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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Recurrent miscarriage support, tests, treatments and trying again.

999 replies

Monten · 27/04/2015 10:11

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

OP posts:
Marchgirl · 01/05/2015 20:55

Ah. So you're joining us on the 2ww are you bootles? Hand holding all round x

Jady77 · 01/05/2015 21:25

Good luck those bd'ing this weekend:) I'd maybe do tonight then have tomorrow night off and go again Sunday March

Tan hugs. If I hadn't been feeling so shit this week I'd have offered to pop over. Hope he's giving you cuddles tonight.

sebsmummy1 · 01/05/2015 21:35

DP is pretty good with the TTC thing. He isn't particularly highly sexed but he seems to be able to perform every time so I know it's a little easier than if your frightened to death it's going to end without a bang.

Timing wise I think every time we've caught it's been a different system, ie with my son I clearly remember we hadn't seen each other for a week, then we met up and he stayed over and we DTD in the evening and the morning, then I didn't see him again for a week. So two times was enough! Generally we try to have as much sex as possible but I know plenty of MNetters and my sister! who had sex once and got pregnant.

I'm 2dpo today and absolutely determined to just let AF arrive. Testing early is just soul destroying on so many levels.

CheesyMash · 01/05/2015 21:51

Re. Dtd, we try to aim for every other day once in the 'fertile period'. Was planning on tonight but might do tomorrow morning now as it looks like ovulation will prob be tomorrow.

longestlurkerever · 01/05/2015 21:51

I generally hate opks and temping all that stuff. I do quite like dtd though Blush so just do it as often as poss throughout my cycle. I can normally tell anyway when ov is as I want sex so badly, but it doesn't always follow that perfect timing equals the best chance of bfp.

Dd is nearly 4 now but I have come to terms with the age gap. She has her free hours and starts school in Sept so I can indulge myself in babyhood again and I hope like flen says that she has benefited from more 1:1 time. Bit worried she might have got too used to it but so far she is excited. Let's see what happens in practice!

Are hormone problems simple to fix? I am pretty stupid was my problem as it fits with pcos diagnosis but I wasn't aware there was an easy fix as such, though plenty of reason to hope as lots of people who struggle to get pregnant with pcos seem to have success in the end. My own mum ttc me for 12 years before getting pregnant and then she had ds is 2.5 years later. Her twin dsis has similar history.

longestlurkerever · 01/05/2015 21:53

Pretty sure, not stupid. Thanks kindle!

Wadsy · 01/05/2015 21:55

Cheesymash you're making me hungry with that name, I haven't had my dinner yet! mmmmm mash! It is me who has the Factor V Leiden gene. I have to take aspirin and then test early and take progesterone suppositories and fragmin injections from BFP. Unfortunately I did all this and still had a chemical pregnancy last month. But I've got other problems - don't ovulate regularly, repeated tests that show low progesterone and also low AMH so my useless fucking waste of space reproductive system is probably to blame for the last loss, rather than the Factor V Leiden. Give me a shout if you have any qs!

Congrats girlie and sun on the BFPs. I had a late/faint positive with my ds, so you're not out just yet sun!

Barking I admire you signing up for a triathlon. The most I've ever done is a 5k and that nearly killed me!

Sasha if you are getting clomid privately, can you get a scan between days 11-13 of your cycle on your bupa plan? I'm really worried about you, because I grew a MASSIVE cyst on clomid and if no-one had spotted it it could have burst and led to internal bleeding

cloudjumper · 01/05/2015 22:38

Just been to the loo, and there was blood when I wiped. Shit...

Brummiegirl15 · 01/05/2015 22:43

Shit Cloud - deep breath, hopefully it's nothing and just a bit of spotting.

CheesyMash · 01/05/2015 22:48

Oh no cloud, what was it like? Hope it fucks off and there's no more. X

Minnie74 · 01/05/2015 22:54

Oh bugger cloud my stomach dropped for you. Could be absolutely nothing. Crossing everything for you xx

ThePopAndCry · 01/05/2015 22:55

sasha I am sorry you are feeling these waves of sadness. I totally understand this feeling and, like you, look forward to when it stops. Flowers

So… Coventry was interesting. Will try to remember everything Prof B said. He was in a bit of a rush as there were 17 people booked in this afternoon (the lovely doctor who did the biopsy said it was because of the Bank Holiday) but he still spent plenty of time explaining things. Should we decide to try again, I’ll have to take the progesterone from day 23-ish, depending on ov date, but will need to take heparin throughout pregnancy due to Liverpool’s finding of the borderline high blood clotting issue. However, Prof B said to only take aspirin from 8 weeks as it can interfere with lining development for implantation. He thinks progesterone is better than HCG as he said HCG is just a ‘complicated’ way of doing what progesterone needs to do (ie prepare the lining). Discuss! He also said that I was of interest to their research due to the fact that each of my 4 miscarriages have been ‘missed’. If my biopsy is good enough I’ve consented for them to use it to help them try and work our why this happens to some women (yet again, I seem to fit into an ever decreasing circle of women Sad) He didn’t think the adhesions would be significant and that the scratch today would help regenerate things. He explained the ‘no no no no yes’ thing that we’ve been discussing on here but that he wanted to find our why this happened to some women, compared to those that, for instance, have a ‘no yes yes…’ pattern.

march he said that the natural killer cells are always there and build up throughout the month. From what I can remember, basically, he said If the lining was properly selective, they would come into play earlier and help a non-viable egg be rejected earlier. In the instances where the lining is not selective enough, the lining will ‘age’ too quickly and then the NK cells will mount a response to this. Does this make any sense???? Please be kind on me scientists, as I’m an Arts graduate!

Regarding my late miscarriage, he was very honest and said he didn’t want to comment until I’ve had the pathologist report on the post mortem, which is fair do’s as this could provide more info. The biopsy went well. My lining was 8mm and they managed to get a good sample (I asked to see it. Is that weird???). And the gas and air was amazing again. Love, love, love it.

One final thing that I thought was very interesting is that he talked about how current conventional thinking about women who miscarry repeatedly doesn’t make sense as, for example, many women will have adhesions or a blood clotting syndromes and not have any problems whatsoever with having children. So these explanations are red herrings. And he said that something like aspirin may be pinpointed as being the thing that helped a woman carry to term on that particular occasion and that, therefore, this will work for lots of other women. But that actually, it was probably just that that month the egg and the lining were good and would have worked anyway. I liked this theory as, thinking about it, explains why I managed to have my ds. It also gave me an insight into how scientists think in an uber logical way!

Am knackered as the drive back was bloody awful. I am done with crappy delays on motorways for a while and am done with travelling halfway up/down/across the country to find out what the fuck is wrong with my body. And am totally done with both things being combined.

Love to you all and sorry for not name-checking more. Am reading and thinking of you all, wherever you’re up to in this horrible journey. And sorry for yet another fucking huge post, but writing it all down really, really helps me make sense of all this. Happy Bank Holiday. x

Jady77 · 01/05/2015 22:56

Heart in my mouth Cloud. Really hope it's stopped and is nothing, but that won't stop the worry.

ThePopAndCry · 01/05/2015 22:58

cloud fuck. Sorry. Missed your post while self-indulgently posting mine. Am hoping it's not too much, love. Hang on in there. xxx

cloudjumper · 01/05/2015 23:03

Thanks all. It's not much, doesn't stain the pad, but definitely there when I wipe. I also suddenly developed quite bad back pain... There is nothing I can do right now, so I will try and get some sleep, I am shattered. Hoping for the best for tomorrow.

CheesyMash · 01/05/2015 23:10

Hope it settles cloud and that you can get some sleep tonight. X

MrsConfusion · 01/05/2015 23:11

cloud hugs, keep breathing and try to get some rest tonight. We're all here sending positive vibes.

barkingtreefrog · 01/05/2015 23:15

Wow, how many hundred posts in one day?! I've only been gone since this morning!!

March that doesn't sound patronising at all, I am very much trying to embrace life at the moment. The delay in the ivf just means it's longer until I am forced to confront the reality of the situation - do we gamble our savings and forego moving to a lovely house to take the chance on more ivf? So head is firmly in the sand and life is continuing alongside various tests and appointments! Grin

Flen my earliest memory is of hearing I had a brother and being very disappointed I didn't have a sister! We played and fought together, and as adults we have been on holiday together within the same loose social group. There's more than a 3 year age gap between us.

sun Thanks

Mrsd It's shit when you watch people effortlessly have what you so desperately want, and it's unfair. A former colleague of mine at school went off on maternity a couple of years ago and I really struggled with her bump, to the extent where I almost burst into tears in assembly when she turned sideways and it was more obvious than I'd previously noticed (she was carrying quite a lot of weight anyway, it was easy for me to pretend for a while that she was just getting fatter...) Trouble was I was leading the assembly at the time Blush. I've just heard she's announced again Angry Envy Angry Envy.

girlie how sweet of your dh!! Smile

cheesy I have factor V leiden, from my googling research I understand that it doesn't explain an early loss, it's only when the placenta has taken over, the potential problem being blood clots between the placenta and embryo. My treatment (if I get that far) will be heparin (dalteparin injections) from bfp until 6 weeks post birth.

bootles just Shock at that toy?!

cloud hoping it's not as you fear Thanks.

Wadsy · 01/05/2015 23:23

Hoping all will be ok cloud. Sending you hugs x

bootles · 01/05/2015 23:23

Oh cloud...I am like the others with my stomach dropping for your stress. Goddamit why do these things happen out of usual working hours. Is there anywhere you can be seen over the weekend? Hugs x

pop its good tbat you wrote it all - helps you and everyone. I am sort of sciencey with a medical background but struggle with anything too in depth. Its impossible to cover all the science in a one hour appointment (I like to imagine it could be a whole module of study). I am still confused, as the hyper fertility theory seems to be implied for those who have normal NK cells as well as those with high NK cells. Glad it went well for you, and hope the results of the autopsy come through as quick as they can. Hugs to you too x

longest Its so interesting about your mum and aunt. 12 years of trying. Wow. That must have been heartbreaking for her, and wonderful when she had you!

Re age gaps, I used to worry but not any more. Now I just worry about DS being an only child and how it will affect him. He tells me he wants a brother, and often pretends there's a baby in my tummy (he goes into a lot of detail). Ah well.

longestlurkerever · 01/05/2015 23:29

((((cloud))))) Fx just spotting. Sleep well xxxxxxxxx

bootles · 01/05/2015 23:30

Cross post barking. What hard decisions you have to make. I absolutely recognise that infertility plus mc is particularly cruel. I am glad to hear you are back doing what you love what with the cycling etc.

tannyLoo · 02/05/2015 00:15

Cloud my heart is in my mouth. We all desperately want this one to be the one. Keeping everything tightly crossed for you xxx

barkingtreefrog · 02/05/2015 06:48

Hope you got some sleep cloud and that the spotting has stopped Thanks .

Daisybell1 · 02/05/2015 06:54

Keeping everything crossed Cloud xx