. I got my repeated HCG and thank God it has doubled from 292 to 586 within 48 hours range. I did not have any sleep last night from anxiety and fear. GP has kindly allowed me to have another repeated one. I think i will go for it on Monday. I know I am no where close to where I would feel calm and confident but this feels like a good start for now. 🙏
From what I see online and read, arcuate uterus is a completely normal shape unless i am missing something. it should not cause any fertility issue or miscarriage. In the last year of investigation, I have been told different things about my uterus shape by different individuals. couple of ultrasound scans showed that I have heart shape uterus which could cause complication later on, couple of other scans showed that it is a normal shape and i should not have any issue. I think I would like to believe the 3D scan which showed no such abnormality. We will deal with that once the time comes.

@ncedforthisprofessionalquestion I have no knowledge around that but whatever it is hoping you get some guidance soon and it works out for you

whatsgoingon22 · 03/08/2023 13:13

Oh @Hope646 I'm so happy for you!!!! This is amazing news!! Congrats!!! What a relief!! And very nice of your GP too, mine was not so understanding 🙄. Good luck with your intralipids tomorrow too! thanks for sharing your background re: uterus investigations - I’ve read loads and I think arcuate is the most ‘normal abnormality’ but read that it can sometimes cause later M/c or preterm birth…… will have to ask at my next appointment and see what they say!! Well done again, super happy for you! You have had such an emotional rollercoaster in the past week alone xxx

MeganBistram · 03/08/2023 14:00

@Hope646 AMAZING news... so pleased for you :)
Its so nice when a GP is supportive.

@whatsgoingon22 gosh It gives me shivers to know that 13 weeks you lost a perfectly healthy baby, this journey must be even more aweful to navigate. I had low PAPP A with my son and I think didnt impact anything I just had to have extra scans in case he was small ( he was but not due to low PAPP A I don't think ) xx

whatsgoingon22 · 03/08/2023 14:31

Thanks @MeganBistram that’s helpful to know and thank goodness your son was okay 🙂I think when I hear anything that isn’t 100% normal my head just get carries away with me and leads me down a path! When is your next apt again? Do you think I should share the NHS scan with Crp or just keep them separate? Xx

JandL2020 · 03/08/2023 15:19

@MeganBistram @whatsgoingon22 thanks for advice. I’m going to try and record our meeting tomorrow.
@Hope646 fab news.
I just had my first infusion and was fine
didnt realise I would be having it with another patient in the room. Absolutely fine about it just wasn’t expecting it 🤣 then almost felt a bit rude getting my book out lol!
@ncedforthisprofessionalquestion i put your question to the midwife today, she said be worth sending them an email at [email protected]. They do deal with late losses and placenta issues.

felt really comfortable at the clinic today. I offloaded to the midwife and she was really supportive. She said I should just email if I just wanted to talk. Felt very genuine I really like her
i’m going to treat myself to some cake now
hope everyone is having a good day and have nice plans for a weekend. I’m off to see the barbie movie and my other half has decided we are shopping for a new kitchen (just to add extra stress with building work lol)
xx

MeganBistram · 03/08/2023 16:37

@whatsgoingon22 I know it well... every time I read something I have not considered I go off on a tangent and think that must be it and worry I am not addressing it with this protocol.

And I didn't actively discuss it with them mainly as they didn't ask but I would have told them if they did.

@JandL2020 I agree the midwifes are lovely and I normally rant to them about the doctors lol. Yes first one I had there were 3 people which was very odd haha xx

KatyTTC · 03/08/2023 19:31

@Hope646 this is incredible news!! More lovely news and hope for us all! I love it.
I’m such a chatterbox I always want to talk to the other people in the treatment room! One lady when I went in on Tuesday was 20 weeks pregnant I overheard and I was desperate to talk to her and hear a positive story!
Agree, all the midwives and nurses are so so lovely. I saw Dr Edge on Tuesday for my super ovulation scan and she is so nice too.

@Lara8 im so sorry I didn’t reply to you after you sent a reply to my diet question. How are you? I’m so sorry to hear about your brother. Mine has a similar story. He’s had Hodgkins and non Hodgkin’s lymphoma since he was 19 (he’s now 50), been given weeks to live mulitiple times and somehow has always bounced back. A total miracle really. And yes, anything anti inflammatory diet wise is just a great rule of thumb for life in general isn’t it. I try really hard to eat this way but I’ve slipped lately 😬. What do you do about caffeine?

@whatsgoingon22 @MeganBistram How are you both feeling?

@JandL2020 im so pleased you unloaded to the midwife’s. It’s so much better to get it all out and I’m such a believer in a problem shared is a problem halved. I hope you’re feeling a bit better?

To all those saying they feel huge. I do too and I’m not even pregnant!! I’m wouldn’t mind as much if I was but this is a disaster!! I need to go out and buy some more trousers ☹️. I feel all your pain!!

@ncedforthisprofessionalquestion i don’t have any experience in this area but I’m so sorry for your losses and really hope CRP can help. Xx

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