Recurrent Miscarriage Support Thread 18 - tests, treatment, trying again.

[bakingtins]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Eek just booked in to Coventry next week. Haven't a clue what I'm doing. I will get use to the thought of having a month off TTC won't I? Wasn't an issue if I ov or not, just that the lining is thick enough for the biopsy (min 7.something mm) or I will have to return. Not sure I could handle being sent home and having to come back another week or month... Esp travelling a couple of hours to get there.

Sorry for your recent loss pop. You must be devastated losing your baby girl after having got so far this time. Hope the gym didn't destroy you this morning!

That's good news diddly. At least you know it's going to be done now and they'll give you a treatment plan whatever the outcome. Let us know how it goes. I'll be travelling down from Edinburgh when i go so really hope they don't send me away saying my lining isn't thick enough! Looked at trains and they were 260 quid, so looks like I'll be driving as that's too much on top of the cost of the clinic. Might have to orchestrate a weekend away at my dsis's to soften the blow

Had my consultation for surgery tomorrow. Fuck me the doctor made the whole thing sound so scary as he has to keep banging home all the things that could go wrong. If the option was there for medical management I suspect I would have elected to do that instead. As it is they only recommend that before 9 weeks and if I choose to let nature take it's cause I suspect I could be waiting a very long time as my body has no idea. So I shall do the surgery but I am frankly terrified in going to one of the low percentage that gets a perforation or uterine adhesions and basically will not be able to conceive again.

Cripes sebs not what you need. But presumably just procedure. My consultant was v reassuring before mine. Have you had one before? they are quick at least. Good luck

Sebs - they just have to go through all the risks. It does make it really scary though, particularly when we're used to being on the bad end of the stats and therefore don't derive much reassurance from the words 'low chance'. I'm sure it'll be fine though. Mine was very straightforward and far preferable to the natural mc I had at around the same gestation. In my exp you can really only start the emotional healing once the physical side is done. Hopefully after tomorrow things will start feeling a bit more bearable. Hugs.

Pop - really sorry you find yourself here but warm welcomes. I'd like to echo what others have said in relation to your last loss and how painful that must've been. I'm so sorry. I hope you get all the support and knowledge you need from the thread.

Tbc

March and Diddly - glad you've plans in place and fingers crossed the linings good on the day and they can do the scratch. Hope you find a cheaper way to get there too March!

Good luck tomorrow sebs. I will be thinking of you.

sebsmummy1, I agree with twilightstruggle - they have to go through all the risks. I really wanted the surgery for my mmc last June but, due to the NICE guidelines, had to wait and miscarried at home anyway. I've read the surgery is a much better option, if anything can be 'better' in these circumstances. I hope they look after you and I will be thinking of you also.

Thank you, not in a good place head wise today.

Practical question - DP dropping me off in the morning and picking me up afterwards. I need to ring him though when they release me. Is there a safe place to leave personal belongings in the hospital? They've said to take in some change but I'm concerned if I take in my phone it could get stolen, however I need to ring DP.

Hope it all goes ok tomorrow sebs and that you get seen first. Everyone is right, they have to give worst case scenarios so they don't get sued, but I'm sure you will be absolutely fine. Hopefully it will help give you some closure x

Thank you to everyone for your answers and advice. I am so sorry that there are so many of you going through this but it is very helpful to be able to talk to other people who are experiencing the same thing.

March I am living in South Africa at the moment so it is all private health care and very medicalised. It does mean you can choose a gynae and see them straight away without being referred which cuts down on waiting times which has been good.

Thanks for sharing your story Boozle and good luck with your pregnancy. That is the same combination my dr suggested although he didnt use the name prednisolone - I think it was 'meta' something but I had information overload by that point.

Thanks for the information baking Sorry for being naive but what is IUGR?

More newbies so sorry you find yourselves here. We are here for lots of hand holding and support.

Sebs I've had 2 ERPCs and I promise you they were not bad at all. Far far preferable for me in that I just wanted it all to be over. I was far more frightened of passing everything naturally and being in pain and frightened at home.

I would absolutely do it again. That said it is an operation and they have to go through all the risks

They took my things and locked them in a storage room last time I was in. If imagine each hospital has its own protocol though. I'll be thinking of you tomorrow Seb

Sebs mummy I had an ERPC last March at the same hospital you will be at. Unless things have changed there was no where for me to leave things. My DH stayed there throughout though so he looked after my bag, clothes, phone and more importantly my wedding and engagement rings. They didn't come for me until nearly 11am and I was glad that he was there to talk to me during the long wait, plus afterwards until they were ready to let me go home. Is there any way your DH or a friend could go with you? They told me to rest for 24 hours, because of having a general anaesthetic and I felt very wobbly and weak kneed if you know what I mean, but by the Sunday I felt more back to myself (my op was on the Friday).

Am hoping someone here can help me. So I had a very confused conversation with my GP receptionist today, they have had the remainder of my blood test results back, but they think one of them wasn't done, and that I have normal cardiolipomabs? But that I have tested positive for lupus anti coagulate/lupus coagulant? Not sure if they are the same thing, she hadn't a clue and she said she would get the GP to call me but she hasn't. I've sent an email to Mr Watts secretary at Worcester, as I'm not seeing him until 9th March but if I am pregnant like i think then I feel doomed to miscarry again unless they can see me sooner or arrange some medication, having had a quick google I have seen mention that it means my blood might cause clots or something like that, but does anyone know what medication I need and when I should be starting to take it from? I am a maximum 8dpo, but might only be 6 or 7dpo as not entirely sure when I ovulated, but either way too early even for a first response early test but if I can get a BFP would I stand any chance of getting medication via my GP if I haven't actually seen a consultant?

Wow, that's quick Diddly, how exciting. I hope it goes really well. I look forward to hearing your experience.

Pop really sorry to hear of your losses, I hope you're taking it easy and being looked after.

Sebs you can probably hide your phone amongst your clothes or ask a nurse to look after it. Like you say you need a phone. Is DP going in with you at all? if so I'm sure they'll be able to give him an idea of when to come back. I was first in and was out within 1.5 hrs. Will be thinking of you tomorrow.

Ps the test they have no record of a result was thrombophylia. Should I push for this to be done if they can't trace the result? What would the implications of this be if I had tested abnormal? Are there any implications once pregnant or is it more to do with other issues?

Sebs, agree that they have to give you the risks so you don't sue but I also found it much preferable to the natural MC and I recovered much quicker. I did find I was sleepy the next day and sore and ended up with a cracking bruise a few days later on my tummy but nothing pain killers couldn't sort out. I took my phone with me and my personal belongings were take with me down to theatre and were there in recovery. That said the medical staff rang my husband to collect me, so didn't need phone.

Welcome to the newbies, you're stories made me sad, but you're in safe hands here & amongst friends x

Wow loopy, wish my DH could have stayed with me. Had to say good bye in corridor! Also found DH's nan was also on same day surgical ward, so I sat in my cubical with the curtain closed so she didn't know I was there!

Girlie saints, we were put in a room, sort of like a cubicle on a ward but each one is like it's own room with walls and a door rather than curtains, and DH was with me from 8am until they wheeled me off, and was there waiting for me when they brought me back. Everyone is different but having him there made it easier to get through the day. Just wish they would alter the layout at that hospital as they wheeled me past lilac ward on the way to theatre, which is where I'd been after having the 2 boys.

Hi loopy. Just quickly, I believe treatment for lupus anticoagulant is heparin which is taken from scan at 5-6 weeks showing sac in right place etc. If you get a bfp in a few days (fingers crossed) I'm sure they'd be able to sort you out with the meds in time. Try not to worry. X

loopy no first hand knowledge but I think clotting disorders are treated with aspirin and/or heparin from bfp or after an early scan to check it's not ectopic.

How infuriating to have such partial info and no call back from the dr. Yes, insist they redo the thrombophilia if they have lost the result, as opposed to it just not being through yet. I would insist on at least a phone call from your consultant if you do have a bfp, and preferably in advance of that. Good luck!

I hope you do get some answers quickly and it isn't something that is bad for your overall health.

6 weeks would be too late based on my 2 losses before 6 weeks and another at 6 weeks 2 days :( sounds like my body needs a 5 week scan then...assuming all three were lost because of this

Sorry to see so many more newbies, so many more heartbreaking stories . This is the right place for amazing knowledge and support though.

loopy if they did diagnose thrombophilia you wouldn't be at risk yet - it's blood clots related to the placenta they guard against with the heparin so you wouldn't be at risk in the early stages. If you chase the result and it does show positive you've got time to get treatment. Also, when I was diagnosed with thrombophilia I got a letter through to tell me way before I actually had my consultant appointment at the rmc. Obviously things vary between hospitals but I'd be very surprised if you had a positive result and hadn't been informed.

I had a great appointment with the consultant, he listened to and answered all my many questions!
Looks like IVF starts next cycle!!

I hate all this scrapping around in the dark for answers, it's such a head fuck.

If I was bleeding now I have to be honest I would let it happen naturally after the consultation this morning. But my body is still producing discharge reminiscent of high progesterone so I've got to just man up and get my arse to the hospital tomorrow.

My partner was going to stay with me but I said no as I thought it was pointless. I'm used to being on my own at times of adversity so I'm not bothered, I shall leave my phone at home and just write his number on a peice of paper I think.

I keep hoping I won't come round from the general so I don't have to deal with the aftermath. My partner quite rightly is really pissed off with my mindset as he said why would I want to put him and DS through the pain of losing me too. He is right. It's funny how selfish you become when you get trapped in your grief.