Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

tanny not been on here long but have been really thinking of you. Huuuuge congrats and hope you are all ok.

freckle I’m in Guiseley - what a ridiculously small world! And yes, totally agree about the teacher thing – we could start our own clinical trial!

minnie Leeds did all of the immune and blood clotting tests. Liverpool are doing the same blood tests, plus the bacterial tests and the physical exam. I don't think the bacterial or physical routes will show anything but the consultant said he’d ‘throw the book at everything’ in order to try and work out what's going on, which sounds fine by me! Neither will do the killer cell biopsy – that’s through Coventry and I think baking gave the details earlier. The first time Leeds did the blood clotting stuff, they didn’t take enough blood (or sommat) so I have to go and get that done again. The consultant at Liverpool said that the blood test will show different things at different times, which is interesting, so they are going to do them all again in 2 months.

loopy hope you get some answers about this. So sorry.

loopy I'm so sorry .

pop and freckle, I think just is a teacher as well, and there are quite a few of us teachers on a conception thread I'm on, all who, like me, have been ttc #1 unsuccessfully for around 3 years or more. It's a massive over representation in terms of numbers, probably over a quarter of the women on that thread. But on the flip side I've watched many, many colleagues get pg and go have their babies, so it's happening for them!

loopy I'm so sorry to hear your news. Totally shitty.

sebsmum i keep trying to think that we've given up and then it'll magically be ok. Even tempted to sell all baby related stuff in a sods law kind of way.

freckle that rant was ace! Really made me laugh. He is such a tosser, can't possibly have a wife!

freckle and pop Another teacher here too- am dreading going back to work. Have another week off but can't imagine feeling any better about it in a week. My second due date is April 20th so shouldn't be going back after Easter for that one and then this MC was due sept so shouldn't be going back after summer. Every holiday is going to be a reminder now. Plus parents at school know which means the kids will and being 8 year olds means I'll no doubt have questions. Just so don't want to go back.

Hi to fellow Yorkshirewomen, I grew up in the Aire Valley and my ILs live in Ilkley. I love it up there, we planned to return but have been in Brizzle 12 years now so looking less and less likely.

Teachers, fuck. We are completely fucked. I feel completely justified usibg such language

*using.
And justified because i am a fucking englush language teacher.
Bedward!

minnie my first due date was in January and my 2nd is end of March. I'm dreading it.

I'm so upset about Mothers Day next weekend as well. My own mum is in Barbados for it so I intend to hide away

tanny massive congratulations to you!!!! Definitely got all teary when I read about the arrival of Bertie Lee. I am absolutely thrilled for you! Doesn't seem so long ago you had that bfp (though I am sure it does to you) and now he's here. What a journey. Hope you are recovering well from what sounds like a quick birth xxxxxx

Aah, just had an advert from
Clear blue pregnancy tests appear on my Facebook feed- why? Did I invite-no. Have I gone looking for pregnancy info in Facebook- no. Blocked it immediately but damage is done. Bad mood for rest of today ??

I'll work backwards and see how far I get before getting to work .

loopy so sorry. What a blow. Really hope you are being looked after x

brummie and others struggling with mothers day, hugs.

The multitude of teachers thing is a bit weird..would teachers be more likely to post do you think?

Sorry girlie. I had a letter from my gp linked midwives saying I needed to come for an antenatal review...why can't they check the sodding system..

That's rubbish Bootles. Can't believe your local trust doesn't automatically cancel your appointments after a mc.
That's something at least my trust did.

To those of you talking about Liverpool, I think this guy is up there and might be worth looking at: www.gazvani.co.uk/gynaecologist-mr-gazvani-natural-killer-cells-nk-cells.html His name was passed on to me by a friend of mine who is a fertility acupuncturist working for Zita West in the Midlands.

I also working in education, but am not strictly a teacher. Behaviour support worker in primary...

Except clearly he is not the only UK clinic offering uNK cells and I'd hazard a guess he charges considerably more than Coventry do.

Seems so laughable that three weeks ago was one of the happiest days of my life. Just got engaged, was nearly three months pregnant, was on holiday and having a fabulous time. Now no one talks about or has celebrated our engagement, no one talks about the pregnancy that died, my family tell me about things that happen to others and DP and I are ships that pass in the night.

I am a hollow vessel just existing for my DS primarily though I dream daily of never waking up. It's amazing how life can do a 180 turn and suddenly there is nothing joyous anymore.

Yes baking! Apparently he used to work with Prof Quenby but they went their separate ways... May account for some of that "the only" stuff!

Oh sebsmum I know exactly how you feel. I should have been sharing my 12 week scan photos now. Instead all I can hear is 'I'm sorry I can't see a heartbeat' literally constantly. First thing I think of when I wake up and last thing I think of before I go to sleep. All around me people are pregnant. In fact I knew I was doomed as soon as my 3rd friend told me she was pregnant. I thought if one in 4 ends in miscarriage then that'll be me, and sure enough!
Today I feel angry about everything. The cat is taking the brunt of my shouting which I suppose is better than it being ds. And she has pooed on the floor so she does deserve it!
I want the bleeding to stop so I can get on with investigating but I've read medical management can mess cycles up for months. I literally want to scream.
Plus another friend is texting me telling me it's progesterone that's my problem. She's very opinionated and thinks she knows everything. Apparently that's all i need to get sorted and I'll be fine.
I thought about taking a few codeines early to try getting that spacey feeling I had when I was in hospital last week. But that was from morphine so I'd probably just fail at that too. I just want to stop thinking for a bit!

Oh minnie so sorry you're feeling like this it is truly shit! It's still so raw but in time it will get less so.

girlie I kept getting formula ads on Facebook it's really annoying, have now hidden them too

I got a positive opk today so fingers crossed ill be going to coventry a week on Monday, ill call kerri tomorrow.

tanny hope everything is going ok with little one xx

Minnie and Sebs I know the feeling. I should be celebrating Mothers Day for number. 1, just started maternity leave for number 2 and coming up to 20 wks scan for number 3.

It's all I think about. In fact the irony is the only person who openly talks about my mc and what is coming next and how am I feeling? My pregnant colleague.

Yes seeing her bump every day hurts like hell and makes me feel resentful. But she is acknowledging my grief and trying to support the best she can and for that, I'm incredibly grateful

Not having AF arrive yet is also really upsetting me and I just want to get on with TTC!! But I can't.

I'm trying the 6,000 mg of vitamin c to see if that helps. Not so far. So trying parsley tea today

If not tomorrow when I see the consultant - I 'll be asking after 37 days AF hasn't turned up. My next AF is due in 11 days!!!!!

Have taken opk's - nada

Not pg, no ovulation (well not since day 10)

Thank you all for your lovely messages. It really has felt very special having you all there with me.

Just so sorry that there's so much pain on this thread. Holding this wonderful miracle in my arms makes the pain more palpable somehow. All I can say just now, which I know will sound trite, is that we can get there. I really had almost given up hope of ever getting here, and after five MCs it felt like an impossibility.

We came home about 7pm last night, and Bertie (full name Bertrum) is very relaxed and chilled. I was petrified even during labour that he wouldn't survive, reading something horrible into every silence, but he seems unaffected by my stress, if anything he seems to be completely the other way.

I am happy to post a photo, but with so many babybombs in real life, I am acutely aware that it may be an unwelcome intrusion into this space, so maybe pm me if you'd like to see him.

sebs and minnie I'm so so sorry you are so low. Be gentle on yourselves. Life has dealt you the cruellest of blows, it's a loss of hope. It's so hard to imagine that things will be OK again, but they will improve. In the meantime rest up and we're here.

tanny I have to learn how PM works as I'd love to see Bertrum!

diddly no worries, easily done!

loopy so sorry you're going through this again

sebs and Minnie sorry it is all so raw and painful. A few people close to me are pg and it is so painful hearing about their scans etc when my lost babies are all forgotten about now. After mc1 I also felt I was only existing for my DS, but please know, it WILL get better.

floweroct good luck for Coventry! Let us know how you get on.

brummie wish you could know what's going on. Hope it gets back on track soon.

counting good luck with your scan next week!

Hi bakingtins, flowersoct, flowers29, girlie and IFinished (it's the poster fka HeavenKnowsImMiserableAgain), thanks for the welcome, I'll definately be on the phone to the GP on Monday. I'm not sure whether to carry on ttc in the meantime though?

After a thoroughly miserable few days where I've felt like I'm back to square one and mourning the loss of my baby in september more than this one, I'm trying to be more positive. Although really dreading 20th March when my I was expecting to have my first dc . The arrival of tanny's little bundle of joy has prompted me to focus on being positive about ttc, being pg and having my own little bundle of joy one day , so the miserable name had to go :)

Sorry this isn't rmc related but if anyone would like to rehome a saluki x lurcher that's partial to the odd joint of slow cooked ham {glares at dog happy as larry sat in her bed in the corner }, feel free to pm me.

This will not ruin my day. Grrrr . But might make dinner less interesting for the meat eaters...

Going to be a bit rubbish in my hellos today but a general wave.

Loopy - sorry you're going through this. It's rubbish.

Tanny - huge congrats.

One of my rabbits substitute children died suddenly this morning. He was really poorly when we got up so we rushed him to the vet and he was put to sleep. Vet thinks cancer though I'm so shocked he could deteriorate so quickly. It was so sudden. ??