Welcome back carrot. Glad things have been progressing with your testing etc, and I hope the break and the counselling have proved helpful. It's such a lot to deal with in a short space of time that it's no wonder you have struggled. When you say you might get referred to prof quenby's research trial, do you mean to the implantation clinic, or to the RESPONSE trial, or something else?
If the former, then it's actually self referral. As long as you are 2 cycles clear of your last mc then you just do ov tests and call the admin when you get a positive. They will give you an appointment for 7-10 days later. It's a 360 one off fee.
If you mean the RESPONSE trial (not strictly speaking the profs trial, but coventry is one of the centres they are running it from), then the first phase of the trial is closed, but they are awaiting the next phase, assuming first phase results are positive. I'm fairly sure they will be from the girls I know on it.
Or perhaps there is a new trial starting? Good luck with whatever it is.
Welcome katherine, although sorry you find yourself here, and particularly your last loss, which sounds particularly traumatic. I gather that the remaining tube can move over to pick up the eggs from the damaged side, so hopefully your chances will still be very good. Our bodies are amazing things.
Re waiting or not, it's a really hard one. I waited and was glad I did. There is a massive variation between different areas. I only waited about 7 weeks for my nhs blood tests to be taken (plus 4 weeks for results), but others have waited much longer. I would absolutely get yourself in the nhs system anyway. It's good to have an nhs consultant so that you can get drugs prescribed and wangle extra scans/support. I would always suggest the nhs route first, as I really believe in them, but some other people have felt that the wait is too long. In hindsight, I actually felt that the wait was quite restorative, and i was much more ready to try again after the enforced break, even though at the time it was pretty tough to wait. If you are doing the nhs route they normally like to wait 6 weeks after the last pg to take the bloods, as pregnancy can affect the clotting test results. Some people on the thread have had bloods taken by their gp. Might be worth asking to see if you can speed things along this way. The other thing I would absolutely suggest you do is when you get the referral appointment through, phone the consultant's secretary and see if there are any cancellations, or ask to be put on the cancellation list. I did this and mentioned my age (37 at the time) as a factor for why I wanted the appt asap. She put me to the top of the cancellations list as the other two people were both in their 20s and we had all been referred at the same time. I got moved up by a month. Worth laying it on thick and getting on the right side of the admin - they hold all the power in terms of appointments.
My nhs testing came back normal, which was strangely disappointing, so after a 4th miscarriage I went to the Coventry implantation clinic (mentioned at length in various posts above), where they test for uterine natural killer cells (uNK). I tested high, and was prescribed steroids, heparin and progesterone for subsequent pgs. After a 5th loss I'm now 29+3 pg, and really feel like the steroids were my silver bullet.
Coventry is the only testing I've paid for, and it was very reasonable (because its nhs self funded) compared to the private options (which tip into the thousands of pounds), but if you have the money then this may not be an issue. Private testing wasn't really an option for us, and perhaps i am just lucky that my problem happened to be what coventry tested for.
If you have any other questions, feel free to ask.
And for both of you, we also have a group on fb now if you'd be interested in joining (it's a secret group, so invite only). Pm me if you want to join.