Recurrent Miscarriage Support Thread 18 - tests, treatment, trying again.

[bakingtins]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Brummie I agree with sebs. Any change is a bit disconcerting but it could be a good thing. But I would try another test too. Superdrug ones are quite good and are something like £4 for 2.

brummie if I was 18 days post ov and no AF I know what I'd be doing. Go on, POAnotherS.....

We have survived 6 weeks post Faith's diagnosis today. There are still no answers why she developed spasms, but most recent EEG had improved again and we are having another go weaning off the steroids. She seems to be feeling better on a lower dose, is more happy, smiley and interactive and has regained some of the skills she had lost. I have set up a meeting with work next week, basically to say I'm not going back at the end of mat leave. I'm hoping we can come up with a compromise involving unpaid leave, but it might entail me resigning, which is a bit scary. It just shows you how fragile everything is really, a couple of months back we thought we'd cracked it after a few miserable years.

Baking thank you for the update re Faith. I am glad she is showing signs of improvement and coping well on a lower dose of steroids. Good luck with your work meeting. Would you be entitled to a career break of any sort? At my work they will keep your job open for up to 5 years, though I realise I am lucky. It must be scary having your life plan alter so suddenly. Full of admiration for you as always for taking it in your stride.

Glad faith is showing signs of improvement baking. Such a body blow to have to deal with this after everything else you went through to get here. Really hope you are able to continue weaning her off the steroids.

I do hope your work is understanding. I almost can't imagine how they can't be. Surely everyone would be completely understanding of your situation, wouldn't they? but I know it's not always as easy as that unfortunately.
The main thing is you need to take care of you and your family at the moment. The rest can wait. Keep speaking to us, we're all here for you

baking - so pleased to hear faith is improving. And really hope your work are reasonable and give you some unpaid leave.

brummie - I'd also be inclined to test again just to be sure. x

baking good to hear Faith is improving, I hope it goes well lowering the steroids. It must be such a relief having her getting back to her normal self. Good luck with work, hope they are understanding and flexible.

brummie I think you're going to have to get peeing.....

Great little Faith is showing signs of improvement!

baking What a journey you have been/are on! Great to hear that Faith is showing signs of improvement, and good luck for your talk with work! It's scary how quickly our plans can get blown up and force us to readjust on the drop of a hat... Fingers crossed they will be understanding.

brummie Remind me is this your first AF post-mc? Even if not, I wouldn't worry too much - it can sometimes take a few rounds before your cycles go regular again. And sometimes, they can change for good. After 4 mcs, mine are certainly different from what they used to be!
But yes, ultimately, you will need to poas again for certainty. But I wouldn't waste money on expensive tests, if you use FMU and try not to drink a lot the night before, you should get a definite result. Unless, of course, it's too early to test!

Big temp drop for me this morning, looks as if I might be out of the running for this cycle... I don't even know if I should be glad or not. If I am, at least I can get the MRI on Friday but I would prefer to be pg, if I'm honest
Starting to get slightly concerned why SMEP is not working for me. In the past, I would have fallen pg v. quickly with that effort! THink I need to have another talk with DH about taking his supplements and -shock horror- stop drinking. The latter is not going to go down well...

Baking, Glad to hear Faith is taking small positive steps x

Brummie- took my cycles 4 months to get to normal after the last MC, so share your frustration x

I've just made a total twat of myself. Next door neighbour, we chat very occasionally, just asked me if I had a lovely holiday away. I said yes thank you, very nice, we got engaged. Oh how wonderful she says, and then I had a miscarriage I say whilst my face contorts. She looks totally horrified, says she's sorry, I say it's fine, the holiday was wonderful it just unfortunately became very bittersweet and she pretty much ran into her house.

I just couldn't do the small chat, this is why I avoid people. I can't do the pretence and the stuff upper lip, I expose the dark underbelly and make people uncomfortable. Now she will avoid me quite rightly and I will continue to try not to talk to people in future.

baking I'm glad to hear that Faith is doing better and you can try weaning the steroids again. I hope they will keep your job open for you and it works out ok.

sebs no you haven't been a twat! What you've done is exactly what more people should do imo. I hate all that small talk crap. If people don't want to hear anyone else's bad news or how they are really feeling then don't bloody ask is what I say! Good on you for telling it how it is sebs!

brummie POAS, POAS, POAS!!!

Well I'm off networking now at the pub. Hhhmmmm going to be lots of crappy small talk I think! Until a few beers later maybe...!

I don't think you've made a twat of yourself sebs. I'm exactly the same. Can't seem to keep my mouth shut about it. And in many ways, I don't think I (or you) should have to.

Yes, it's a shame that she might feel a bit uncomfortable, but people only feel uncomfortable because nobody ever talks about this. Unless people start talking about it openly, then people will always feel uncomfortable. We need to break the cycle somehow.

You are going through a tough time and you shouldn't feel like you can't talk about it. You wouldn't be embarrassed to say a family member had died, and this is no different. So don't be too hard on yourself x

I'm loathed to waste a frer when I don't think I am, plus already got bfn plus I am crampy as hell!

If not come on by Sunday will test.

This is my 2nd natural AF since the mc - last one was bang on the 24 days but obviously been having acupuncture plus supplements and raspberry leaf tea.

Of all the months to have a late AF!!

Sebs I know how you feel - I refuse to hide what has happened to me so I tell people all the time!!

I was very happy to just say hello and smile, so I didn't knock on her door and spill my guts at least. She decided to engage me in conversation as I was getting DS out the car and yep, unfortunately got more than she bargained for. I do feel like I offended her sensibilities but I just couldn't tell her what a wonderful holiday we had when I am heart broken and dragging myself around. It almost felt disrespectful for what has happened to lie. I should have lied though as that's the polite thing to do.

I really can't keep up with this thread properly, I have just read over 6 pages of postings since I was last on and no way can I remember it all!

But Sebs mummy I hope you find a way out of the darkness soon.

Congratulations to whoever snuck the BFP in.

Tanny I hope your baby is soon safely in your arms.

Brummie, when did you last POAS? And when did you DTD this month? Any chance you ovulated later than you thought? Either in terms of AF not being due yet or in that the hcg won't have had time to register as not as many dpo as you think?? Have you had your blood results back yet? Or will you only get those on the 9th?

I think I'm going to test tomorrow, have been feeling increasingly pregnant for 7 days now! Will be 13 days post sex, but no idea how many days after sex I ovulated, but I have been taking the progesterone as of Wednesday night, thanks for those that gave their advice, and will take the aspirin from BFP. They provisionally have booked a 6 week scan and am just hoping we make it that far.

I second Loopy with the inability to keep up but congrats to the poster with the BFP. And I hope you get the same tomorrow if you do test...

sebs you did right to say - why hide it? Not your problem how other people handle it.

cloud your comment re DH really made me chuckle as that's exactly how my DH would react if we were possibly ever going to try again!

Have had a really up and down week. All preliminary blood test results from local recurrent mc have come back negative (I've finally found out that they did the autoimmune screen but the thrombophilia screen was not done properly so need to be retested.) Consultant was lovely and has said she will do full pm/test results when they're ready instead of going to somebody else (who doesn't know my history) as was originally planned by the hospital.

Also, have managed to get an appt with consultant at Liverpool clinic on Monday so will be good to get a second opinion and ask about other lines of enquiry (eg not sure why I haven't had a physical exam yet???) Seems very quick but not going to look a gift horse in the mouth! Anybody been there?

Meanwhile, all my frantic googling leads me back to NK cells so will have to wait for two cycles til that can be done. Have I imagined it or did somebody on here mentioned feeling really ill around the time of implantation? This has happened in the last two miscarriages - horrible flu symptoms for 2 days. Would like to know how this poster has got on at Coventry (if they've made it there yet!)

Hope you've all got nice weekends planned .

I feel like I've been clogging the thread up with my whining for days so I shall give everyone a break and sod off for a bit.

Good luck Tanny and Tear, wishing you wonderful and eventful deliveries. For everyone else pregnant and TTC masses of good luck, hope all your dreams come true xxxx

sebs that's what it's for! Sometimes a few of us duck out while we have our heads in the sand but do not ever feel you post too much. We all understand where you are. If this thread is of use to you as support then you will always have everyone's support even should you feel like posting twice a minute. Hugs x

sebs I second what bythesea said. It's why we're all here.

baking glad to hear that Faith is a little more herself.

What does bfp mean? I really dont get all the anacronyms!

Sebsmum ha! I end up just not talking to people i dont know well brcause i am so crap at small talk. Plus, i refuse to set store by the victorian mores of society which dictate we fail to communicate about anything relavent or real or true! So fecking British. As E.M Foster would say 'only connect...' Bollocks to the emotional retards! E x

Hi Sebs mummy- if it makes you feel any better I went to see te beautician yesterday to get my eye brows and moustache waxed and the beautician asked why I wasn't getting the usual fanny wax don't. So I said unfortunately I'm having a miscarriage so that would be a complete blood bath for you right now. I know a terrible thing to say about something so awful but my mouth runs away with me and I crack jokes about things I'm sad about. The irony here is that I teach social skills lol . Just had a suprise of a colleague pop in with her newborn to work which was lovely but also trying not to cry. Xx

Baking glad Faith is improving. It must be so hard.

Sebs please don't worry, this is why we are here. We all need a bit of support. It could be me next week and you'd be just as reassuring to me. Take all the time you need and post as much as you need too.

So bought another test. Cheapie £3.50 twin pack from Sainsbos. Hadn't been to loo for while so tested. BFN

Did OPK but admit potentially could've been later.

I just want AF!!! Which I can be reminded of in a couple of months #fickle

Yikes little what did she say to that? !
bfp is big fat positive (pregnancy test) freckle. i found this helpful:
www.mumsnet.com/info/acronyms

March, wish I knew that list existed before.... Now get why it's called AF!

Brummie- naughty AF

Sebs please don't bugger off for that reason. I, for one will