Recurrent Miscarriage Support Thread 27 - Tests, Treatments and Trying Again

[BumbleBee0]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread
www.mumsnet.com/Talk/miscarriage/2404797-Recurrent-Miscarriage-Support-Thread-26-tests-treatment-and-trying-again

Thanks for the suggestion March on community sessions. I've previously looked into it and there's no where around me that does it, so going to have to accept its going to be expensive!

Ahh. Damnit girlie. Hopefully it'll be worth it though. Some places do half hour sessions as well as full hour ones after the initial session so you may at least be able to book a shorter one, even if it is still full 30 min price.

I'm waiting for someone to call me about the scan date bythesea, but anticipating the week after next if I make it that far

Was just reading back and saw that chrystley had a scan on 13th. Hope it went well cryst, if you're reading

Unfortunately not bythesea have had some more today. Wish it would just bugger off.

Spent a few instructive minutes on the Feb thread

Bellende how funny bet you felt a right tit lol!

Flen what fab news!!!! Yay!!!

March thank you, I'll keep look out for more trials, was too old for this one then. Also good point on the community acu sessions I'm going to have a look but don't think they do it near me either girlie.

Bumble thanks I sometimes get a cramp in one side so will try monitor that abit more. Think I'm just worrying now with my low AMH but cloud you were successful with low weren't you? I have considered temping I did it with DS, but don't you have to do it same time each day? I've had progesterone tests that was normal.

Freckle I too feel like I'm being punished as had termination at age 18, which I always regret now. I think like someone said it's too easy to feel this way and is probably not that at all.
Barking thank you that makes sense, not sure whether to temp again.

I just went out and stocked up on folic acid, Vit C, CoQ10, this is getting expensive! Boots haven't got the offer on now,

Great news Flen!

The decisions we make are right at the time. If there is a God I think they'll be more worried about punishing people who are a risk to civilisation, like the leaders of Islamic State, than everyday people who've had to make difficult personal decisions.

Flen so pleased you had a good scan.

Another Catholic here (also non practising with occasional guilt)

So what was being said on the feb thread (boys here so can't be on Internet for too long!)

flen thank goodness! Massive wave of relief when I read your post. Being ahead of dates is great as well!

march hoping the spotting stays away, but also that you gaining some hope from the recent positive outcomes from others with bleeding and spotting.

Agh guilt and blame..I am not at all religious but still manage to blame myself. I try and stop myself from doing that though - logically I know that shit happens, and the universe/greater beings, just aren't interested enough in my life to bother teaching me a lesson about something. I realise that's alot easier to say as a non-religious person. Terrible English there - I would probably say agnostic. Ladies, whatever your beliefs, THIS IS NOT YOUR FAULT XXX

Great news Flen!

Brilliant news flen! So pleased you're getting weekly scans as well. I swear it helps.

Woo hoo flen - am doing the jiggy dance again! Great news. x

So happy for you Flen

Yeah, i totally agree people - i do not subscribe to the old 'hell's fire' and damnation ideas that were part and parcel of my cultural background in the past. I don't think 'the source of all love' would be interested in punishment. I kinda think guilt is manufactured by the the other side, the source of pain and fear causing pain and friction. I am aware of how this stuff sounds and i suppose the fear of guilt is actually my expectations of what (some of) my family and catholic community would think. But i sat down in our schools beautiful chapel a few fridays ago, and looked at the statue of Mary, pregnant and holding out her arms, and i really felt inside me that God was saying "of course this will come to you, why wouldn't i give this to you? This is what i want for you." And it did make me feel incredibly calm and sure!
-To those (sane) people without a religious cultural background, i appologise for what must read like the ramblings of a mad woman! Xxxx

Hello, I'm new!

Lovely to hear all the positive news on this thread.

In brief, this is me:
Age 32, happily married since 2013.
3 m/cs.
#1 MMC at 11 weeks, June 2014 (foetal pole dating 6 weeks),
#2 MMC at 10 weeks, December 2014 (pregnancy sac, but not foetal pole),
#3 m/c at 6 weeks, June 2015.

Just in process of being referred to St Mary's Manchester for investigations and wondering if anyone has any advice for first appointment, etc. I know it's unlikely to be for another few months yet, owing to the waiting list. We've been told to keep trying in the meantime, so that's what we're doing. All feeling rather futile, but just got to keep trucking I suppose!

:)

flen so happy for you!!

When I was a teenager I used to say 'oh, I never want kids. Why do I have to have children just because I'm a girl'. Yeah....didnt think that would ever come back to haunt me.

So so sore and bruised and miserable today. I know it's the hormones decreasing, but I still feel like shit

Mrsb I hate what it does to my hormones, sends me to the darkest of places for a week or so. Xxx

Re: religion, I walked out of evensong at kings college Cambridge and told the priest why just after mc#3. I teach philosophy of religion, and I find the problem of evil overwhelmingly impassable, RMC being the tip of a whole iceberg of pain.

Sorry you're feeling crap mrsb. The hormones will be making you feel a lot worse so just take it easy. And being in pain doesn't help to make you feel any better. Glad you have some time away next week. Getting away and doing something different really helped me get back on my feet after the last one x

oneday, Welcome to the club nobody wants to join. So sorry to hear about your losses . There are a few people who are/were under st marys in manchester. I think boozle was and said they were brilliant from memory. It might be worth getting in touch with the consultant's secretary to see if there is a cancellations list. Several of us have had success by charming/bothering whoever deals with appointments at various hospitals. They are always useful people to get to know and if the advice was to keep trying in the meantime then I'd imagine cancellations will come up.
We have put together a list of what you might expect to be tested for on a Google sheets document, which can be found by following the link i posted a couple of pages back (it said "testing, please ignore", after it, but the link does work). It is by no means exhaustive but will give you an idea, it also tells you about some other testing you might like to consider (paid testing). Many of us have had uNK (uterine natural killer) cells tested at Coventry and are therefore pompom wavers.
It does feel a bit futile sometimes, especially after a recent loss, but there are lots of positive stories on here to take heart from, so pull up a chair and we'll help each other through

Mrsb** The horemone drop is dire - i remember feeling very dark. Compulsively reading this thread really helped me, and just time. Sendung you love and strength. X

marchgirl thank you for your kindness. I can't tell you how good it feels to have (a) someone listening who genuinely understands (my friends and family are amazing but no one I know directly has been through this) and (b) some practical advice that I can get stuck into (rather than the kind, well-meaning "I'm sure it'll all work out in the end"s). VERY much appreciated. Thank you a million. I will let you know how I get on.

Welcome one day and sorry for your losses. My losses were almost same times as yours but my non MMC was first. I understand how you're feeling. This is a wonderful thread, I've not been here long myself, but like you say just the understanding of others who have been through it and the advice given has been invaluable. Really helped me these last 3 weeks. I'm going to St Mary's London in 2wks and also wondering what questions to ask. I still haven't heard from bloody NHS.

MrsB sorry you're feeling low, it's very early days still and the hormones don't help. You'll feel so much better when you're away from everything next week, big hug

flen so relieved and happy for you! And not long till the next scan. You must have sore hands from us all squeezing so hard

oneday so sorry you need to join us but I'm glad you've found us - I felt utterly alone until MrsD told me about this thread. Amazing bunch of women.

mrsB oh lovely lady. Hugs. the hormone crash is just horrid horrid horrid, wish there was a fast forward button for you. I lost myself in the extended editions of Lord of the Rings until it passed (yup, Tolkien geek here). It will pass and the clouds will lift in time.

Guilt - oh my word yes - I've not had any religious upbringing but convinced myself as a depressed teenager that being so low had given me cancer so it was my fault (not matter what my consultant said) then when these MCs started happening, it all came flooding back. I still get stuck in a loop of panicking about my mood in case it affects the pregnancy. (And of course wondering if it was a certain good or activity or illness...) Insane but very real

I went to a new acupuncturist tonight as my osteopath/acupuncturist/life coach/yoga teacher/goddess is having some time off clinic work. New lady said my pulses were nicely pregnant - which I would have thought was crazy talk if I hadn't heard about 'pearly' pulses from march I think. This thread is such an education!

Hi Onedaymaybe! Sorry you fund yourself here.

I am currently under St Marys in Manchester.

In a nutshell... no DCS, mmc June 14, mmc October 14, mc January 15. I was referred by my doctor at the end of January after he'd run some initial tests and was sent a letter about booking am appointment which I did and snatched a cancellation on April 10th. On April 9th I phoned up to confirm and was told it had been cancelled 6 weeks before! I was devastated / heartbroken / a complete mess. Myself and DH went down ready to claim squatters rights until we were seen but the patient liason service who I had lodged a complaint with had already been on the case and they sorted me an appointment out for the end of April. 2 and a half weeks later so we let it go.

we went to the appointment, had half an hour with the junior supporting the consultant and had bloods taken and was waved off saying 'we'll see you in three months for your follow up. That should be next week and as yet ive heard nothing (other than being called back for a scan which I still haven't had full results of). Don't want to put you off but my advice would be to mither, nag, conform, reconfirm and confirm everything again.

I'm currently signed up to the Response Research Trial and all my support and feedback on test results has come from them. I finish work on Friday for 7 weeks so will definitely getting on their case then!

Congrats Flen btw! great news!

brilliant news Flen